Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

DH?

Caterina0909

By Caterina0909
in Dermatitis Herpetiformis

 Share

Recommended Posts

Caterina0909 Apprentice
Caterina0909
Posted

I have a widespread rash all over my torso and neck - pics below. It is itchy but not bothering me. Been like this since Wednesday. I also have quite a few celiac symptoms - any thoughts? 
 

 

A36F6259-C498-4B3F-A0F5-6385BE7897D3.webp

94FD7D6E-CE1E-408C-B8A9-6A34F64AD057.webp

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GodsGal Community Regular
GodsGal
Posted
On 9/18/2021 at 1:50 PM, Caterina0909 said:

I have a widespread rash all over my torso and neck - pics below. It is itchy but not bothering me. Been like this since Wednesday. I also have quite a few celiac symptoms - any thoughts? 
 

 

A36F6259-C498-4B3F-A0F5-6385BE7897D3.webp

94FD7D6E-CE1E-408C-B8A9-6A34F64AD057.webp

Hi, 

You said that you have celiac symptoms. Have you been tested for celiac? It could be DH, but it could also be something else. 

Caterina0909 Apprentice
Caterina0909
Posted
  • Author

Hello

 

Yes I have been tested but serology came back negative. I am going for an endoscopy and MRI of small bowel in the coming weeks.

 

My doctor thinks this could be pityriasis rosea, which looking at photos is entirely likely, but I just want to explore other options too given my stomach issues and malabsoprtion.

 

Thanks for your reply.

 

C

Scott Adams Grand Master
Scott Adams
Posted

To me it looks very much like DH, and if you have symptoms it still could be. You should ask them to biopsy it for DH.

Also, do you have your celiac disease blood test results to share? I'm curious if you had any elevated levels of antibodies, which could put you in a gray zone. Also, were you eating gluten daily for 6-8 weeks leading up to your blood test? If not, your results could be false negative.

Caterina0909 Apprentice
Caterina0909
Posted
  • Author
3 minutes ago, Scott Adams said:

To me it looks very much like DH, and if you have symptoms it still could be. You should ask them to biopsy it for DH.

Also, do you have your celiac disease blood test results to share? I'm curious if you had any elevated levels of antibodies, which could put you in a gray zone. Also, were you eating gluten daily for 6-8 weeks leading up to your blood test? If not, your results could be false negative.

Hi Scott 

 

Thanks for your reply. I don’t have any results - was just told that it was negative for celiac… I assumed the actual values didn’t mean anything in that case but it would be good to know if any values were slightly raised - am I right? 
 

My gp now thinks this is gluttate psoriasis. It’s not itchy (well, mildly itchy at times) - but not what I imagine DH to be after reading up on it. 
 

C

Scott Adams Grand Master
Scott Adams
Posted

It would not hurt to ask for the actual results and the reference ranges, as recent studies do indicated that elevated gluten antibodies are not something to ignore, which is what many doctors do. Not to create a clash with your doctor, but why not rule out DH by doing a biopsy for it?

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,188
    • Most Online (within 30 mins)
      7,748
    terencie
    Newest Member
    terencie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New to gluten free living, in5ro and small question

      By trents · Posted

      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
    • AllyJR
      Gluten free parakeet food

      By AllyJR · Posted

      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      New to gluten free living, in5ro and small question

      By boy-wonder · Posted

      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten intolerant,  I looked it up and had every one of 8 or so symptoms listed. Bloating,  weight gain,  headaches, brain fog,  constipation, etc etc. I took the decision to give going gluten free a try. Within 1 week I had lost 4 lb, now 7 weeks in I've lost 13 lb. I feel much better in general,  the bloating has severely subsided, it used to keep me awake at night as I felt so uncomfortable.  So pretty much a success story, as everyone here knows,  going gluten free isn't always easy, and eating out can be awkward,  but I consider myself lucky that I appear to have an intolerance rather than an allergy or being celiac.  I can deal with most of the gluten free options at the supermarket but, the big one for me is bread, I love bread, and the gluten free options I've tried are pretty poor. I was at a posh black tie event last night and chose all the food options I thought would be gluten free,  however,  there was bread on the table and I couldn't resist it, I had I small piece of bread,  god it was good, I wanted more but I resisted. Today I feel a bit dodgy, my stomach is churning, and I generally feel a bit urgh.  So here's the question, is that really down to 1 small piece of bread or is it coincidence?  I'd be interested in hearing how other people have reacted to a similar situation,  as I was considering having a day off every now and then and enjoying some lovely fresh bread.
    • ValerieC
      Guide to colleges for celiac disease

      By ValerieC · Posted

      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
    • thejayland10
      TTG IgA and IGA elevated mildy

      By thejayland10 · Posted

      thank you, i have been doing that the last few weeks and will continue to do so. I had not had my ttg iga checked since I was diagnosed 14 yrs ago so I am not sure if they ever dropped below the 15-20 range.    all my other labs are completely normal but I am concerned that this may be signs of refractor celiac or something else since I'm so careful with gluten-free diet 
×
×
  • Create New...