Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help

mbg98

By mbg98
in Coping with Celiac Disease

Recommended Posts

mbg98 Contributor
mbg98
Posted

Hi everyone!

I was just diagnosed with ciliac disease and don't know where to begin! I have been reading up on the topic and have an appt with a dietician next week but I am still in shock. anyone to talk to would be nice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

Welcome! You're in the right place! Everyone here is so nice and so knowledgeable, you'll be an expert in no time :)

There is a person on here, Nini, that has a newbie survival kit and she'll probably email it to you if you ask real nice B)

Keep on reading and posting, you'll learn lots!

mbg98 Contributor
mbg98
Posted
  • Author
Welcome! You're in the right place! Everyone here is so nice and so knowledgeable, you'll be an expert in no time :)

There is a person on here, Nini, that has a newbie survival kit and she'll probably email it to you if you ask real nice B)

Keep on reading and posting, you'll learn lots!

Thanks any help I can get would be nice, this is a shock for me. I had gallbladder issues but they did an endoscope to make sure of no ulcers but found damage in the the small intestine, did a biopsy and was told i may have celiac and to get a blood test to confirm. They called today and said without a doubt i have Celiac disease. I have always had digestive issues but thought it was from my poor eating habits, so now I am recovering from having Gallbladder surgery and i get this news, a little shocking!

Lollie Enthusiast
Lollie
Posted

I know how you feel!!!! I had digestive issues for a long time- they always said it was ulcers or gastritis, then Christmas 2004 they removed my gall bladder...... Needless to say, I still had issues and then my husband found out about celiac, I did all the testing, and the diet confirmed it! It is so much better now for me! I hope you have as easy a time adapting as me. I had immidiate results from the diet, so I am a testiment to gluten-free!!!

I'll be happy to help in any way I can!

Lollie

jackie4 Apprentice
jackie4
Posted

You are in the right place. My daughter was diagnosed four weeks ago and I felt the same way. I got so much information and everyone is so nice that it made an overwhelming situation more manageable. She is feeling better and that makes keeping to the diet a lot easier. One tip I do have is always carry your cell phone with you when you are shopping. Since i am not 100% sure about ingredients yet , if I find an item I am not sure about I call the 800 number and ask. Then I add it to my neverending list of gluten free foods. Good luck with your visit! Jackie4

Ps. Gluten free Pantry makes an amazing brownie truffle mix and I can find it in the supermarket. I made a bunch and then cut them up and froze some. They are great!

McDougall Apprentice
McDougall
Posted
Hi everyone!

I was just diagnosed with ciliac disease and don't know where to begin! I have been reading up on the topic and have an appt with a dietician next week but I am still in shock. anyone to talk to would be nice!

The best thing is you now know why you have been sick and all you have to do is not eat gluten and you will be fine. The tough part is you need to be very careful with what you eat and how or who prepares it. Be more careful than the doc tells you. I would stay with whole foods for a while that you are 100% are safe and add foods only after you research them first. Trust yourself more than the docs and dieticians so many of them are cluless. Prepare your own food and be careful it is prepared without contamination. Don't eat out at all. Enjoy not being sick anymore the limited diet is way better than being sick and ruining your health.

Canadian Karen Community Regular
Canadian Karen
Posted

Hi! Welcome to the board!

We have all been where you are right now, in shock and not knowing what to do next. Ask questions, lots of them! Our motto here is that the only stupid question is the one not asked...... There are a bunch of really knowledgeable, helpful, supportive people here who are always willing to chime in.

Firstly, you need to get the delpi list. It is a lifesaver. It is a list of gluten free foods, medications, toiletries, etc. It is broken down into convenient categories to make it easier shopping.

Go to www.delphiforums.com. Click on the left hand side where it says "Health & Wellness". Once you do that, the first or second forum that comes up is the Celiac Support Group, click on that (at some point, you need to sign up, but it is free). Once you click on the forum, if you scroll down, you will see "Gluten Free Products List". Click on that and the list will come up in all the categories. There is also a way you can download that list too - it is a lifesaver. You will be absolutely amazed how many mainstream products are gluten free for us. Also, there are certain companies who are very celiac-friendly, meaning they will clearly list anything on their products that will harm us - Kraft is an excellent example of this - we celiacs LOVE Kraft and are very loyal to that company.

Also, it is essential you get your own toaster most importantly, but also utensils, pots, etc. Just one crumb from a regular bread toaster will make you ill. Next, do an inventory of EVERYTHING that even comes close to your lips. Make up, lip salve, medications, vitamins, supplements, over-the-counter medicines, etc. I made the mistake of eating Gas-X Chewable Tablets like candy for my gas pains, only to find out they contained gluten!!!! (The gelcaps are okay for us.....).

I know it can seem overwhelming at first, but trust me when I say that you will grow accustomed to it and it will be like second nature to you in no time, especially when you start seeing the positive results of your new diet.

Again, any questions, just ask away!

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Celiac is a really hard thing to get used to at first, but once you've mastered the basics your new diet will be a piece of cake (gluten free cake of course). My biggest saving grace with going gluten free was the Magic Bullet. You can get them at Open Original Shared Link, eBay, Walgreens, and lots of other places. I've found so many delicious new things to make that I don't miss the gluten at all anymore. Lara Bars have been another great new discovery as they satisfy my munching urge when the sweet tooth kicks in. Once you start feeling better (I'm assuming that you got sick before you were diagnosed) everything becomes really easy. Healing is the hardest part. Don't forget that you can always turn to this board if you're having a frustrating day. The people on here are wonderful. Good luck!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.