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What Blood Tests Have to be Positive or Elevated to be Celiac?

Ginger38
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Ginger38 Rising Star
Ginger38
Posted

Are there certain blood tests that have to be elevated or positive in order to have celiac? Can you have one antibody test that’s positive and everything else be negative and still be celiac? I’m very frustrated with my doc right now and trying to figure things out for myself. 

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frieze Community Regular
frieze
Posted
  On 1/29/2022 at 12:44 AM, Ginger38 said:

Are there certain blood tests that have to be elevated or positive in order to have celiac? Can you have one antibody test that’s positive and everything else be negative and still be celiac? I’m very frustrated with my doc right now and trying to figure things out for myself. 

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If you have results. Post them, with ranges

Ginger38 Rising Star
Ginger38
Posted
  • Author
  On 1/29/2022 at 8:54 PM, frieze said:

If you have results. Post them, with ranges

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Everything was negative except for my Ttg-IGA which is a weak positive. I should mention I have not been eating gluten 

RMJ Mentor
RMJ
Posted

Yes, it is possible to have only one antibody test positive and still have celiac disease.

If someone with celiac disease stops eating gluten, the antibody levels typically come down.  You might have had more/higher positives if you had been eating the recommended amount of gluten prior to testing.

Scott Adams Grand Master
Scott Adams
Posted

A positive Ttg-IGA test, even a weak one, still would indicated celiac disease, as this test is very specific for it.

Ginger38 Rising Star
Ginger38
Posted
  • Author
  On 1/29/2022 at 10:19 PM, RMJ said:

Yes, it is possible to have only one antibody test positive and still have celiac disease.

If someone with celiac disease stops eating gluten, the antibody levels typically come down.  You might have had more/higher positives if you had been eating the recommended amount of gluten prior to testing.

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Thank you!! 

Ginger38 Rising Star
Ginger38
Posted
  • Author
  On 2/1/2022 at 10:16 PM, Scott Adams said:

A positive Ttg-IGA test, even a weak one, still would indicated celiac disease, as this test is very specific for it.

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Thank you!!! This is the most helpful straightforward information that I needed to read. I'm tired of getting the run around with doctors. I believe I was misdiagnosed 6 years ago but getting anyone to help me has been a joke!! I've had to research and doctor myself somewhat. I asked for the labs again and the doc didn't even want to order them , thankfully she did, but it was all such a hassle. Then my TTG IGA was positive just like  before when I was told no way I had celiac eat whatever -  so now she's like oh that was positive so you need to go to a gastroenterologist.... But why???  I really don't want to gluten myself and get sick in order to get more testing done 

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Scott Adams Grand Master
Scott Adams
Posted

If a formal diagnosis will help you stay on a gluten-free diet for life, then it would be worth doing it, but it could also mean higher private health and life insurance premiums.

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