Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac's No period Infertilty

Ribbygirl6

By Ribbygirl6
in Related Issues & Disorders

 Share

Recommended Posts

Ribbygirl6 Newbie
Ribbygirl6
Posted

I was diagnosed with celiacs about 6 months ago and have been on a gluten free diet since then. I have been trying to conceive for 2 years now, but I pretty much have stopped getting periods. I have had regular periods my whole life up until about 2 years ago. My cycles just got longer and longer. I've had to take provera after a few 100 day cycles. I did get a period right after starting a gluten free diet, so I thought things were getting better, but after a couple 45 day cycles, I'm back to 100 and 75 day cycles.  My OBGYN did some blood tests (after a year of not really listening to me that something was wrong) and some of my hormones were in the menopause range. My estrogen was also low. I am only 35! She referred me to a fertility specialist, but I wondered if anyone has had experience similar to this? Were you actually in menopause? Did your periods ever come back? Were you able to conceive naturally or via IVF? Thanks in advance for sharing your experiences.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


knitty kitty Grand Master
knitty kitty
Posted

@Ribbygirl6,

I had menstrual irregularities before my Celiac diagnosis.  I believe that being deficient in Vitamin D played a BIG part.  

Vitamin D deficiency affects your hormone levels.  You must get your Vitamin D levels up by supplementing.  Optimal level is above 75 nmol/l.  

Here's more information....

"Association between serum 25-hydroxy vitamin D level and menstrual cycle length and regularity: A cross-sectional observational study"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8717082/

And...

The Relationship between Vitamin D Status and the Menstrual Cycle in Young Women: A Preliminary Study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6265788/

 

Please get checked for vitamin and mineral deficiencies.  Having Celiac means the area in the small intestine where vitamins are absorbed is damaged and malnutrition occurs.  Since we go for years before being diagnosed with Celiac, our health can be affected by those subtle nutritional deficiencies.

Checking for nutritional deficiencies is part of proper follow up care for people with Celiac.  Most doctors are not knowledgeable about vitamin deficiencies.  Most blood tests do not accurately measure deficiencies.  Discuss with your doctor and nutritionist about supplementing.

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum.

Be sure to also double check everything in your diet, including medications, supplements, makeup, etc. for hidden gluten. If you continually get trace amounts it can greatly delay, or totally postpone your recovery time:

 

  • 2 weeks later...
Ribbygirl6 Newbie
Ribbygirl6
Posted
  • Author
On 2/6/2022 at 10:55 PM, knitty kitty said:

@Ribbygirl6,

I had menstrual irregularities before my Celiac diagnosis.  I believe that being deficient in Vitamin D played a BIG part.  

Vitamin D deficiency affects your hormone levels.  You must get your Vitamin D levels up by supplementing.  Optimal level is above 75 nmol/l.  

Here's more information....

"Association between serum 25-hydroxy vitamin D level and menstrual cycle length and regularity: A cross-sectional observational study"

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8717082/

And...

The Relationship between Vitamin D Status and the Menstrual Cycle in Young Women: A Preliminary Study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6265788/

 

Please get checked for vitamin and mineral deficiencies.  Having Celiac means the area in the small intestine where vitamins are absorbed is damaged and malnutrition occurs.  Since we go for years before being diagnosed with Celiac, our health can be affected by those subtle nutritional deficiencies.

Checking for nutritional deficiencies is part of proper follow up care for people with Celiac.  Most doctors are not knowledgeable about vitamin deficiencies.  Most blood tests do not accurately measure deficiencies.  Discuss with your doctor and nutritionist about supplementing.

Thank you for the info about vitamin D. I asked my doctor, and she said we could check it. I haven't had a time to do it yet, but going to this week. Can I ask how long it took for your periods to be regular? I've been gluten free for 6 months and my bloodtest for gluten antibodies was actually normal about a month ago, so I thought I was doing okay. 

On 2/7/2022 at 1:17 PM, Scott Adams said:

Welcome to the forum.

Be sure to also double check everything in your diet, including medications, supplements, makeup, etc. for hidden gluten. If you continually get trace amounts it can greatly delay, or totally postpone your recovery time:

 

Thank you. I will start looking into nonfood things to make sure I'm not getting gluten That I don't know of.

knitty kitty Grand Master
knitty kitty
Posted

@Ribbygirl6,

I was severely deficient in Vitamin D, I was in the single digits.  It surprised my doctor how low the level was.  He prescribed D2, but that is synthetic and my body didn't like it.  I started supplementing with D3 (the more bioavailable form).  My body craved the D3 supplements.  I ate them like m&m's for a few weeks.  Really strange, but I was so depleted.  I noticed improvements when I got into the forties (nnmol/l), and I kept supplementing every day, but with smaller doses than before.  I started feeling much better when my level got into the eighties.  

Hope this helps! 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,005
    • Most Online (within 30 mins)
      7,748
    Peg55
    Newest Member
    Peg55
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Chances of being coeliac

      By Wheatwacked · Posted

      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Celiac getting dentures

      By captaincrab55 · Posted

      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Aretaeus Cappadocia · Posted

      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      Chances of being coeliac

      By trents · Posted

      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.