Has anyone heard of the Covid vaccine/boosters triggering the celiac disease gene to cause celiac disease ?

[Anne Jory]

At 70 years old I have just been diagnosed with celiac disease. My symptoms were diarrhea for months and weight loss. I’ve had no pain or bloating. Trying to figure out where this came from at my age and just wondered if the Covid vaccine may have triggered things. I’m fully vaxxed and boosted and so far have been Covid free (knock on wood). 

[trents]

Welcome to the forum, Anne Jory!

I have not heard that the vaccine triggers celiac disease but I think there is still a lot we don't know about the effects of the vaccine long term.

I believe we do know that people who have celiac disease are more susceptible to contracting COVID and we also know that those with the genetic potential for celiac disease need some kind of stress trigger to "turn on" the genes to produce active celiac disease. 

[Anne Jory]

12 minutes ago, trents said:

Welcome to the forum, Anne Jory!

I have not heard that the vaccine triggers celiac disease but I think there is still a lot we don't know about the effects of the vaccine long term.

I believe we do know that people who have celiac disease are more susceptible to contracting COVID and we also know that those with the genetic potential for celiac disease need some kind of stress trigger to "turn on" the genes to produce active celiac disease. 

Thank you trents. I’m happy to have found  this forum. I didn’t realize celiac disease increased susceptibility to Covid. One more reason to keep wearing my mask I guess. My endocrinologist suggested the vaccine may have caused my thyroid to get out of whack (I’m going back and forth between hyper and hypo). So I thought it may have triggered my celiac disease gene too. Hopefully we’ll find out the long term effects sooner than later. Is that even possible ? 😂😂

[Sabaarya]

Actually my celiac disease was triggered after I got Covid 2 years ago. I didn’t have any problems before Covid. 2 month after Covid I started experiencing all celiac symptoms but at that time I didn’t know it was celiac. I was wondering why I’m not getting better,muscle pain,feet pain,joint pain,hair thinning,anemia,occasional diarrhea,pain under my ribs,back pain,hand tingling, buzzing in my ears. After experiencing all of that for 2 years I did find out that I have celiac disease and it was not Covid side effects. Covid just activated my celiac gene…

[trents]

Anne Jorey,

This might be helpful to you: 

 

Oats (even gluten free oats), dairy and eggs are some other foods that commonly give celiacs problems so you might look at those with regard to your symptoms if they continue.

[Anne Jory]

8 hours ago, trents said:

Anne Jorey,

This might be helpful to you: 

 

Oats (even gluten free oats), dairy and eggs are some other foods that commonly give celiacs problems so you might look at those with regard to your symptoms if they continue.

Thanks

8 hours ago, Sabaarya said:

Actually my celiac disease was triggered after I got Covid 2 years ago. I didn’t have any problems before Covid. 2 month after Covid I started experiencing all celiac symptoms but at that time I didn’t know it was celiac. I was wondering why I’m not getting better,muscle pain,feet pain,joint pain,hair thinning,anemia,occasional diarrhea,pain under my ribs,back pain,hand tingling, buzzing in my ears. After experiencing all of that for 2 years I did find out that I have celiac disease and it was not Covid side effects. Covid just activated my celiac gene…

Thank you. Good to know.

[knitty kitty]

@Anne Jory,

A stressor, like receiving the Covid vaccines, causes your immune system to gear up and make anti-Covid antibodies.  This immune system response uses up lots of Thiamine Vitamin B1 and can tip the balance into Thiamine deficiency. 

Symptoms of Thiamine deficiency include unintentional weight loss, diarrhea, and thyroid problems.  Without enough thiamine, the thyroid can become underactive (hypothyroidism).  During times when we get more thiamine from our daily diet, the thyroid may become overactive (hyperthyroidism).  This can lead to fluctuations in thyroid function, swinging from high to low and back again.  

Scientific research shows that when there's a deficiency of Thiamine, the thiamine transporter gene turns off signalling other genes down the line to turn on.  The other genes that get turned on are autoimmune diseases like Celiac, Diabetes, thyroid problems (hyper and hypo thyroidism) and more.  

Here's some articles by Dr. Derrick Lonsdale and Dr. Chandler Marrs, leaders in this field....

Hiding in Plain Sight: Modern Thiamine Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

And...

https://www.hormonesmatter.com/vaccination-stressor/

And...

https://www.hormonesmatter.com/tag/gardasil-and-pots/

Do get checked for vitamin and mineral deficiencies caused by malabsorption due to Celiac Disease.  Discuss with your doctor the benefits of supplementing thiamine and the other B Complex vitamins and minerals while you heal.

Hope this helps!

[Anne Jory]

36 minutes ago, knitty kitty said:

@Anne Jory,

A stressor, like receiving the Covid vaccines, causes your immune system to gear up and make anti-Covid antibodies.  This immune system response uses up lots of Thiamine Vitamin B1 and can tip the balance into Thiamine deficiency. 

Symptoms of Thiamine deficiency include unintentional weight loss, diarrhea, and thyroid problems.  Without enough thiamine, the thyroid can become underactive (hypothyroidism).  During times when we get more thiamine from our daily diet, the thyroid may become overactive (hyperthyroidism).  This can lead to fluctuations in thyroid function, swinging from high to low and back again.  

Scientific research shows that when there's a deficiency of Thiamine, the thiamine transporter gene turns off signalling other genes down the line to turn on.  The other genes that get turned on are autoimmune diseases like Celiac, Diabetes, thyroid problems (hyper and hypo thyroidism) and more.  

Here's some articles by Dr. Derrick Lonsdale and Dr. Chandler Marrs, leaders in this field....

Hiding in Plain Sight: Modern Thiamine Deficiency

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

And...

https://www.hormonesmatter.com/vaccination-stressor/

And...

https://www.hormonesmatter.com/tag/gardasil-and-pots/

Do get checked for vitamin and mineral deficiencies caused by malabsorption due to Celiac Disease.  Discuss with your doctor the benefits of supplementing thiamine and the other B Complex vitamins and minerals while you heal.

Hope this helps!

Thank you, I will. I do take a daily super b complex and multi vitamin so hopefully that has helped.

[trents]

3 minutes ago, Anne Jory said:

Thank you, I will. I do take a daily super b complex and multi vitamin so hopefully that has helped.

Have you checked to make sure your vitamins and supplements are gluten free? Wheat starch is sometimes used in pills as a filler.

[GF-Cate]

10 hours ago, Anne Jory said:

Thank you trents. I’m happy to have found  this forum. I didn’t realize celiac disease increased susceptibility to Covid. One more reason to keep wearing my mask I guess. My endocrinologist suggested the vaccine may have caused my thyroid to get out of whack (I’m going back and forth between hyper and hypo). So I thought it may have triggered my celiac disease gene too. Hopefully we’ll find out the long term effects sooner than later. Is that even possible ? 😂😂

The good news is that a gluten-free lifestyle can help thyroid disease.

There is a connection between celiac & thyroid disease, and in general if you have one autoimmune disease, you are likely to have or get others. 

"The prevalence of autoimmune thyroid disease in patients with celiac disease is four times greater than that in the general population, and this may be due to the common genetic predisposition."

https://www.beyondceliac.org/celiac-disease/related-conditions/thyroid-disease/

Be sure your endocrinologist is testing your thyroid antibodies (if they haven't already) so you know if your thyroid disease is autoimmune (usually is). Your thyroid antibody levels should be tested every 6-12 months and it is possible to bring them to undetectable levels ("remission") with dietary & lifestyle changes (trying different meds/brands may be needed as well as adding T3/Cytomel in addition to T4 meds in the case of hypothyroid/Hashi's). Hashimoto's is autoimmune hypothyroidism; Grave's is autoimmune hyperthyroidism. 

[Anne Jory]

13 minutes ago, trents said:

Have you checked to make sure your vitamins and supplements are gluten free? Wheat starch is sometimes used in pills as a filler.

Does modified food starch or cellulose(plant origin) have gluten ?

[Anne Jory]

7 minutes ago, GF_Cate said:

The good news is that a gluten-free lifestyle can help thyroid disease.

There is a connection between celiac & thyroid disease, and in general if you have one autoimmune disease, you are likely to have or get others. 

"The prevalence of autoimmune thyroid disease in patients with celiac disease is four times greater than that in the general population, and this may be due to the common genetic predisposition."

https://www.beyondceliac.org/celiac-disease/related-conditions/thyroid-disease/

Be sure your endocrinologist is testing your thyroid antibodies (if they haven't already) so you know if your thyroid disease is autoimmune (usually is). Your thyroid antibody levels should be tested every 6-12 months and it is possible to bring them to undetectable levels ("remission") with dietary & lifestyle changes (trying different meds/brands may be needed as well as adding T3/Cytomel in addition to T4 meds in the case of hypothyroid/Hashi's). Hashimoto's is autoimmune hypothyroidism; Grave's is autoimmune hyperthyroidism. 

Yes, I’m being tested every six weeks with adjustments to my dosage to get my thyroid evened out. My endocrinologist is the Dr that ordered my celiac panel unlike my gastroenterologist who said I was too old to have celiac disease. Finding good healthcare providers isn’t easy ! 

[trents]

27 minutes ago, Anne Jory said:

Does modified food starch or cellulose(plant origin) have gluten ?

Yes, it could be. If they don't specify the source of the starch (wheat? corn? potato?) I would not trust it. Contact the manufacturer to get a definitive answer. Even then, their formulation can change over time. In the U.S. most "modified food starch" is made from corn. I'm thinking that more recent FDA regulations required the source to be specified by I'm not positive about that.

Edited May 30, 2022 by trents

[trents]

Anne, Costco's Nature Made brand of supplements will state that a product is gluten free if it is. And most of their Nature Made products at Costco are gluten free.

[Anne Jory]

37 minutes ago, trents said:

Anne, Costco's Nature Made brand of supplements will state that a product is gluten free if it is. And most of their Nature Made products at Costco are gluten free.

Good to know. These are the Kirkland brand from Costco but I’ll check on Nature Made next time I go.

[Scott Adams]

14 hours ago, trents said:

I believe we do know that people who have celiac disease are more susceptible to contracting COVID and we also know that those with the genetic potential for celiac disease need some kind of stress trigger to "turn on" the genes to produce active celiac disease. 

I am not sure this is correct, and just want to share this article:

 

[Wheatwacked]

3 hours ago, Anne Jory said:

I was too old to have celiac disease.

Yikes!

This has been good for me, even without the protein milk.

You might try Dr Haas's diet for recovery. THE VALUE OF THE BANANA IN THE TREATMENT OF CELIAC DISEASE SIDNEY V. HAAS, M.D. It was used from 1920 to 1950 to treat celiac before gluten was identified as the cause. It fell out of favor because once healed the patient was returned to a "normal diet" with gluten so the gains would often be lost. As they say " the baby with the bath water"

>Heretofore it has been impossible in the severe cases to give any carbohydrate without damage, whereas banana is not only well tolerated, but rapidly changes the entire picture of the disease to one of well being. <

1. Table 1.—The Typical Diet:
2. Plain milk should not be given
3. Albumin milk. (whey)
4. Pot cheese (milk 16 oz.) Farmers or Cottage Cheese (curds)
5. Banana.
6. Orange.
7. Vegetables.
8. Gelatin.
9. Meat.
10. Fats should be avoided as carefully as carbohydrates.

[T burd]

14 hours ago, Sabaarya said:

Actually my celiac disease was triggered after I got Covid 2 years ago. I didn’t have any problems before Covid. 2 month after Covid I started experiencing all celiac symptoms but at that time I didn’t know it was celiac. I was wondering why I’m not getting better,muscle pain,feet pain,joint pain,hair thinning,anemia,occasional diarrhea,pain under my ribs,back pain,hand tingling, buzzing in my ears. After experiencing all of that for 2 years I did find out that I have celiac disease and it was not Covid side effects. Covid just activated my celiac gene…

I saw a study that showed mono to activate celiac. You’ve likely had celiac for a long time but just didn’t have gastric symptoms. Sounds like you could have other autoimmune issues if they don’t clear up. 

14 hours ago, Anne Jory said:

Thank you trents. I’m happy to have found  this forum. I didn’t realize celiac disease increased susceptibility to Covid. One more reason to keep wearing my mask I guess. My endocrinologist suggested the vaccine may have caused my thyroid to get out of whack (I’m going back and forth between hyper and hypo). So I thought it may have triggered my celiac disease gene too. Hopefully we’ll find out the long term effects sooner than later. Is that even possible ? 😂😂

I think there are new studies this last month or two that have shown the vaccine is causing some extra auto immune responses in people that already have auto immune issues. Then some are saying covid does also. 

[Sabaarya]

21 minutes ago, T burd said:

I saw a study that showed mono to activate celiac. You’ve likely had celiac for a long time but just didn’t have gastric symptoms. Sounds like you could have other autoimmune issues if they don’t clear up. 

I think there are new studies this last month or two that have shown the vaccine is causing some extra auto immune responses in people that already have auto immune issues. Then some are saying covid does also. 

I did have gastric issues since I was 16 and had endoscopies since I was 16, everything was fine except gastrities. I had 5 endoscopies since then.All my blood work was fine. I do have high ANA which is nonspecific and Thats why I do have yearly check up with rheumatologist as well. Getting check ups for different autoimmune issues so far everything is normal. After COVid all my problems started. Will have another gastro in August which is gonna be 1 year after diagnose. Will see…

[T burd]

Oh I heard someone else say their biopsies were negative until the 7th. The gut sometimes gets damage farther down and the tests even biopsy doesn’t work. My biopsy would have been negative had they not done a bulb sample and that isn’t standard. 
I have high ANA also no rheumatoid factor and lots of joint pain that seems to get worse. rheumatologist found  histone ? Related to drug induced lupus. But gave me HCQ, which helped at first but made it worse. Going to functional med doctor now.
 We shall see

[Scott Adams]

We've summarized all the research so far on covid-19 and celiac disease, which can be found using the link below, but so far I've not seen any direct studies that link the vaccine to getting celiac disease.

https://www.celiac.com/search/?q=covid-19&type=cms_records2&updated_after=any&sortby=newest&search_in=titles

[Anne Jory]

3 hours ago, Scott Adams said:

We've summarized all the research so far on covid-19 and celiac disease, which can be found using the link below, but so far I've not seen any direct studies that link the vaccine to getting celiac disease.

https://www.celiac.com/search/?q=covid-19&type=cms_records2&updated_after=any&sortby=newest&search_in=titles

Thanks ! 

[Sabaarya]

6 hours ago, T burd said:

Oh I heard someone else say their biopsies were negative until the 7th. The gut sometimes gets damage farther down and the tests even biopsy doesn’t work. My biopsy would have been negative had they not done a bulb sample and that isn’t standard. 
I have high ANA also no rheumatoid factor and lots of joint pain that seems to get worse. rheumatologist found  histone ? Related to drug induced lupus. But gave me HCQ, which helped at first but made it worse. Going to functional med doctor now.
 We shall see

What is drug induced lupus? Do you have lupus?

[trents]

https://www.lupus.org/resources/about-drug-induced-lupus

[knitty kitty]

13 hours ago, T burd said:

I have high ANA also no rheumatoid factor and lots of joint pain that seems to get worse. rheumatologist found  histone ? Related to drug induced lupus. But gave me HCQ, which helped at first but made it worse. Going to functional med doctor now.
 We shall see

HCQ can cause low thiamine Vitamin B1. 

Drug–nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3)

https://academic.oup.com/ajcn/article/111/1/110/5637679