Help needed

[Mazzing]

Hi female 56 living in UK. Think my symptoms started 6 years ago. 

Numbness in my hands at night-time. 6 years ago doc says carpal tunnel

Feet start to hurt getting up in the morning 3 years ago doc says use inner soles

Teeth started to just crumble 3 years ago dentist says it happens

Tummy cramps/pain doc says IBS 2 years ago had CT scan nothing showing up. 

Tingling random in all parts of the body 2 years ago doc says stress

Buzzing in head permanent doc says tinnitus.

Constipation 2 years now

Breast pain in one breast!!! 6 months had scan nothing shown on it.

Back pain 3 months.

Feeling lightheaded 3 months

Felling sick 3 months

Little more shattered than I use to be put down to age

Do you good people think I am celiac?  So fed up feeling this way now.  

 

Thank you for responding

[captaincrab55]

Hi Mazzing,   Sorry to hear you are suffering with many issues.    Were you ever tested for Celiac?   Did you ever have a nerve conduction test on your hands or feet?

[Mazzing]

Hi thank you for replying. Had test on hands but doc says I am a odd ball!!! as it's not defo carpal tunnel. Been seeing the same specialist every year for 6 years and he says the same.  Feet I saw a chiropractor and she says use in soles but that does not help. 

[captaincrab55]

  On 12/3/2021 at 1:38 PM, Mazzing said:

Hi thank you for replying. Had test on hands but doc says I am a odd ball!!! as it's not defo carpal tunnel. Been seeing the same specialist every year for 6 years and he says the same.  Feet I saw a chiropractor and she says use in soles but that does not help. 

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I had some neck issues causing my hand and finger issues, before carpal tunnel issues.    For years it felt like I had all thumbs in the mornings, before being diagnosed with Celiac

 

[trents]

Mazzing, welcome to the forum!

There are specific tests designed to detect celiac disease.

The first stage of testing involves a blood draw and laboratory analysis to look for the antibodies produced by celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ . Since many of your symptoms are common to those with celiac disease you could go armed with this information and ask your physician to order antibody tests. The centerpiece of the celiac antibody panel is the tTG-IGA test which combines good sensitivity with good specificity. In the UK if your antibody numbers are 10x normal or higher, doctors will usually forego the second stage of testing which is an endoscopy/biopsy to microscopically check for damage to the villi that line the small bowel.

If you choose to pursue testing, please realize you must be eating regular amounts of gluten beforehand. Many make the mistake of beginning the gluten free diet before testing is complete and the healing this allows can often invalidate the tests.

[Mazzing]

Thank you will go and see docs next week. Hopefully get some answers

[Kate333]

Hi Mazzing.  Take Trents' advice.  It is the only way to rule out (or in) celiac disease for sure.  Hopefully, you don't have celiac disease.  If you don't, then "don't" be so quick to dismiss the docs who spoke of stress/anxiety.  Esp. chronic, severe anx/depression can present in MANY unexpected physical symptoms--including most of those you listed.  At least that has been the case with me.  Check out the Anxietycentre.com website which describes the many physical symptoms of anxeity/depression in great detail and tips for how to reduce the.   The last 2 years have been unusually stressful for so many of us, and there is no shame is asking your GP for a mental health referral.  

Best of luck to you on your healing journey!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

[trents]

I would also add to what Kate333 said and point out that prolonged emotional distress can be the trigger which activates latent celiac genes.

[Mazzing]

  On 12/4/2021 at 5:07 AM, Kate333 said:

Hi Mazzing.  Take Trents' advice.  It is the only way to rule out (or in) celiac disease for sure.  Hopefully, you don't have celiac disease.  If you don't, then "don't" be so quick to dismiss the docs who spoke of stress/anxiety.  Esp. chronic, severe anx/depression can present in MANY unexpected physical symptoms--including most of those you listed.  At least that has been the case with me.  Check out the Anxietycentre.com website which describes the many physical symptoms of anxeity/depression in great detail and tips for how to reduce the.   The last 2 years have been unusually stressful for so many of us, and there is no shame is asking your GP for a mental health referral.  

Best of luck to you on your healing journey!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Thank you so much I will check out the site 

[Mazzing]

  On 12/4/2021 at 5:23 AM, trents said:

I would also add to what Kate333 said and point out that prolonged emotional distress can be the trigger which activates latent celiac genes.

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Hi yes I have been stressed most of the year. Heart op in march did not help.  Blood test done now the wait for results. Thank you all for replying.