Possible celiac?

[Angie Pie]

Hi, after a long 3 weeks of 2 doctors visits and queried kidney infection, I think I may have found the culprit for my issues. 

Terrible bloating, tummy pain, spasm like pain (sponge squeezed) and an episode of these resulting in a and e check, to which bloods etc all fine. stools strange and a bit smelly (apologies tmi) I avoided breads this week and bought couple gluten free bits from shop and just tried a wrap for lunch from shop and symptoms starting again 😣

Where do I go from here? Just want to feel right again 😣

Thanks 🙏

[trents]

Welcome to the forum, Angie Pie!

"an a and e" check? What is that?

"bloods etc all fine" Have you had testing done that is specifically for celiac disease? There are serum antibody tests specifically designed to check for celiac disease.

[Angie Pie]

Just now, trents said:

Welcome to the forum, Angie Pie!

"an a and e" check? What is that?

"bloods etc all fine" Have you had testing done that is specifically for celiac disease? There are serum antibody tests specifically designed to check for celiac disease.

Sorry, went to emergency room as bloating terrible, pains I'm stomach etc cramping. No had no specific tests yet. Looking into this. Feel fatigued also. 

 

[trents]

https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

I would ask for three tests:

1. Total serum IGA

2. tTG-IGA

3. Deamidated gliadin peptide (DGP IgA and IgG)

You need to be eating gluten daily (2 slices of wheat bread or the equivalent) for 6-8 weeks leading up to the test in order not to invalidate them.

And if your physician wants to follow the antibody testing with an endoscopy/biopsy you will need to stay on gluten. The pretest gluten challenge for this one is only two weeks.

Edited June 1, 2022 by trents

[Angie Pie]

Thank you for this help. Much appreciated 

[trents]

There is a gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but doe not damage the small bowel villi and therefore does not produce antibodies. There is no test for NCGS. Celiac disease must first be ruled out.  NCGS is 10-12x more common than celiac disease.