Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

bumps on head - possibly a form of folliculitis?


celiacinrecovery

Recommended Posts

celiacinrecovery Apprentice

I've had my DH under control for a few months, after committing to a strict diet that includes no pre-packaged foods (even if they're certified gluten free). According to a scope, my villi look healthy. I'm feeling much better, and seem to be recovering, with a focus on eating well, getting back to exercising regularly, and getting healthy probiotics (supplements and homemade fermented foods).

The major issue I have now is recurring bumps on my scalp. These develop in places where I have hair (so not on my face). Sometimes they'll I'll have an inflamed hair follicle, suggesting folliculitis, but sometimes there's just little bumps. They can get a little sore, and are a nuisance when I go to shave my head (I have male pattern baldness and use the #1 clipper setting, rather than shaving to the skin).

A few observations:

  • It gets worse if I wear hats ... presumably the friction irritates the skin and causes them
  • For some reason if I let my hair grow a little longer it gets worse.
  • Washing my scalp in the morning and before bed helps keep it in check - I'm much more likely to get it if I don't  do this - but doesn't stop it completely.

I change my pillowcase each day, and avoid wearing hats whenever possible.

I'm trying to get a better understanding of what this may be, and whether it is related to my celiac. I do theorize that it is related, possibly due to the weakened immune system or gut flora.

Any insight would be appreciated. I've spoken to doctors about this in the past and didn't get much of anywhere. I started talking to them pre-celiac diagnosis, and then we put the focus on my DH. Now that that has been addressed I'd like to sort this one out.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

It sounds like this is a new development, as is dealing with your DH. I too wonder if it is related, and if it's possible that you might be getting small amounts of gluten in your diet, and that it could actually be DH. To me it seems strange that you would suddenly get folliculitis at around the same time that you are dealing with DH, but I'm sure that stranger coincidences have happened.

The big difference between the two seems to be that folliculitis would always be associated with a hair follicle. Perhaps you could have someone examine the blisters to see if this is the case, and to try to notice if they look more like DH blisters (usually tiny with clear heads). It also seems like DH would be more itchy than folliculitis, but I could be wrong about that.

celiacinrecovery Apprentice
1 hour ago, Scott Adams said:

It sounds like this is a new development, as is dealing with your DH. I too wonder if it is related, and if it's possible that you might be getting small amounts of gluten in your diet, and that it could actually be DH. To me it seems strange that you would suddenly get folliculitis at around the same time that you are dealing with DH, but I'm sure that stranger coincidences have happened.

The big difference between the two seems to be that folliculitis would always be associated with a hair follicle. Perhaps you could have someone examine the blisters to see if this is the case, and to try to notice if they look more like DH blisters (usually tiny with clear heads). It also seems like DH would be more itchy than folliculitis, but I could be wrong about that.

Hi Scott, thanks for the reply. Just to clarify, I think I might have worded things a bit poorly in my original post. The bumps on my head that I'm discussing have been an issue for many years -- they definitely predate resolving the DH. For a while I thought resolving the DH might resolve this, but that clearly isn't the case. So what I was trying to say is that I went to the doctors and had both these bumps on my head, and the DH. The doctors didn't know what either was, and we tried to treat them but ended up resolving the DH first. Now I have these odd bumps the reoccur, and I'm hoping to fix that problem now.

I'd love to have a dermatologist look at these, but where I live it takes a year to get an appointment, and I haven't gotten much help out of that.

 

Scott Adams Grand Master

Thanks for the additional info on the timeline. It does still sounds like it is possible that the bumps on your head could be DH, but only a visit to a dermatologist could tell for sure, and if you are 100% gluten-free those should go away as well. I would just be sure that my diet is 100% GF, and if the bumps on your head don't go away after a couple of months it's probably safe to assume that they might be folliculitis or something else that a dermatologist would need to diagnose.

Let us know what you find out.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,342
    • Most Online (within 30 mins)
      7,748

    Setb1210
    Newest Member
    Setb1210
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...