Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What I've Learned So Far About Myself...

Linda352

By Linda352
in Coping with Celiac Disease

Recommended Posts

Linda352 Rookie
Linda352
Posted

Hello All! Well, I've been gluten free for about 2 months now and have really been feeling so much better but not complete. I haven't been tested by any doctors but just doing my own elimination diet to see what might be causing me to be in so much pain. Drs told me it's arthritus and I will have to learn to live with it...They don't know me very well :rolleyes: Anyway, through my own research and learning about food intolerances so far I've discovered so much about how my body has changed since entering the Menopausal phase of my life. This week I decided to stop all alcohol consumption, including wine (this is such a bummer) to see if I wouldn't notice any more positive changes and after only 3 days I am practically pain free which I thought I would never feel again :D I just wanted to share in case anyone else has been suffering in a similar way. I know each individual seems to suffer differently than another and it totally amazes me how foods that we are made to believe are "healthy" for us aren't necessarily so. I hope each and everyone of you are able to figure out your food culprits as I have as it's well worth it even though some may be your favs :) Have a beautiful day!

Linda/NJ

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nevadan Contributor
Nevadan
Posted

Linda,

Thanks for the post with your experience. Loss of wine would be a real bummer :) What else did you eliminate? If you add any of these back without consequences, please post. I also have what appears to be "arthritis" which comes and goes and so far doesn't correlate with any food elimination I've tried, including wine.

George

Linda352 Rookie
Linda352
Posted
  • Author
Linda,

Thanks for the post with your experience. Loss of wine would be a real bummer :) What else did you eliminate? If you add any of these back without consequences, please post. I also have what appears to be "arthritis" which comes and goes and so far doesn't correlate with any food elimination I've tried, including wine.

George

Hi George....I have also cut back on my sugar consumption. I rarely eat any baked goodies anymore, however since today is my b'day one of my DD's brought over a flourless chocolate cake yesterday which did have lots of sugar in it and it did not affect me at all. Aside from this I really hadn't had any sugar since last summer. I do think that this has also been a plus in how I've been feeling. I eat a lot of salads and veggies and try my best to not eat any junk food. My arthritus (upper spine area) is my only reason for going gluten-free. I don't have any of the other symptoms that others here are struggling with. It's pretty easy for me to be strict with my food intake as long as I don't go anywhere :P Also in regards to my arthritus I've been taking Glucosamine with MSM for a few years now and just recently also added a supplement called Celadrin which I had read that it works well together with the Gluc/MSM. So I don't know if it's the diet or the Celadrin which are making me feel better....or both. As long as I notice an improvement I'm for anything that works so I will continue to do as I am doing and hopefully will continue to feel better each day. Have you tried any glucosamine supplements or do you take any presc. meds for your arthritus?

Linda

jerseyangel Proficient
jerseyangel
Posted

Happy birthday, Linda :) Glad to hear you're figuring things out and feeling better. It takes time--I'm 9 months into it, and have finally figured out what I should and should not be eating--unless, of course, something changes! I know there's always that possibility during this long healing process, but when I look back at where I was a year ago, I have to say I'm so much better. Your cake sounds yummy :D

Linda352 Rookie
Linda352
Posted
  • Author
Happy birthday, Linda :) Glad to hear you're figuring things out and feeling better. It takes time--I'm 9 months into it, and have finally figured out what I should and should not be eating--unless, of course, something changes! I know there's always that possibility during this long healing process, but when I look back at where I was a year ago, I have to say I'm so much better. Your cake sounds yummy :D

Thanks Patti for your kind wishes :) Yes my cake was quite deliceous! Glad you are feeling much better after being gluten-free for as long as you have. I hope I can keep it going as well as you have. I still have yet to venture out to a restaurant or anywhere else to eat. As long as I'm home I'm good B)

Linda

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.