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Those Of You With Positive Biopsy......

slpinsd

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slpinsd Contributor
slpinsd
Posted

How many out there have had a positive biopsy where your dr. said that they saw intestinal damage during the endoscopy? How many was the damage unnoticed during the procedure, but came back positive? I'm wondering if it actually can be seen with the naked eye?

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Guest schmenge
Guest schmenge
Posted
How many out there have had a positive biopsy where your dr. said that they saw intestinal damage during the endoscopy? How many was the damage unnoticed during the procedure, but came back positive? I'm wondering if it actually can be seen with the naked eye?

I have the pictures at home that clearly show the damage. When I came out of recovery the doctor showed me the pictures and told me that while it would take a few days for the biopsy results he sure they would come back and tell me I have Celiac.

At the time I had no idea what that meant. It was not until I was researching on the Internet that I found that Celiac and the Sprue my grandmother had were one in the same. Neither was even on my radar screen.

mbg98 Contributor
mbg98
Posted
How many out there have had a positive biopsy where your dr. said that they saw intestinal damage during the endoscopy? How many was the damage unnoticed during the procedure, but came back positive? I'm wondering if it actually can be seen with the naked eye?

My doctor did a endoscope looking for something else and saw that there was some mild damage, he did a biopsy and the results came back that I more than likley have celiac sprue but to follow up with a bloodtest, that just came back positive.

godd luck!

skoki-mom Explorer
skoki-mom
Posted

You can't see the villi themselves with the naked eye. However, the damaged intestine can take on a scalloped appearance. Mine was like this. However, the biopsy was still required to verify the microscopic findings and verify the diagnosis. My GI told me I had classic scalloping associated with celiac disease as soon as my endo was done, then he called me in 2 weeks with the results from patho. Soooo, while yes, in my case, the changes were seen by him, just because changes in the appearance of the small intestine may not be visible, it doesn't mean you do not have celiac disease. It is the microscopic exam of the villi themselves that shows the flattening. Am I making any sense????

plantime Contributor
plantime
Posted

My doc was looking for ulcers, but instead found "patches of red, and inflammation." He took samples from the patches, he wanted to know what was causing them. What he found was what I had already told him: celiac.

DingoGirl Enthusiast
DingoGirl
Posted

I was startled to learn, as I had never heard of Celiac, that I had literally NO villi left at all, intestine was completely flattened.....which explained complete malmutrition and chronically not being able to keep weight on...... :blink:

jerseyangel Proficient
jerseyangel
Posted

My doctor found 'inflammation' while doing the endo. He told me to begin the gluten free diet that day.

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chrissy Collaborator
chrissy
Posted

our kid's ped gi told me that the only thing he could see was that there didn't seem to be as many folds as you would see in a normal intestine,(but her esophagus looked good). i compared it to the picture of her twin sister's endo(done for reflux) and they looked about the same.(except the esophagus) turns out the "good esophagus" was actually inflamed from reflux (with no symptoms) and both girls actually have reflux. neither showed damage in their intestine, both had postitive blood tests.

christine

  • 2 weeks later...
slpinsd Contributor
slpinsd
Posted
  • Author

Thanks for your input. I went back to the GI doc, and she showed me the pictures showing mild scalloping of the folds. She said it wasn't "classic" damage, but it looked like damage. My biopsy was negative. She won't dx me with Celiac b/c of that, but I'm getting a second opinion on the biopsy!

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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