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Symptoms of celiac disease


penguin11

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penguin11 Explorer

Dear all,

For the past 15 years of my life, I have been feeling more or less out of shape. This include fatigue (not the type you get after strenuous physical activity), feelings of unreality, huge concentration problems to the point that I could not remember things I recently read and simple instructions, together with other things such as excessive worrying and unexplained feelings of sadness, even though I am quite optimistic of nature. My brother breezed through school, and got recommended applying for a research position at a university, where as I ad to put in a lot of effort to barely survive in my studies. I felt I had brakes on when studying, but could not find the cause. Suddenly I would be extremely focused, but this happened only a few times a year. I usually found the subjects interesting (mathematics, chemistry, physics, etc.). 

I have always been bloated, and there were occasions in primary school were I had to throw up, and my teacher told my mother that it looked like I had stomach problems.

Fast forward to about one year ago, the bloating had developed into stomach pain, and I had troubles breathing to a much bigger extent than before (I have had trouble breathing for the past 10 years). I developed mouth sores, and I was not sleeping well, which I haven`t for the past 14 years. 

Did anyone experience these symptoms prior to getting diagnosed with celiac disease?


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ravenwoodglass Mentor

Do ask your doctor to test you. your symptoms do sound like you could be celiac. it is VERY important that you no go gluten free or gluten light before celiac testing is completed. I hope you get some answers and are feeling better soon.

penguin11 Explorer

Thank you!

Scott Adams Grand Master

Only now are studies being done linking cognitive issues with celiac disease, but those of us who've been on this forum for years already knew this. Here is a recent article we did:

and on Monday will be one on a Brain Fog study.

Please let us know what you find!

penguin11 Explorer

Thanks! I have to admit I have excluded gluten for a couple of months already. I almost feel normal. The breathing issues are gone, unless I consume gluten-free bread, which I think is weird, so I eat two meals a day: dinner (left-overs from yesterday) and dinner. Some minor stomach pains, but no where near how it was prior to excluding gluten. It is worse when I consume sugar or coffee. 

Scott Adams Grand Master

If you are outside the USA, for example in Europe, some "gluten-free" breads are made using a very low gluten wheat starch (under 20ppm). You may want to see if this is the case, and if so, change that.

knitty kitty Grand Master

Penguin11, 

I found a couple of articles for you about mouth sores having a connection to vitamin deficiencies which can occur with Celiac Disease.

 

And...

"Recurrent aphthous ulceration: vitamin B1, B2 and B6 status and response to replacement therapy"

https://pubmed.ncbi.nlm.nih.gov/1941656/

 

And, yes, I have had symptoms like you describe.  The breathing problems you experience, especially after eating gluten free bread, could be an indication of vitamin B1, thiamine, insufficiency.  It's called sailor's asthma.  Please ask your doctor about taking a good B Complex supplement and a vitamin/mineral supplement.

Hope this helps!

 

 


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penguin11 Explorer

Thank you so much knitty kitty!

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    • knitty kitty
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    • Jane02
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    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
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