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Pre colonoscopy glutened...

Sarah25882

By Sarah25882
in Related Issues & Disorders

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Sarah25882 Rookie
Sarah25882
Posted

Hey everyone. Ive been gluten-free for 2years. But for 6months had really bad diarrhoea with rectal pains (sorry for the tmi ) I've been booked in for an emergency colonoscopy, endoscopy and gastroscopy but I think I've accidentally glutened myself over the Xmas hols (stupid aldi choc bar that didn't say it contained nor may contain on label! Separate note ive complained to aldi) 

What id like to know is will this effect my results. I already have major anxiety and I'm so upset with myself n keep thinking theyre gonna see the damage from coeliacs n just blow me off... 

Theyre looking at possible colotis/chrons/ulcerative colitis, I have coeliacs disease and ibs confirmed.

Thankyou for reading and responding (any info is greatly appreciated)xx

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trents Grand Master
trents
Posted

Celiac disease affects the small bowel right below the stomach. This is checked with an upper GI scoping ("endoscopy") rather than a colonoscopy. However, other bowel autoimmune diseases that attack the lower bowel are more common in people with Celiac disease.

Scott Adams Grand Master
Scott Adams
Posted

If you have been getting regular gluten contamination in the foods you've been eating then you may have flattened villi and other problems associated with celiac disease, many of which are brought on by malabsorption of nutrients. 

It sounds like you already know this, but if you've been diagnosed with celiac disease you need to be 100% gluten-free, otherwise your health is as risk of many issues that are associated with untreated CD.

Sarah25882 Rookie
Sarah25882
Posted
  • Author

Thankyou. Yes I've been extremely strict in diet. Its the 1 choc bar that made my stomach churn. I understand villi maybe damaged but the doctors won't dismiss me due to this will they?

trents Grand Master
trents
Posted
5 minutes ago, Sarah25882 said:

Thankyou. Yes I've been extremely strict in diet. Its the 1 choc bar that made my stomach churn. I understand villi maybe damaged but the doctors won't dismiss me due to this will they?

Not sure what you mean when you ask about doctors dismissing you. Are you asking if because you have confirmed celiac disease that they will not take the possibility of other bowel diseases seriously and so not do the other tests?

Sarah25882 Rookie
Sarah25882
Posted
  • Author
2 hours ago, trents said:

Not sure what you mean when you ask about doctors dismissing you. Are you asking if because you have confirmed celiac disease that they will not take the possibility of other bowel diseases seriously and so not do the other tests?

Sort of. I fear that if I have glutened myself accidentally, despite being so strict, that they will see that (damage from coeliacs) and not look further. Im asking if anyone has had anything similar, if the docs will keep looking

docaz Collaborator
docaz
Posted
3 hours ago, Sarah25882 said:

Sort of. I fear that if I have glutened myself accidentally, despite being so strict, that they will see that (damage from coeliacs) and not look further. Im asking if anyone has had anything similar, if the docs will keep looking

This is not something you have to be concerned about. A one time gluten accident is not enough to cause flattening of the villi in the mucosa that is detectable on the endoscopy (and that's why prior to an endoscopy to diagnose celiac disease, gluten has to be ingested on a regular basis for multiple weeks). 

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Scott Adams Grand Master
Scott Adams
Posted

If you have celiac disease and have been on a gluten-free diet for a while, probably at least a year, possibly two, and you still have ongoing gastro issues you should definitely consult with your doctor about it. I don't know why they would not want to pursue other possible issues. Keep in mind that during your recovery time you should also pursue other causes on your own, usually by keeping a food diary and eliminating other foods like corn, grains, dairy, eggs, soy, etc. The gluten-free diet alone may not resolve all of your issues.

Sarah25882 Rookie
Sarah25882
Posted
  • Author
15 hours ago, Scott Adams said:

If you have celiac disease and have been on a gluten-free diet for a while, probably at least a year, possibly two, and you still have ongoing gastro issues you should definitely consult with your doctor about it. I don't know why they would not want to pursue other possible issues. Keep in mind that during your recovery time you should also pursue other causes on your own, usually by keeping a food diary and eliminating other foods like corn, grains, dairy, eggs, soy, etc. The gluten-free diet alone may not resolve all of your issues.

I have done this, ive had to eliminate oats, honey and a few other things by trial and error. For the past year I've been ok and strict. Thankyou. I just am so anxious about it and endoscopy suite haven't been open due to Xmas and new year so I appreciate the response 

Sarah25882 Rookie
Sarah25882
Posted
  • Author
15 hours ago, docaz said:

This is not something you have to be concerned about. A one time gluten accident is not enough to cause flattening of the villi in the mucosa that is detectable on the endoscopy (and that's why prior to an endoscopy to diagnose celiac disease, gluten has to be ingested on a regular basis for multiple weeks). 

Thankyou. It has been worrying me that they may see the damage and not look for anything else. I appreciate the response as the endoscopy suite has been shut due to Christmas and new year 

GodsGal Community Regular
GodsGal
Posted
On 12/31/2020 at 7:08 AM, Sarah25882 said:

Hey everyone. Ive been gluten-free for 2years. But for 6months had really bad diarrhoea with rectal pains (sorry for the tmi ) I've been booked in for an emergency colonoscopy, endoscopy and gastroscopy but I think I've accidentally glutened myself over the Xmas hols (stupid aldi choc bar that didn't say it contained nor may contain on label! Separate note ive complained to aldi) 

What id like to know is will this effect my results. I already have major anxiety and I'm so upset with myself n keep thinking theyre gonna see the damage from coeliacs n just blow me off... 

Theyre looking at possible colotis/chrons/ulcerative colitis, I have coeliacs disease and ibs confirmed.

Thankyou for reading and responding (any info is greatly appreciated)xx

Hi Sarah!

Getting glutened is not fun. I am not a medical professional, just a fellow celiac disease sister. So, I don't know the answer to your question. I would suggest that you get in touch with your doctor and ask them. They should know how it may affect your test results. 

In the meantime, give yourself a little grace. 😊

Sarah25882 Rookie
Sarah25882
Posted
  • Author

Thankyou. It just makes me so worried. I know i may just be paranoid but I'm going to try ringing again tomorrow and will be telling all staff there maybe signs of damage to the villi just they all know 

GodsGal Community Regular
GodsGal
Posted

I totally get it! I would probably have the same questions and worries. And, I would probably also have a hard being gracious with myself. 😉 

Sounds like you have a good plan! 

Sarah25882 Rookie
Sarah25882
Posted
  • Author

I certainly hope so. Im doing the prep today and I'm in hospital tomorrow for it all. Glad I rang them as all paperwork states northern general in Sheffield and its not its at hallamshire in Sheffield lol 

So grateful to have somewhere I can calm my anxiety as I'm quite alone. Ive explained things to the 2 friends I have and they just don't get it, they think its just a day or two on loo n id be right as rain after....fed up trying to explain its my life!

Thankyou ever so much xx

Scott Adams Grand Master
Scott Adams
Posted

Good luck, let us know how things turn out!

GodsGal Community Regular
GodsGal
Posted
7 hours ago, Sarah25882 said:

I certainly hope so. Im doing the prep today and I'm in hospital tomorrow for it all. Glad I rang them as all paperwork states northern general in Sheffield and its not its at hallamshire in Sheffield lol 

So grateful to have somewhere I can calm my anxiety as I'm quite alone. Ive explained things to the 2 friends I have and they just don't get it, they think its just a day or two on loo n id be right as rain after....fed up trying to explain its my life!

Thankyou ever so much xx

 Iam glad to be a part of your community, even from the USA! 😊

I think that celiac disease is not yet very well known in society. So, people don't have any concept or point of reference to help them understand. Sometimes celiac disease is not that easy for other people to see. And, there's no good word picture analogy. Keep us posted!

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      how much gluten do I need to eat before blood tests?

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