Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brand New to Celiac, confused is a nice term


Patrick 52

Recommended Posts

Patrick 52 Newbie

So, after losing weight over the last 4 months and having constant diarrhea (15 to 20 bouts a day) I started passing out and my Wife had enough, went to the hospital, they were clueless except to say I appeared to be starving myself, the Biopsy from my intestines told the tale and with a blood test confirmation, I am now a Celiac person.

how do I find local groups, this site has been very helpful but also scary (I have to check my medicines to see what fillers they used are made of?!?) but this is now my life so I want to learn what to do, so any help would be great!

 

Diagnosed 5-3-2022


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome, Patrick!

You may find this helpful: https://nationalceliac.org/celiac-disease-support-groups/

Scott Adams Grand Master

Welcome to the forum!

This article may be helpful:

 Also, this is a very old list, but some of these groups may still be active...hard to say though due to the pandemic:

 

Jays911 Contributor
On 5/18/2022 at 4:59 PM, Patrick 52 said:

So, after losing weight over the last 4 months and having constant diarrhea (15 to 20 bouts a day) I started passing out and my Wife had enough, went to the hospital, they were clueless except to say I appeared to be starving myself, the Biopsy from my intestines told the tale and with a blood test confirmation, I am now a Celiac person.

how do I find local groups, this site has been very helpful but also scary (I have to check my medicines to see what fillers they used are made of?!?) but this is now my life so I want to learn what to do, so any help would be great!

 

Diagnosed 5-3-2022

You will get better. It takes time, diligence and patience. I was diagnosed almost 9 years ago. Things do get better. Still issues (life is never perfect or easy), but recent second endoscopy showed I am almost 100% healed. Hang in there. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    2. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    3. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Healthy Gluten Free Foods low sugar that you found?

    5. - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,254
    • Most Online (within 30 mins)
      7,748

    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.