Does anyone else have this problem?

[Elizabeth Green]

I am new to this site so please be patient with me.

 I am a label reader, and careful with anything that triggers those ‘abdomen  issues’.
However, even when I have foods that do not list anything remotely gluten related, I still get an attack like I did.

Are there certain spices that can trigger issues as well?

[trents]

Welcome to the forum, Elizabeth! There was an article on the forum recently outlining research about certain spices having proteins similar to gluten that cause reactions in some people with celiac disease. You might search for it using the forum search tool and also google it. I cannot remember the specifics. But aside from gluten and spices, there can be any number of ingredients in processed foods that cause GI distress for those with celiac disease. Things like xanthan gum, polysaccharides, lecithins, sugar alcohols, and on and on.

[Scott Adams]

Here it is:

 

[Wheatwacked]

 

Option 1:The Glute Contamination Ellimation Diet may be an effective therapeutic option for GFD-adherent NRCD patients. Response to this diet identifies a subgroup of patients, previously classified as RCD1, that is not truly refractory to dietary treatment. Preventing an inaccurate diagnosis of RCD1 avoids immunotherapy. Most patients are able to return to a traditional GFD without return of symptoms. Gluten Contamination Elimination Diet GCED Food Chart;  Table 1 Products allowed

Option 2: I've been sticking to Dr Haas's list of ingredients in THE VALUE OF THE BANANA IN THE TREATMENT OF CELIAC DISEASE SIDNEY V. HAAS, M.D. NEW YORK that was used for Celiac before they knew about gluten and it's helping. It was the first diet that worked back in 1920. Celiac Disease was called Infantilism. Of course now we know to never reintroduce wheat. "Ten cases are reported here ; eight of the patients were clinically cured by the form of therapy described below. The two patients not treated died" Back then they made their own cottage cheese (pot cheese) and the cows were all pasture fed. I am continuing to take large dose Thiamin, D3, Phosphatidyl Choline.

• Whey protein
• Cottage Cheese (Daisy 4% has no additives)
• Bananas (ripe)
• Oranges
• Vegetables
• Gelatin
• Meat

Edited June 13, 2022 by Wheatwacked

[Elizabeth Green]

Wheatwacked:

I’m on the FODMAP diet. I have Celiacs and IBS-D.

The Banana treatment one you mentioned is not one that could work for me. There are way too many vegetables that I don’t have luck with. Even when others do.

Also, bananas cause me to throw up. I can’t handle cottage cheese. 🤢

I did another post that listed my 3 likely suspects. So, it would be one of them.

[knitty kitty]

@Elizabeth Green,

Welcome to the forum!

I've found the Autoimmune Protocol Diet (AIP diet) to be extremely helpful.  Developed by Dr. Sarah Ballantyne because she and her children have Celiac Disease, the AIP diet has been shown in scientific studies to promote intestinal healing. Her book, The Paleo Approach, has been very helpful.  (Her website   https://www.thepaleomom.com is tied up in a ransom ware dispute and needs support to recreate it. Please consider buying her a coffee.)

The AIP diet eliminates some foods to reduce inflammation and calm the autoimmune response.  Relief is seen within three weeks to three months.

Nightshade vegetables (potatoes, tomatoes, eggplant, and peppers) are excluded as they promote leaky gut. 

Also excluded are spices from seeds like cumin, mustard, cardamum, and fenugreek (ingredients of curry powder).  Chili powder from chili peppers (nightshade) is excluded, too.  

Legumes (beans, lentils, peas, peanuts) are excluded. 

All grains, including corn, are not allowed. 

Nuts and seeds are excluded as well.

Dairy and eggs are also excluded.  

And no processed foods, including processed meats (like luncheon meats, sausages, chicken nuggets, etc) and gluten free cookies and such. 

Allowed foods are meat and nonstarchy veggies and some fruits.  Healthy fats like olive oil are allowed. 

I know it sounds drastic, but it really works.  I felt better and saw improvement within a few weeks.  I had to exclude high histamine foods like bananas, broccoli, avocado, fish and pork, bone broth and fermented foods.  

Foods are slowly added back into one's diet as one can tolerate after a trial period.  I waited three months to start adding foods back because my digestive system was so touchy (IBS-D).  

Hope this helps!  

Keep us posted on your progress!

[Wheatwacked]

Quote

 

I was diagnosed Celiacs and IBS-D probably 7 years ago. My question is in regards to spices in a dish called Butter Chicken. I had tried a really liked this about 3 or 4 years ago. I found a frozen one at the local store. I read the package and there wasn’t anything gluten in it.

So I have it narrowed down to these 3 spices listed on the package:

saffron, onion powder, curry

Are any of these known to trigger celiac issues? I still have a pack in the freezer.

 

I vote the onion powder, as it is not low fodmap.

Quote

 

Garlic and onion contain fructans. These are a specific type of carbohydrate. They’re not bad for your health in general, but they can sometimes trigger symptoms in people with IBS.

Realizing that garlic and onion give you IBS symptoms can be devastating. After all, they’re in almost every savory dish, and they take meals from “blah” to delectable. Turning to garlic powder and onion powder won’t help either. In fact, these might actually be worse because they’re more concentrated.   Cooking for IBS Without Garlic and Onion - HealthiNation

 

 

[Wheatwacked]

Butter Chicken or Tikka Masala    Chicken Tikka Masala vs Butter Chicken – A Comparison as Fascinating as the Delicacies

[knitty kitty]

Nope, my vote is the spices from seeds in curry powder.  

[Elizabeth Green]

25 minutes ago, knitty kitty said:

@Elizabeth Green,

Welcome to the forum!

I've found the Autoimmune Protocol Diet (AIP diet) to be extremely helpful.  Developed by Dr. Sarah Ballantyne because she and her children have Celiac Disease, the AIP diet has been shown in scientific studies to promote intestinal healing. Her book, The Paleo Approach, has been very helpful.  (Her website   https://www.thepaleomom.com is tied up in a ransom ware dispute and needs support to recreate it. Please consider buying her a coffee.)

The AIP diet eliminates some foods to reduce inflammation and calm the autoimmune response.  Relief is seen within three weeks to three months.

Nightshade vegetables (potatoes, tomatoes, eggplant, and peppers) are excluded as they promote leaky gut. 

Also excluded are spices from seeds like cumin, mustard, cardamum, and fenugreek (ingredients of curry powder).  Chili powder from chili peppers (nightshade) is excluded, too.  

Legumes (beans, lentils, peas, peanuts) are excluded. 

All grains, including corn, are not allowed. 

Nuts and seeds are excluded as well.

Dairy and eggs are also excluded.  

And no processed foods, including processed meats (like luncheon meats, sausages, chicken nuggets, etc) and gluten free cookies and such. 

Allowed foods are meat and nonstarchy veggies and some fruits.  Healthy fats like olive oil are allowed. 

I know it sounds drastic, but it really works.  I felt better and saw improvement within a few weeks.  I had to exclude high histamine foods like bananas, broccoli, avocado, fish and pork, bone broth and fermented foods.  

Foods are slowly added back into one's diet as one can tolerate after a trial period.  I waited three months to start adding foods back because my digestive system was so touchy (IBS-D).  

Hope this helps!  

Keep us posted on your progress!

Hi Kitty Kitty,

The only issue I’ve had was when I ate this meal with these 3 spices in it.

Otherwise, I’m pretty good with the FODMAP diet.

The issue on some of the others is that the foods they want you to eat on them are:

1) foods I already cut out because I had an issue eating them. (and I don’t eat things like luncheon meats, etc anyway )

2) are foods I don’t like. That even the smell makes me nauseous. (fish for example) I cut bananas as they started making me sick. 
 

As someone on the FODMAP, I don’t eat things like broccoli anyway. Gas producers are a no-no. 
 

Thanks for the Welcome!

[Elizabeth Green]

22 minutes ago, Wheatwacked said:

Butter Chicken or Tikka Masala    Chicken Tikka Masala vs Butter Chicken – A Comparison as Fascinating as the Delicacies

This was really interesting. I knew not to do the Masala as it has onion. I don’t tolerate onion. (I also hate the smell and taste of them)

A friend also recently found that many people who have issues with IBS-D and or Celiac…also have issues with curry and with onions.

Sadly, things made Gluten-free, are still made with onions. (sigh)

Oh well. I try to make things for myself lately. 
Thanks!

[MarElizabeth]

Some spices are causing indigestion, bloating and sometimes stomach cramps.  As far as which ones. Gotta experiment.

[Wheatwacked]

As I understand it Masala is just a spice mix. Back when families made their own it varied with the family tradition, so different brands may have different mixes.

What Is Garam Masala? Here's What You Need to Know About the Spice Blend