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Possible Accidental Gluten Ingestion ?

Jilli
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Jilli Rookie
Jilli
Posted

Hi,  I am 49 years old and 9 months ago, I was given a confirmed diagnosis of Celiac disease.  I have been gluten free and vigilant ever since.  However, I have only marginally improved in terms of stomach issues.   And the reason I'm writing this is because I think I accidentally ingested gluten 4 times in the last 7 weeks, which resulted in horrific pain in my abdomen each time. But this last time, I can't find anything I ate that might remotely have gluten.  So I'm wondering if there's another trigger.  And I'm wondering if there is a medication, either prescription or over the counter, that could counteract an accident gluten ingestion (AGI?), if that is, in fact, what's going on with me.  My husband wonders if my stomach issues outside of the celiac, are related to dairy, coffee, diet sodas or tea.  Maybe he's right but having to give up gluten is tough enough--just thinking about giving up anything else makes me heart-broken and disillusioned.  If anyone has advice, thoughts or info, I'd really appreciate it.  Thank you!

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Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum!

I'm sorry to hear about your ongoing issues.

The article below may be helpful to you if you believe that you're not getting gluten in your diet, which is the first thing to look at. Yes, medications can contain undeclared gluten, so it's important to look at anything you are ingesting.

 

trents Grand Master
trents
Posted

Many celiacs are also sensitive to CMP (cow's milk protein) and oats. About 10% of celiacs react to oat protein the way they do gluten in wheat, barley and rye and CMP can also cause inflammation of the small bowel lining that mimics gluten.

Certain medications can produce inflammation that damages the villi of the small bowel like gluten does. Among them are some blood pressure meds on the "sartin" family, NSAIDS and other anti-inflammatory medications and there is some evidence that PPIs can do it too.

Having said that, in any given individual, there can be other foods that generate gut inflammation. I have only listed the most common. Have you tried a food diary yet to check for patterns?

Jilli Rookie
Jilli
Posted
  • Author

I need to try a food diary--my husband tells me that all the time.  Thanks for the insight!

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    • SB04
      False tTG3 Test?

      By SB04 · Posted

      Thanks! I don't think it was a total IGA test, it was called "Array 3X - Wheat/Gluten Proteome Reactivity & Autoimmunity" and it tested a bunch of wheat proteins and transglutaminase for both IgG and IGAs.  
    • trents
      False tTG3 Test?

      By trents · Posted

      Welcome to the forum, @SB04! Let's cut to the chase. Did they run a tTG-IGA and a total IGA? Total IGA goes by many names but it checks for IGA deficiency. If you are IGA deficient, IGA test scores will be artificially low and it can result in false negatives. The tTG-IGA is the centerpiece of celiac disease antibody testing.  Dermatitis herpetiformis is the epidermal expression of celiac disease. Most who have dermatitis herpetiformis also have damage happening to the small bowel lining as well but a small percentage do not. But dermatitis herpetiformis has a characteristic appearance to it, with the rash bumps having pustules in the center. It is also accompanied by a very uncomfortable itch. From what you describe, your rash doesn't sound like dermatitis herpetiformis. The IGG antibody tests are not quite as specific for celiac disease as are the IGA tests but they aren't terrible either. This may be helpful:   
    • SB04
      False tTG3 Test?

      By SB04 · Posted

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