Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seasonal Allergy Symptoms + More


KatieM

Recommended Posts

KatieM Newbie

Hi all,

I'm very new to all this as I've only suspected I have Celiacs for less than a week now, so bare with me.

Back in March once pollen season hit, I was staggeringly struck down with horrible allergies seemingly out of the blue. To the point where I was physically sick, unable to eat, etc. until I started montelukast and also a steriod inhaler. I haven't had asthma symptoms since childhood (I'm now 25), so it was a shock to me when they came along with my allergy symptoms. I left it at that I was unlucky and began taking allergy drops to hopefully help next year be less tough on my body/lungs.

Since then, I've struggled on and off with random stomach issues and low energy, but I always chalked it up to allergies...until last week. I was hit  one night with a pins and needles feeling that extended from the top half of my arms to my back and in my legs, and along with it came a burning feeling when I would lay down at night. I've had the worse sleep of my life these past couple weeks. Once I started googling and celiacs came up, I've attempted cutting it out. The pins and needles seem to be improving, but I'm still strugging with feeling very weak, a sort of shaky feeling in my body, the feeling of breathlessness (further exacerbated by allergies of course) and just general blahness. I even got tested for covid to be sure and thankfully negative. My doctor did a blood test that came back today as normal--no celiacs and not even low iron or B-12. I had been eating gluten up until the test (the weekend before I had 6 beers, pizza, a bagel sandwich and more lol), especially since it hadn't even crossed my mind until after. 

I guess my main questions are---did anyone experience seasonal allergies as a symptom? Do these other symptoms line up with celiacs? Of course everyone's body reacts so differently, but I am curious. I am going to continue to eat gluten-free and I hope to see more improvements. I was doing a litter better on Monday and decided to have some potato chips before bed--Tuesday I woke up and was down for the count with low energy. Can foods that are still gluten free affect you while "being glutened" if they're highly processed/oily/etc?

I know this is a lot! I have a lot to learn, but I'm hoping to gain some insight as I start this journey.

Thank you in advance to anyone who replies! I truly appreciate it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Celiac Disease and seasonal allergies would engage entirely different immune response subsystems. I doubt there is a connection there. Even though your blood tests were negative, that does not necessarily rule out Celiac Disease. We have forum members who experienced the same thing with negative blood antibody tests but when their small bowel was biopsied it showed the classic damage to the villi caused by Celiac Disease. If people start eating gluten free before the blood tests that can invalidate the results.

Yes, processed food ingredients can mimic Celiac GI distress.

It is also possible that you do not have Celiac Disease but do have gluten sensitivity.

knitty kitty Grand Master

KatieM, 

Your asthma, the pins and needles feeling, fatigue and stomach issues can all be indicative of Type Two Diabetes and Thiamine (Vitamin B1) deficiency and Celiac Disease.  

Low Thiamine symptoms include "sailor's asthma," fatigue, neuropathy (pins and needles), and gastrointestinal symptoms (gastrointestinal beriberi).  You can have low thiamine with or without having Celiac Disease.

A diet heavy in carbohydrates but lacking sufficient thiamine can lead to low Thiamine.  Alcohol consumption can lead to low thiamine.  Potato chips, pizza, beer, and bagels are all high carbohydrate foods.    

Thiamine is needed to produce insulin, and to turn carbohydrates into energy.  Without enough thiamine, the body can't produce enough insulin, so your blood sugar can get too high, leading to insulin resistance and Type Two Diabetes.  Seventy percent of Diabetics have low thiamine levels.

Celiac Disease can cause malabsorption of thiamine.  

There are several different blood tests for Celiac.  Ask your doctor to do the full panel of tests for Celiac.  A DNA test can reveal genes for Celiac.

Ask your doctor to test for low thiamine.

Ask your doctor to test for Type Two Diabetes.

Keep us posted on your journey.

Hope this helps!

 

 

 

Scott Adams Grand Master

I had severe seasonal pollen allergies until I was diagnosed when I was around 27. I used to have to take both food and pollen allergy shots. My nose was more or less permanently clogged during much on my youth, but I didn't have obvious symptoms from the food allergies, beyond the constant nasal drainage issues. My allergist told me back then, long before I was diagnosed with celiac disease, that the scores on my food allergies, especially to wheat, were some of the highest that he'd seen, and he even recommended that I rotate my diet and only eat wheat once or twice a week, which I didn't do. 

The good news is that I'm mostly allergy-free now, and only have minor pollen allergies during June only.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.