Could I have non-celiac gluten sensitivity? Extreme symptoms

[catriel25]

Hello everybody!, I will try to make it short because is a really long sory.

I have had a shitload of random symptoms all my life (I'm now 28 y/o), the worst of them being fatigue, brain fog, depression, anxiety, obsessive intrusive thoughts, poor memory and lack of concentration.

As time passed, and with every doctor telling me I was fine, my symptoms got so bad I started to forget pieces of my day. I would appear in my job without remembering leaving my house. A doctor finally belived me this summer and found out I have hypotiroidism, but after getting my levels on check not only my symptoms do not improve: my fatigue got so bad I almost could not get out of bed. I would fall asleep on my chair at 10 a.m. with a coffe in my hand.

Because I could not keep living like this I decided to come back to my fitness life again and started to eat healtier. Within 2 days I felt better than in last 4 months, every day I was feeling better and better. At day 5 my girlfriend came over and I drinked a beer with her, 10 minutes passed and fatigue and brain fog came back like a truck, eated some bread at lunch at it got worse. At this point I could not understand what was going on, but my fuzzy mind remembered that the last days I had not consumed anything with gluten in it. I also remembered that since I moved to a new apartament some months ago, I started to eat a lot of noddles and bread, and then was when the symptoms got worse. So, I got some blood tests done yesterday, and today my ttg-iga came back at 8 U/ml (normal 0-20 U/ml). 

But the same happened, I stoped eating gluten and after about 1-2 days I started to feel better and better every hour.

Can this be non-celiac gluten sensitivity? I'm not aiming to a month without gluten to see how it goes, because is the only thing that made me feel better in a looong time.

I should mention that I don't get GI symptoms, maybe some bloating and acid reflux when sleeping, but that is as far as it goes.

[catriel25]

12 minutes ago, catriel25 said:

Can this be non-celiac gluten sensitivity? I'm not aiming to a month without gluten to see how it goes, because is the only thing that made me feel better in a looong time.

 

Sorry, I meant that I'm NOW aiming to a month without gluten.

[trents]

All the symptoms you describe are classic symptoms of Celiac Disease and not just gluten sensitivity. So, I would be surprised if you do not have Celiac Disease. Please ask your doctor to run a Celiac antibody blood panel but it would not be accurate unless you are still consuming gluten.

Edited August 8, 2020 by trents

[catriel25]

1 minute ago, trents said:

All the symptoms you describe are classic symptoms of Celiac Disease. Please ask your doctor to run a Celiac antibody blood panel.

Forgot to mention I'm sorry, my endo who I'm seeing for my tryroid sent me to test antitransglutaminasa iga (wich I mentioned in the other before) and antigliadin iga and both came back negative for celiac.

[trents]

Okay  then. If you feel better when avoiding gluten it is likely it is gluten sensitivity. But you really need to educate yourself on how gluten is hidden in prepackaged foods, meds and supplements, particularly when you consider the issue of cross contamination, even when wheat, barley or rye are not intentional ingredients. 

[DJFL77I]

13 hours ago, catriel25 said:

I should mention that I don't get GI symptoms, maybe some bloating and acid reflux when sleeping, but that is as far as it goes.

those are GI symptoms

[catriel25]

13 hours ago, trents said:

Okay  then. If you feel better when avoiding gluten it is likely it is gluten sensitivity. But you really need to educate yourself on how gluten is hidden in prepackaged foods, meds and supplements, particularly when you consider the issue of cross contamination, even when wheat, barley or rye are not intentional ingredients. 

Thanks! I don't think that it will be a issue nutrition wise, I started learning about nutrition when I was 15 because I love weight lifting and because of that I know what food contain gluten or can be cross contaminated.

I will restrict myself to rice, meat and vegetables with just salt for the next month to confirm my hypotesis.

 

7 minutes ago, DJFL77I said:

those are GI symptoms

Yeah, it is maybe that I have experienced them for so long that I just dont account for them... thanks for the insight!

[Scott Adams]

Dining out is a common source of gluten contamination, and this article may be helpful: