Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

NAC (N-Acetyl Cisteine) and Zinc Gluconate Inflammation relief ? Me +!


Rick Sanchez

Recommended Posts

Rick Sanchez Explorer

Is anyone else taking, (or taken), NAC? If yes what are your feelings and results?

Mine have been great, I have gotten better, but now after over six years, consider myself feeling well for the first time.  Could it be working on a correlating illness? Absolutely.  Work great for everyone?  I have no clue.  As with anything, do your research and ask. Below is a disorganized, probably too detailed, winding account.  Maybe someone can glean something worthwhile from it.  The virtual elimination of brain fog, and sinking feeling when stressed is a big benefit for myself.   

 

     I began taking both back in June (ish) of 2021, NAC - one 600mg daily, and Zinc Gluconate - one 50mg daily.  Something wonderful happened.  I was already taking Vitamin D, daily, and a trace mineral, that would get this flagged, probably , and have continued with them.  I did not begin taking them for Celiac related issues, rather for a certain "other reason of the times", let's not go there.  It was not immediate, I'd say over a week, maybe two.  General inflammation, real physical depression, and certain ideations disappeared.  I had two courses of Iver.... concurrent with beginning the NAC and Zinc, so I was unsure of what the for lack of a better word, "the miracle" was.   I got "glutened" twice in the months between, both times, feeling it come on I was not even sure gluten was the culprit, as it did not feel as bad in ANY aspect as on ALL previous "glutenings" in the 6+ years since going gluten-free.  Nor did the lingering inflammation, brain fog, and general week-long crappy feeling persist.  I am very late diagnosed, at 35, I was not just at the edge of the cliff, but grasping a thin root a couple feet from the top.  It's been a slow, but very positive outcome build back, I have gotten better this whole time, even through the two-month-gluten-free-stage and my joints not being so inflamed every single one of them popping, I got better.  Until a few months ago, at no point would I have considered myself well, just better. 

     Fast forward to about two weeks ago, through some type of foolish complacency, I am only human, I stopped taking them religiously.  Three days ago, I got "glutened", the sinking unwell feeling slipped in, progressed right into someone taking a hot crowbar and trying to remove my over-pressured noggin from my spine, the balled up knot somewhere in my bowels, joints aching, and old injuries reminding right where they were.  Went straight to the Ibuprofen, Tylenol, and a Benadryl, (my personal go-to cocktail, I am not advocating it), blanket over the head hoping to fart, poop, or at least pass out.  Between that night and the following A.M. the pipes began to clear, but the "Brain Fog" started creeping in, and the joints were aching.  I get extremely hungry after a "glutening", I mean "mass quantities" needed.  Whether it is my body craving something it needs, or just needing something to push through, or stressed and wanting comfort calories? 

      Bringing us to my second genius move as of late, blaming it on some corn chips, I jump right into a pan of my homemade meat balls from the day before.  I use generic gluten-free Rice "Crispies" and gluten-free Corn Chex to make a simulation of bread crumbs, and some meat balls that would make my Italian ancestors proud.  Within the next hour, right back to miserable, I get the go-to combo, and the Tylenol is empty, I go to the "Dr. drawer" and see the NAC and Zync while looking for a backstocked tylenol, took them along with the go-to.  Within two hours, the tension eased up, both joints and bowels, not gone, but not getting worse.  Sometime that evening the pipes began to clear on their own.  Now this is the "miracle", please forgive the graphic details, but the background and stage is necessary.  Through my early twenties, undiagnosed, my body was still evidently well enough to try to expel gluten?  After a night of Budweiser, projectile diarrhea would probably be accurate.  Somewhere around thirty, things seemed to go opposite, constant constipation with, diarrhea flowing around "marbles" and the marbles staying.  Even after going gluten-free, pretty regular normally but things wouldn't expel when "glutened",  I have a previous times, in bad cases, flushed with Epsom salt, orally, and a lot of water. Not pleasant, but better than a prolonged reaction.  Sometime during the night after the second "glutening" things flushed.  Now there are a whole lot of conditions that i would love to make me feel young again.  This was not on the list, but I'll take it.  I doubled down on the NAC, still well within recommended dosages.  On day one after, and I feel like maybe day four without it.

 

**The cause of this "glutening", I think:  The same brand as always generic rice "crispies", noticed after the fact, no longer say gluten-free.   They do not say they contain barley syrup, they do not have processed on wheat equipment, but I will not be eating anymore of that brand.  Perhaps it was "supply chain shortages", or a fluke?  Either way, I should have looked better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Thanks for sharing, as I've not heard of this amino acid before. It looks like some people with dry eye or lung issues take it:

https://www.webmd.com/vitamins/ai/ingredientmono-1018/n-acetyl-cysteine-nac

It's interesting that it's helped your symptoms, and hopefully others will chime in here about their experiences with it.

Rick Sanchez Explorer

Thanks, and your welcome, I hope this helps someone, or many if it works widely.   I went on a whole ramble, but the point I should have emphasized strongly was that I had no idea of it's use for Celiac's or other accompanying illnesses.  I was talking with a buddy on the phone that also has an autoimmune disease, early MS, and it came up.  A quick DuckDuckGo search brought up several people saying the exact same thing as what I was telling him earlier. 

  • 2 years later...
Kimkat11230 Newbie

I used to take NAC very often for my lungs since I had my first covid. I did aware that NAC reduce my brain fog symptoms after my accidental gluten attack and also help me to regain my normal brain function few days after attack. I love it as it helped me a lot.

  • 2 months later...
Celiacmanbill Explorer

NAC is great but I have a problem smoking more when I use it since my lungs feel better than I make them feel worse but it does help my stomach and everything else helps me feel homeostasis

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,652
    • Most Online (within 30 mins)
      7,748

    Bama
    Newest Member
    Bama
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hi, @Zuma888, Hashimoto's commonly occurs with Celiac Disease.  Those HLA genes code for other autoimmune diseases along with Celiac.  Hashimoto's and Celiac overlap.  People with Hashimoto's produce anti gluten antibodies, so a gluten free diet is definitely a must.  It may be safe to assume you've got Celiac Disease as well.   People with Hashimoto's often have deficiencies in Vitamin C and Thiamine.  Vitamin deficiencies are common in Celiac Disease.  A deficiency in Thiamine can manifest as Gastrointestinal Beriberi with digestive upsets and changes in bowel habits.   Your burning sensation and extreme fatigue for days after working out may be due to a lack of Thiamine and B vitamins.  If you don't have sufficient Thiamine, lactic acid can build up in muscles causing that burning sensation.  Anybody remember Jane Fonda's workouts?  Her catch phrase was "Feel the burn" meaning work out so hard, lactic acid builds up causing the burning sensation.  Thiamine and the B vitamins are needed to clear that lactic acid and repair muscle damage. Supplementing with a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, and magnesium would be beneficial to help you feel better.  Blood tests for vitamin deficiencies are inaccurate.  Take Thiamine and B vitamins, then look for health improvements.  If not needed or absorbed, excess B vitamins are easily excreted in urine.  
    • Rejoicephd
      Thanks so much.  🙏  I see they have them on Amazon. I'm all over it.  I'll let you know how it goes. 
    • knitty kitty
      @Rejoicephd, So glad you checked your multivitamin! I like Life Extension brand.  Their BioActive Complete B Complex has active forms of the B vitamins.  Note that one serving is two capsules, so you can take one capsule at each of two meals, boosting opportunity for absorption.   Life Extension also makes Benfotiamine (100 mg).  Take one at each of two meals in addition to the B Complex.  Don't take thiamine and B vitamins close to bedtime, you may be too energized to sleep.   I like Life Extension's Neuro Mag, a form of magnesium that can get into the brain easily, which helps immensely with improving headaches and muscle tension in the neck.   I'm so glad you're enjoying the forum!  
    • Jessica H
      Hi trents, just an update to my post, I had my follow up with my gastroenterologist. Scheduled my endoscopy for July 17th and got my biopsy results back July 28th. I have my official diagnosis now and I do in fact have Celiac disease. I'm slowly starting to switch my diet over to completely gluten free. My goal is to be completely gluten free after Christmas this year. I know I should be stopping completely now, but I am have a really hard time with change so my doctor told me I could do this gradually if it was easier for me. Now I know though and can make myself better with simple steps, no medication and have peace of mind knowing what I have is not the end of the world. Thanks again for your support. I've learned a lot over the last couple of months.
    • Rejoicephd
      @knitty kitty thank you for this suggestion.  Yes definitely.  Actually, since you brought it up, I just looked to see what amount of B vitamins my multi-vitamin had in it. I just realized that not only am I taking the version of thiamine that you mentioned doesn't absorb well, but also that I inadvertently reduced the amount of thiamine that I'm taking daily over time.  I'm just now looking at the bottles for the last three multi-vitamins that I was taking (including the current one I'm taking now).  I started with thiamine mononitrate at 25mg but that turned out not to be a gluten-free multivitamin, so then I switched to a gluten-free multivitamin with 1.1mg thiamine mononitrate, and then when my GI doc advised me to switch to an independent iron pill, I got a new multi-vitamin gummy that lacked iron. Now I'm realizing that this gummy only has 0.14mg thiamine mononitrate.  So not only are these not the right kind of thiamine but they are waaaay low.  Probably going on a gummy is a bad idea anyway... I will look into a B complex and if you have any suggestions of a specific one that worked for you, I would gladly take the suggestion!  Thanks so much.  this is such an awesome forum!!!
×
×
  • Create New...