Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Sensitivity Question

Claire

Recommended Posts

Claire Collaborator
Claire
Posted

Does anyone have diagnosed Gluten Sensitivity and a negative endoscopy?

If so I would appreciate knowing how close together you had the tests and where you had the tests.

Thanks for your help. Claire

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
Does anyone have diagnosed Gluten Sensitivity and a negative endoscopy?

If so I would appreciate knowing how close together you had the tests and where you had the tests.

Thanks for your help. Claire

I'm not sure if I understand the question. Are you asking if anyone was diagnosed *Celiac* with positive bloodwork but negative biopsy? If so, there's lots of people on this site. Or are you asking about non-celiac gluten sensitivity?

This is my history:

Oct. 2004 -2 weeks after initiating the diet I had bloodtests done through my HMO. (antigliadin IgA and tTG) Results were negative. I went back on gluten and got extremely ill, lost 25 lbs.

I went gluten-free again April 2005. Got tested through Enterolab August 2005. (Positive IgA, tTG and malabsorption, 2 gluten sensitivity genes, no main celiac genes)

Oct. 2005 I had the endoscopy after having been on the diet 6 months already. I did not go back on gluten for the test. The biopsy was negative which was what we expected anyway.

Claire Collaborator
Claire
Posted
  • Author

Asking about non-celiac gluten sensitivity - wanting to know if anyone has this diagnosis as well as a negative endoscopy. Claire

Rachel--24 Collaborator
Rachel--24
Posted
Asking about non-celiac gluten sensitivity - wanting to know if anyone has this diagnosis as well as a negative endoscopy. Claire

Yeah I had negative biopsy but since I'd been off gluten 6 months its pretty worthless info. If someone were to have had a positive biopsy it would be labeled Celiac...otherwise its whatever you or your doctor decide to "name" it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to jeffpine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Should I be screened for celiac disease?

      @jeffpine, please realize that GliadinX is not designed to allow you to eat large amounts of gluten without celiac repercussions. It is designed to counteract cross contamination situations where you might be exposed to small amounts of gluten accidentally such as you might get in a restaurant when you order something that should be gluten free but it is...
    2. trents
      - trents replied to Dema's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Eating gluten before blood test

      Welcome to the forum, @Dema! The current recommendations for the "gluten challenge" leading up to the day of testing are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily for at least two weeks. I hope this helps you in your decision. This information represents more recently updated guidelines...
    3. Dema
      - Dema posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Eating gluten before blood test

      Hi everyone :). I think I have a high likelihood of having celiac and will please Gd have a blood test in 2 days time confirming this. over the past two weeks I’ve been on and off (to max 5 days) gluten to cope with my symptoms however now I can see online that I’m supposed to be having 2 servings of gluten every day for 6 weeks, which isn’t even my no...
    4. jeffpine
      - jeffpine replied to jeffpine's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Should I be screened for celiac disease?

      WOW WOW WOW, your site did it for me: like this, i saw the ads for GliadinX and followed the product. There were several knockoffs. my engineer friend seperated them and found one at the local CVS at a bargain price. So yesterday I tried it. Twice. Lunch and dinner. works fine. Much obliged,
    5. Jmartes71
      - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Reportable Disease

      I am actively dealing with a ray of issues, my skin, eyes and digestive even though not eating wheat.Menopuase has activated so much right now, considering its getting worse with my health. I have learned so much thanks to this website.I wasn't properly told of my celiac disease which was confirmed by colonoscopy and endoscopy in 1994 the same year I gave...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,096
    • Most Online (within 30 mins)
      7,748
    Belllasnina
    Newest Member
    Belllasnina
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Should I be screened for celiac disease?

      By trents · Posted

      @jeffpine, please realize that GliadinX is not designed to allow you to eat large amounts of gluten without celiac repercussions. It is designed to counteract cross contamination situations where you might be exposed to small amounts of gluten accidentally such as you might get in a restaurant when you order something that should be gluten free but it is cooked on the same grill with stuff that has wheat. Also remember that the absence of noticeable uncomfortable reactions doesn't necessarily equate to no damage happening to the small bowel lining.
    • trents
      Eating gluten before blood test

      By trents · Posted

      Welcome to the forum, @Dema! The current recommendations for the "gluten challenge" leading up to the day of testing are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily for at least two weeks. I hope this helps you in your decision. This information represents more recently updated guidelines but you will find older info giving more relaxed guidelines that were found to be not reliable.
    • Dema
      Eating gluten before blood test

      By Dema · Posted

      Hi everyone :). I think I have a high likelihood of having celiac and will please Gd have a blood test in 2 days time confirming this. over the past two weeks I’ve been on and off (to max 5 days) gluten to cope with my symptoms however now I can see online that I’m supposed to be having 2 servings of gluten every day for 6 weeks, which isn’t even my normal diet.  should I reschedule my blood test. I would really love for it to be diagnosed soon. Would appreciate any advice! thanks!
    • jeffpine
      Should I be screened for celiac disease?

      By jeffpine · Posted

      WOW WOW WOW, your site did it for me: like this, i saw the ads for GliadinX and followed the product. There were several knockoffs. my engineer friend seperated them and found one at the local CVS at a bargain price. So yesterday I tried it. Twice. Lunch and dinner. works fine. Much obliged, 
    • Jmartes71
      Reportable Disease

      By Jmartes71 · Posted

      I am actively dealing with a ray of issues, my skin, eyes and digestive even though not eating wheat.Menopuase has activated so much right now, considering its getting worse with my health. I have learned so much thanks to this website.I wasn't properly told of my celiac disease which was confirmed by colonoscopy and endoscopy in 1994 the same year I gave birth to my first son, my tolerance level was horrible. After being diagnosed and staying away from wheat continued problems. My chiropractor at the time in 2007 had my blood work sent off and turns out I have more food allergies. I told my primary of my celiac disease in 2000 and continued to see that doctor up until May if this year 2025 considering my celiac disease was ignored, disregarded and what Im currently going through and been through. I assumed my celiac disease was " registered " at the time in 1994 just as pregnancy and other ailments are reported. I was shocked to learn that its not a mandated reportable disease not documented by the state from hospitals which I for one think it should be considering all the medical gaslighting im dealing with which is causing depression. Im told not worry about other, well I am and its NOT right.It needs to be documented so others don't suffer and go through this nightmare. Im seriously ready to go down to the mayors office and make some noise. Thoughts?
×
×
  • Create New...