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Ever Feel Gluten-ed Even When You're Not?

ebrbetty

By ebrbetty
in Coping with Celiac Disease

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ebrbetty Rising Star
ebrbetty
Posted

hi guys, my belly's really been hurting and I've been very bloated and gassy the last 2 days, for the life of me I can't think of anything bad I could have eaten. I had something like 4 or 5 good days and now this..seems to be a pattern where I feel good for a few days, think I'm over the worst of this then its back again.

do any of you ever feel this way?

thanks Betty

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Lisa Mentor
Lisa
Posted

I do. I can go up to a week now and have no problems. Then for whatever reason, I get slightly acid D for a few days, and then it gets better. I think that it may be a little gluten, but also the healing process. The good days seem to get longer and longer. I am now nowhere close to the days where I could not leave the house and my bottom was on fire. It is slow progress, but progress. And to add, that you get better knowing where the gluten is comming from.

My reaction to gluten in the beginning was within a half hour, now I'm up to around 24 hours. I would say that't progress.

When I to get glutened, I revert back to a basic diet that I know is a sure one. Hope this will help

Lisa B

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thanks lisa, I was wondering if it could be something I ate days ago, I used to be able to look at what I ate that day, but now I think it could be from the day before or longer. its so discouraging to me to have a few good days, then I feel like I'm back to the beginning again, my belly looks like I'm 5 months along and the pains are awful, everytime this happens I end up thinking "screw it, this gluten-free diets not working" then hubby will remind me of the good days and say "you may still be in pain, but your not on the floor crying all the time" hes right, but that doesn't stop the pain now!

Guest nini
Guest nini
Posted

I'm wondering if sometimes it has anything to do with hormone fluctuations.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

you could be right nini, I wondered about that too

wolfie Enthusiast
wolfie
Posted

This seems to happen to me to. Last week was a bad week, this week is much better. I agree about it being part of the healing process. I know that I also have other food intolerances that could be part of my problem.

Hope you feel better soon!

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thanks kim, sorry to hear others are still dealing with this, but at least i'm not alone..keeps me from giving up, but i still think about eating a sub everyday :huh:

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wolfie Enthusiast
wolfie
Posted

I am with you on the sub....my sister went to Subway yesterday and I told her I was going to live vicariously through her.

I did make some good bread yesterday though that has me satisfied for now. :)

ebrbetty Rising Star
ebrbetty
Posted
  • Author

would you like to share the recipe? I'm just learning to bake bread, have only done it once and it was a mess :blink:

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      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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    • SilkieFairy
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      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

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