Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does this look like DH?


selectivefocus

Recommended Posts

selectivefocus Enthusiast

This is on my 8 year old daughter. She gets DH on her elbows and knees but it's much more individual bubbles than something like this. This is in her groin area, and it burns/stings very badly, not itchy whatsoever. Limiting dairy is helping (iodine). It started after I gave her a horizon organic milk box in her lunch. It has added D3 and doesn't say gluten-free anywhere on the box but it's just milk. Almost everything she eats is Certified and she doesn't eat yogurt or anything. After meticulously going over everything she ate this was the only different thing besides her teacher giving her fruit snacks (that said gluten-free on the bag).

20201023_153431.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Of course we can't officially diagnose you with just this image, however, it does look a lot like the small spot of DH that I had on the back on my hand (until it was horribly sunburned and never came back!).

It would be important for her to get a celiac disease blood screening, and see a dermatologist for a skin biopsy that looks specifically for DH (must be done correctly).

selectivefocus Enthusiast
7 minutes ago, Scott Adams said:

Of course we can't officially diagnose you with just this image, however, it does look a lot like the small spot of DH that I had on the back on my hand (until it was horribly sunburned and never came back!).

It would be important for her to get a celiac disease blood screening, and see a dermatologist for a skin biopsy that looks specifically for DH (must be done correctly).

She has been diagnosed through blood test. But the DH that she had before looked nothing like it. That's why I'm confused. Our household is strictly gluten-free so I'm just confused what caused her to flare.

Scott Adams Grand Master

The general recommendation is to avoid all processed foods for a while, even certified gluten-free ones. This isn't easy to do, but studies have found trace amounts of gluten in foods that are labelled gluten-free, and I believe even in some that were certified gluten-free.

knitty kitty Grand Master
(edited)

selectivefocus,

There is iodine in "just milk".   This could be causing your daughter's DH to flair.  I'd suggest no dairy at all.  Greens are a better source of calcium.  Check your salt, too.  Pink Himalayan salt has less iodine than sea salt.   

DH is pressure sensitive.  DH will occur anywhere there is pressure.  We rest on our elbows, clothes press on on knees and get bunched up in our crotch.  

I got DH blisters on the palms of my hands from pushing a grocery carriage around the supermarket.  And I got DH blisters under elastic in waistbands and in underwear.  

Also, riboflavin (vitamin B2) deficiency can cause a rash in the groin area like that.  (Been there, done that.)

DH will improve with Niacinamide or Nicotinic acid (vitamin B3, not the stuff in cigarettes).  

My skin and rashes improved dramatically with B-Complex vitamins and Vitamins C and A.  

Have you thought about giving your daughter a B-Complex vitamin supplement?  Discuss this with your doctor. 

Hope this helps!

 

Edited by knitty kitty
Typo correction

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,807
    • Most Online (within 30 mins)
      7,748

    MoonBear
    Newest Member
    MoonBear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • nanny marley
      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.