Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gaining Back The Weight


Kim UPST NY

Recommended Posts

Kim UPST NY Apprentice

Hi eveyone, I am so scared I was Diagnosed in Jan of this year and I went from 102lb to 85lb Iam 5'2" And I am so scared I do eat , I also have a slight eating disorder, well when you go through your life in pain after you eat you start to think the food is making you sick. Well I still have a fear of food slightly but now I just can't gain weight. I do eat , I eat eggs lunch meat Chicken Lots of Salads , Celery But none of these things are helping me What can I eat? Please feel free to e-mail me kmztoy@hotmail.com


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

I can empathize with your situation. I am 5'5 and got down to 95 pounds. I was so afraid to eat anything because everything made me feel bad. Even after going gluten-free, I had awful nausea and stomach problems for awhile. I didn't begin to gain weight back for about 6-8 months, unfortunately (though I gained back about 5 to 8 pounds initially). I'm now finally back to my pre-Celiac days' weight, but it's taken me a year and a half to get here. However, my intestines were really damaged and my body still feels like it's healing. So, give it some time--you will eventually gain weight back.

In the meantime, it's all about "good" fats--peanut butter, Ensure, olive oil, pure butter. I also began eating more cakes and cookies to gain weight back. I figured I had been ill for so long that it was time to indulge :) If you're still feeling ill, though, eat simply: pure fruits and veggies, potatoes, fish, and chicken. Then, on to the good stuff :)

Hang in there--it will get better, but it may take some time. Good luck!

par18 Apprentice

Hi Kim

I understand where you are coming from. I was there about 11 months ago. I was approx 30 lbs underweight when Dx'd in May 2005. At first I was scared and not hungry. A visit to an RD set me up on a diet of mostly naturally gluten free foods. In the beginning I was eating almost 3000 calories a day. This consisted of 3 meals and 2 snacks a day. It seemed like all I was doing was eating but I felt the only way to gain weight is to eat. I do not know how much of what I ate in the beginning was being absorbed but my main symptom (diarrhea) went away in only two days. I don't think I missed a meal for about the first 2 months. After about 12 weeks I had gained about 10 pounds and started to relax. I resumed my normal activities and my appetite returned. Today I have gained back all the weight I needed. If you have to do so chart a sample diet for about a week and try as best that you can to eat at regular intervals. The key for me was making eating a routine. For now try to view food as a fuel and not some restrictive measure. Also try to get your mind off the disease by focusing on other things that interest you. This website is a valuable source of information. The snacks I ate in the beginning consisted of yogurt,nuts, peanut butter on gluten-free toast,fruits and chips (corn or potato). Good luck to you.

Tom

bluejeangirl Contributor

;)

Hi eveyone, I am so scared I was Diagnosed in Jan of this year and I went from 102lb to 85lb Iam 5'2" And I am so scared I do eat , I also have a slight eating disorder, well when you go through your life in pain after you eat you start to think the food is making you sick. Well I still have a fear of food slightly but now I just can't gain weight. I do eat , I eat eggs lunch meat Chicken Lots of Salads , Celery But none of these things are helping me What can I eat? Please feel free to e-mail me kmztoy@hotmail.com

Kim,

Do you still have an uneasy feeling when your stomach is full. Food issues are not easy to get over. I can tell you what I'd eat to gain weight but it mostly involves high fat foods and desserts after I'd ate a nice lunch or supper. You don't have to be scared to eat anymore. and keep telling yourself that. You said you eat lots of salads, well try eating smaller salads with like a grilled cheese on kinnikinnick Italian white tapioca bread. Have some chips with it. Have two Pamela's cookies the ones that are already made. It will take awhile to stretch your stomach and eat normal. But I keep looking at what you eat and its all the stuff I'd have if I wanted to lose weight not gain. ;)

Lollie Enthusiast

I can totally relate to you! I am 5'9' and got down to 110. I got very scared. I lost weight when I started the diet. but now I find that I have gained about 20lbs and I eat little snacks all day! i agree that it will take some time to allow your body to heal and it will take time to stretch your stomache back to a more normal size. I think I just ate like kid sized meals mostly, then I would have a snack or snacks, in between. I always thought that food would make me sick, because it really was, but now I know that if I avoid the ones that make me sick, the others make me feel good! It has taken me a while to switch my mind over, but it is so much better now! I drank insure, and I love chocolate milk (I am not lactose intolerent). I also started having ice cream. All the things that you like, you should stock your house with and have them ready to eat.

Good Luck!!!!!!!

Lollie

ravenwoodglass Mentor
Hi eveyone, I am so scared I was Diagnosed in Jan of this year and I went from 102lb to 85lb Iam 5'2" And I am so scared I do eat , I also have a slight eating disorder, well when you go through your life in pain after you eat you start to think the food is making you sick. Well I still have a fear of food slightly but now I just can't gain weight. I do eat , I eat eggs lunch meat Chicken Lots of Salads , Celery But none of these things are helping me What can I eat? Please feel free to e-mail me kmztoy@hotmail.com

Something that helped our family was carnation instant breakfast, the powder, we woould add a shake with it whole milk and ice cream a couple times a day. If you can have dairy they come to about 500 calories each or more. Make sure the ice cream is gluten-free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.