Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

bumps on head - possibly a form of folliculitis?


celiacinrecovery

Recommended Posts

celiacinrecovery Apprentice

I've had my DH under control for a few months, after committing to a strict diet that includes no pre-packaged foods (even if they're certified gluten free). According to a scope, my villi look healthy. I'm feeling much better, and seem to be recovering, with a focus on eating well, getting back to exercising regularly, and getting healthy probiotics (supplements and homemade fermented foods).

The major issue I have now is recurring bumps on my scalp. These develop in places where I have hair (so not on my face). Sometimes they'll I'll have an inflamed hair follicle, suggesting folliculitis, but sometimes there's just little bumps. They can get a little sore, and are a nuisance when I go to shave my head (I have male pattern baldness and use the #1 clipper setting, rather than shaving to the skin).

A few observations:

  • It gets worse if I wear hats ... presumably the friction irritates the skin and causes them
  • For some reason if I let my hair grow a little longer it gets worse.
  • Washing my scalp in the morning and before bed helps keep it in check - I'm much more likely to get it if I don't  do this - but doesn't stop it completely.

I change my pillowcase each day, and avoid wearing hats whenever possible.

I'm trying to get a better understanding of what this may be, and whether it is related to my celiac. I do theorize that it is related, possibly due to the weakened immune system or gut flora.

Any insight would be appreciated. I've spoken to doctors about this in the past and didn't get much of anywhere. I started talking to them pre-celiac diagnosis, and then we put the focus on my DH. Now that that has been addressed I'd like to sort this one out.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

It sounds like this is a new development, as is dealing with your DH. I too wonder if it is related, and if it's possible that you might be getting small amounts of gluten in your diet, and that it could actually be DH. To me it seems strange that you would suddenly get folliculitis at around the same time that you are dealing with DH, but I'm sure that stranger coincidences have happened.

The big difference between the two seems to be that folliculitis would always be associated with a hair follicle. Perhaps you could have someone examine the blisters to see if this is the case, and to try to notice if they look more like DH blisters (usually tiny with clear heads). It also seems like DH would be more itchy than folliculitis, but I could be wrong about that.

celiacinrecovery Apprentice
1 hour ago, Scott Adams said:

It sounds like this is a new development, as is dealing with your DH. I too wonder if it is related, and if it's possible that you might be getting small amounts of gluten in your diet, and that it could actually be DH. To me it seems strange that you would suddenly get folliculitis at around the same time that you are dealing with DH, but I'm sure that stranger coincidences have happened.

The big difference between the two seems to be that folliculitis would always be associated with a hair follicle. Perhaps you could have someone examine the blisters to see if this is the case, and to try to notice if they look more like DH blisters (usually tiny with clear heads). It also seems like DH would be more itchy than folliculitis, but I could be wrong about that.

Hi Scott, thanks for the reply. Just to clarify, I think I might have worded things a bit poorly in my original post. The bumps on my head that I'm discussing have been an issue for many years -- they definitely predate resolving the DH. For a while I thought resolving the DH might resolve this, but that clearly isn't the case. So what I was trying to say is that I went to the doctors and had both these bumps on my head, and the DH. The doctors didn't know what either was, and we tried to treat them but ended up resolving the DH first. Now I have these odd bumps the reoccur, and I'm hoping to fix that problem now.

I'd love to have a dermatologist look at these, but where I live it takes a year to get an appointment, and I haven't gotten much help out of that.

 

Scott Adams Grand Master

Thanks for the additional info on the timeline. It does still sounds like it is possible that the bumps on your head could be DH, but only a visit to a dermatologist could tell for sure, and if you are 100% gluten-free those should go away as well. I would just be sure that my diet is 100% GF, and if the bumps on your head don't go away after a couple of months it's probably safe to assume that they might be folliculitis or something else that a dermatologist would need to diagnose.

Let us know what you find out.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    2. - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    4. - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748

    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.