Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

bumps on head - possibly a form of folliculitis?


celiacinrecovery

Recommended Posts

celiacinrecovery Apprentice

I've had my DH under control for a few months, after committing to a strict diet that includes no pre-packaged foods (even if they're certified gluten free). According to a scope, my villi look healthy. I'm feeling much better, and seem to be recovering, with a focus on eating well, getting back to exercising regularly, and getting healthy probiotics (supplements and homemade fermented foods).

The major issue I have now is recurring bumps on my scalp. These develop in places where I have hair (so not on my face). Sometimes they'll I'll have an inflamed hair follicle, suggesting folliculitis, but sometimes there's just little bumps. They can get a little sore, and are a nuisance when I go to shave my head (I have male pattern baldness and use the #1 clipper setting, rather than shaving to the skin).

A few observations:

  • It gets worse if I wear hats ... presumably the friction irritates the skin and causes them
  • For some reason if I let my hair grow a little longer it gets worse.
  • Washing my scalp in the morning and before bed helps keep it in check - I'm much more likely to get it if I don't  do this - but doesn't stop it completely.

I change my pillowcase each day, and avoid wearing hats whenever possible.

I'm trying to get a better understanding of what this may be, and whether it is related to my celiac. I do theorize that it is related, possibly due to the weakened immune system or gut flora.

Any insight would be appreciated. I've spoken to doctors about this in the past and didn't get much of anywhere. I started talking to them pre-celiac diagnosis, and then we put the focus on my DH. Now that that has been addressed I'd like to sort this one out.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

It sounds like this is a new development, as is dealing with your DH. I too wonder if it is related, and if it's possible that you might be getting small amounts of gluten in your diet, and that it could actually be DH. To me it seems strange that you would suddenly get folliculitis at around the same time that you are dealing with DH, but I'm sure that stranger coincidences have happened.

The big difference between the two seems to be that folliculitis would always be associated with a hair follicle. Perhaps you could have someone examine the blisters to see if this is the case, and to try to notice if they look more like DH blisters (usually tiny with clear heads). It also seems like DH would be more itchy than folliculitis, but I could be wrong about that.

celiacinrecovery Apprentice
1 hour ago, Scott Adams said:

It sounds like this is a new development, as is dealing with your DH. I too wonder if it is related, and if it's possible that you might be getting small amounts of gluten in your diet, and that it could actually be DH. To me it seems strange that you would suddenly get folliculitis at around the same time that you are dealing with DH, but I'm sure that stranger coincidences have happened.

The big difference between the two seems to be that folliculitis would always be associated with a hair follicle. Perhaps you could have someone examine the blisters to see if this is the case, and to try to notice if they look more like DH blisters (usually tiny with clear heads). It also seems like DH would be more itchy than folliculitis, but I could be wrong about that.

Hi Scott, thanks for the reply. Just to clarify, I think I might have worded things a bit poorly in my original post. The bumps on my head that I'm discussing have been an issue for many years -- they definitely predate resolving the DH. For a while I thought resolving the DH might resolve this, but that clearly isn't the case. So what I was trying to say is that I went to the doctors and had both these bumps on my head, and the DH. The doctors didn't know what either was, and we tried to treat them but ended up resolving the DH first. Now I have these odd bumps the reoccur, and I'm hoping to fix that problem now.

I'd love to have a dermatologist look at these, but where I live it takes a year to get an appointment, and I haven't gotten much help out of that.

 

Scott Adams Grand Master

Thanks for the additional info on the timeline. It does still sounds like it is possible that the bumps on your head could be DH, but only a visit to a dermatologist could tell for sure, and if you are 100% gluten-free those should go away as well. I would just be sure that my diet is 100% GF, and if the bumps on your head don't go away after a couple of months it's probably safe to assume that they might be folliculitis or something else that a dermatologist would need to diagnose.

Let us know what you find out.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    2. - Scott Adams replied to wellthatsfun's topic in Gluten-Free Recipes & Cooking Tips
      1

      heaps of hope!

    3. - Scott Adams replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fruits & Veggies

    4. - Scott Adams replied to yellowstone's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Cold/flu or gluten poisoning?

    5. - Scott Adams replied to hjayne19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Screening

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,091
    • Most Online (within 30 mins)
      7,748

    Condon
    Newest Member
    Condon
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
    • Scott Adams
      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate or histamine intolerance. The instant burning, heart palpitations, and anxiety you describe are classic systemic reactions to food chemicals, not typical celiac reactions. It makes perfect sense that your body rejected these foods from birth; the gagging was likely a neurological reflex to a perceived toxin. Now that your gut has healed, you're feeling the inflammatory response internally instead. The path forward involves targeted elimination: try cooking fruits and vegetables (which often breaks down the problematic proteins/chemicals), focus on low-histamine and low-salicylate options (e.g., peeled pears, zucchini), and consider working with an allergist or dietitian specializing in food chemical intolerances. 
    • Scott Adams
      Your satiation is challenging and a common dilemma for those with celiac disease or non-celiac gluten sensitivity: distinguishing between a routine viral illness and a reaction to gluten exposure. The overlap in symptoms—fatigue, malaise, body aches, and general inflammation—makes it nearly impossible to tell them apart in the moment, especially with a hypersensitive system. This ambiguity is a significant source of anxiety. The key differentiator often lies in the symptom pattern and accompanying signs: gluten reactions frequently include distinct digestive upset (bloating, diarrhea), neurological symptoms like "brain fog," or a specific rash (dermatitis herpetiformis), and they persist without the respiratory symptoms (runny nose, sore throat) typical of a cold. Tracking your symptoms meticulously after any exposure and during illnesses can help identify your personal patterns. Ultimately, your experience underscores the reality that for a sensitive body, any immune stressor—be it gluten or a virus—can trigger a severe and similar inflammatory cascade, making vigilant management of your diet all the more critical. Have you had a blood panel done for celiac disease? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Your situation highlights a difficult but critical crossroads in celiac diagnosis. While your positive blood test (a high TTG-IgA of 66.6) and dramatic improvement on a gluten-free diet strongly point to celiac disease, the gastroenterologist is following the formal protocol which requires an endoscopy/biopsy for official confirmation. This confirmation is important for your lifelong medical record, can rule out other issues, and is often needed for family screening eligibility. The conflicting advice from your doctors creates understandable anxiety. The challenge, of course, is the "gluten challenge"—reintroducing gluten for 4-6 weeks to make the biopsy accurate. Since your symptoms resolved, this will likely make you feel unwell again. You must weigh the short-term hardship against the long-term certainty of a concrete diagnosis. A key discussion to have with your GI doctor is whether, given your clear serology and clinical response, would be getting a diagnosis without the biopsy.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.