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Symptoms of celiac disease


penguin11

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penguin11 Explorer

Dear all,

For the past 15 years of my life, I have been feeling more or less out of shape. This include fatigue (not the type you get after strenuous physical activity), feelings of unreality, huge concentration problems to the point that I could not remember things I recently read and simple instructions, together with other things such as excessive worrying and unexplained feelings of sadness, even though I am quite optimistic of nature. My brother breezed through school, and got recommended applying for a research position at a university, where as I ad to put in a lot of effort to barely survive in my studies. I felt I had brakes on when studying, but could not find the cause. Suddenly I would be extremely focused, but this happened only a few times a year. I usually found the subjects interesting (mathematics, chemistry, physics, etc.). 

I have always been bloated, and there were occasions in primary school were I had to throw up, and my teacher told my mother that it looked like I had stomach problems.

Fast forward to about one year ago, the bloating had developed into stomach pain, and I had troubles breathing to a much bigger extent than before (I have had trouble breathing for the past 10 years). I developed mouth sores, and I was not sleeping well, which I haven`t for the past 14 years. 

Did anyone experience these symptoms prior to getting diagnosed with celiac disease?


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ravenwoodglass Mentor

Do ask your doctor to test you. your symptoms do sound like you could be celiac. it is VERY important that you no go gluten free or gluten light before celiac testing is completed. I hope you get some answers and are feeling better soon.

penguin11 Explorer

Thank you!

Scott Adams Grand Master

Only now are studies being done linking cognitive issues with celiac disease, but those of us who've been on this forum for years already knew this. Here is a recent article we did:

and on Monday will be one on a Brain Fog study.

Please let us know what you find!

penguin11 Explorer

Thanks! I have to admit I have excluded gluten for a couple of months already. I almost feel normal. The breathing issues are gone, unless I consume gluten-free bread, which I think is weird, so I eat two meals a day: dinner (left-overs from yesterday) and dinner. Some minor stomach pains, but no where near how it was prior to excluding gluten. It is worse when I consume sugar or coffee. 

Scott Adams Grand Master

If you are outside the USA, for example in Europe, some "gluten-free" breads are made using a very low gluten wheat starch (under 20ppm). You may want to see if this is the case, and if so, change that.

knitty kitty Grand Master

Penguin11, 

I found a couple of articles for you about mouth sores having a connection to vitamin deficiencies which can occur with Celiac Disease.

 

And...

"Recurrent aphthous ulceration: vitamin B1, B2 and B6 status and response to replacement therapy"

https://pubmed.ncbi.nlm.nih.gov/1941656/

 

And, yes, I have had symptoms like you describe.  The breathing problems you experience, especially after eating gluten free bread, could be an indication of vitamin B1, thiamine, insufficiency.  It's called sailor's asthma.  Please ask your doctor about taking a good B Complex supplement and a vitamin/mineral supplement.

Hope this helps!

 

 


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penguin11 Explorer

Thank you so much knitty kitty!

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    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
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