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Coconut 🥥 ? Why is this affecting me

T.Hug
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T.Hug Newbie
T.Hug
Posted

Hi, diagnosed dec with celiac disease so still learning so much still, why is coconut causing me pain / bagpipes noises? A few time's this has happened now, also finding my GP not helpful after having no gluten since Dec still very ill , white blood count low at 5.1 so have to wait 6 wks to check again, this site has taught me so much so very grateful 🙏

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trents Grand Master
trents
Posted

Bagpipes noises? That's a new one. Is that Scottish for farting?

T.Hug Newbie
T.Hug
Posted
  • Author

Not exactly no it's loud rumbling noises lol

trents Grand Master
trents
Posted

Is this fresh coconut or processed/shredded? If the latter, could it have been processed on equipment that also processes gluten-containing food stuffs such that there is cross-contamination happening?

T.Hug Newbie
T.Hug
Posted
  • Author

Ok thank u that makes sense, I'll watch out for that on anything going forward , 

trents Grand Master
trents
Posted
(edited)
  On 4/26/2022 at 2:55 AM, T.Hug said:

Ok thank u that makes sense, I'll watch out for that on anything going forward , 

Expand Quote  

It's also possible that you have developed an intolerance to the protein in coconuts. Celiacs typically develop intolerance over time to one or more non-gluten foods. Dairy, eggs, soy, corn are common ones but it can be anything. It's the sign of a dysfunctional immune system that is at the heart of celiac disease in the first place. I have some degree of intolerance to eggs, peanuts and some tree nuts now after being a celiac for 20 years.

Edited by trents
T.Hug Newbie
T.Hug
Posted
  • Author

Thank u, I've found it very difficult at time's but it is what it is and i just need to get on with it, going out for dinner is my biggest concern after a few nightmares, I'm ill for about a week afterwards sometimes longer ! 

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trents Grand Master
trents
Posted
  On 4/26/2022 at 3:55 AM, T.Hug said:

Thank u, I've found it very difficult at time's but it is what it is and i just need to get on with it, going out for dinner is my biggest concern after a few nightmares, I'm ill for about a week afterwards sometimes longer ! 

Expand Quote  

Eating out is absolutely the biggest risk for celiacs there is. You just have no control of how or where food is cooked and how it is handled by kitchen staff.

T.Hug Newbie
T.Hug
Posted
  • Author

I found the filling station in Glasgow brahead to b the only place that took it seriously, i was given my own server too even for drinks ! If in Glasgow again i would definitely go there for food 

Scott Adams Grand Master
Scott Adams
Posted

I also want to mention that one medium coconut has about 36g of dietary fiber, which is a lot, so the bloating could also be due to having so much fiber. If you do eat processed coconut, as @trents mentioned, be sure it is not contaminated and is gluten-free, and even then, perhaps eat less of it due to its high fiber content.

T.Hug Newbie
T.Hug
Posted
  • Author

Thank u, i don't eat coconut as a rule , my pain early hours of today was due to a white magnum ice cream , i stupidly only looked for the bold ingredients and thought it was safe ..... definitely not safe for me so that was my first and last magnum ice-cream, 

Scott Adams Grand Master
Scott Adams
Posted

This article might be helpful:

 

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