New possible Celiac?

[Dy89]

Hello ggreetings , just dont know where to start, ill try to do my best to find comforting advice 

first of all im an Hypocondriac, exactly about 2 years ago (mid 2020), i had these stomach issue where i would eat and get full very very fast with some minor spoons , and with that i had some sharp wheight lose i use to wheight about 76-79 kilos 

my doctor made my do all blood test urine feces , evrything came fine , my problem with stomach resolved , but still didnt get my weight back , my bowel movements all changed from a consistent to a more watery stool  , and i would need to empty in 2 or 3 times 

Often i would feel weekness fast forward 2021 , weight loss / gain /loss , i decided to start gluten free for about 3 months i noticed stool passing changed , no more hemoroids , ( did also blood tests again , came out clean ) went back to eating gluten , same thing again watery stool , depression , anxiety ,  now im unable to maintain Weight im at 62 -63 kilos , weakness , hemoroids needles feeling in feet ,fuzzy head feeling sometimes ,

it gets frightning sometimes i measure my blood sugar but comes ok , my family doctor thinks its just my anxiety , even my family members think im exagerating , but i just know there is something not right.

i decided to go to an GI and explained to him , he also is kinda skeptical and decided to give me some etiprazole and levosulpiride, didnt notice major difference 

i stopped eating gluten again , and no more bloating , but i dont know what else to do , what test should i ask for , my weight battle just worries me , people looking at me strange due to my weight lose is so depressing for me  , im 75% sure im Gluten intollerant or Celiac , what you guys think 😔

ill be reading 

 

 

[trents]

1 hour ago, Dy89 said:

Hello ggreetings , just dont know where to start, ill try to do my best to find comforting advice 

first of all im an Hypocondriac, exactly about 2 years ago (mid 2020), i had these stomach issue where i would eat and get full very very fast with some minor spoons , and with that i had some sharp wheight lose i use to wheight about 76-79 kilos 

my doctor made my do all blood test urine feces , evrything came fine , my problem with stomach resolved , but still didnt get my weight back , my bowel movements all changed from a consistent to a more watery stool  , and i would need to empty in 2 or 3 times 

Often i would feel weekness fast forward 2021 , weight loss / gain /loss , i decided to start gluten free for about 3 months i noticed stool passing changed , no more hemoroids , ( did also blood tests again , came out clean ) went back to eating gluten , same thing again watery stool , depression , anxiety ,  now im unable to maintain Weight im at 62 -63 kilos , weakness , hemoroids needles feeling in feet ,fuzzy head feeling sometimes ,

it gets frightning sometimes i measure my blood sugar but comes ok , my family doctor thinks its just my anxiety , even my family members think im exagerating , but i just know there is something not right.

i decided to go to an GI and explained to him , he also is kinda skeptical and decided to give me some etiprazole and levosulpiride, didnt notice major difference 

i stopped eating gluten again , and no more bloating , but i dont know what else to do , what test should i ask for , my weight battle just worries me , people looking at me strange due to my weight lose is so depressing for me  , im 75% sure im Gluten intollerant or Celiac , what you guys think 😔

ill be reading 

 

 

"The proof is in the pudding", as we like to say in the USA. When you go off gluten you feel better and your symptoms improve. What more proof do you need? It seems obvious to me you have either celiac disease or NCGS (Non Celiac Gluten Sensitivity).

Do you know specifically what tests were run to detect celiac disease? Do you have access to the results and could you post them, along with reference ranges for negative/positive? There are specific blood tests used to diagnose celiac disease. It cannot be diagnosed with normal blood tests. Here is a primer: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

Celiac disease and NCGS share many of the same symptoms and the antidote is the same: total avoidance of gluten for life. Learning how and where gluten shows up in the food supply involves a real learning curve. Cross contamination is the biggest challenge. This might help: https://celiac.org/about-the-foundation/featured-news/2016/01/gluten-free-101-need-know/

Welcome to the forum, Dy89!

 

[Dy89]

24 minutes ago, trents said:

"The proof is in the pudding", as we like to say in the USA. When you go off gluten you feel better and your symptoms improve. What more proof do you need? It seems obvious to me you have either celiac disease or NCGS (Non Celiac Gluten Sensitivity).

Do you know specifically what tests were run to detect celiac disease? Do you have access to the results and could you post them, along with reference ranges for negative/positive? There are specific blood tests used to diagnose celiac disease. It cannot be diagnosed with normal blood tests. Here is a primer: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/

Celiac disease and NCGS share many of the same symptoms and the antidote is the same: total avoidance of gluten for life. Learning how and where gluten shows up in the food supply involves a real learning curve. Cross contamination is the biggest challenge. This might help: https://celiac.org/about-the-foundation/featured-news/2016/01/gluten-free-101-need-know/

Welcome to the forum, Dy89!

 

So pleased to receive my first reply , i dont really recall having specific gluten test , im just tired of going to lab and hearing evrything is fine even thou i kinda now its not 

just dont know why gs/celiacs are overlooked , or is it my case being overlooked for being hypocondriac 

 

like  how long does it take to get weight back after going strictly gluten free? Are there any ways pr suplement to help me gain weight , i thought of using Magnesium glicenate
 

One of the last tests i had these following results

 

Wbc 4.3                            Range:  4.5-11.0

Mpv 11.7                            Range : 7.4 -10.4

neutrophilis % 31             Range 40-75

Lympochytes 58              Range 20-45

creatine 0.88

dont know if they say something , doctor said they were fine , but for me they kinda out of range 

 

[trents]

Some of those labs are marginally out of range. It is common for celiacs to experience anemia. So, some run of the mill bloodwork as you have done can indirectly reflect active celiac disease.

If you want an official diagnosis then you need to ask for testing that is specifically designed to detect celiac disease. You may need to get appropriately assertive with your doctors. Our experience here on this forum is that the medical community is generally out of touch with gluten-related disorders and that we need to take doctors by the hand and help them get on board with ordering the right tests.

Referring to the link I offered in my earlier post, I would suggest you go to your doctor and request the following tests:

1. Total serum IGA

2. tTG-IGA

3. Deamidated gliadin peptide (DGP IgA and IgG)

[Dy89]

1 minute ago, trents said:

Some of those labs are marginally out of range. It is common for celiacs to experience anemia. So, some run of the mill bloodwork as you have done can indirectly reflect active celiac disease.

If you want an official diagnosis then you need to ask for testing that is specifically designed to detect celiac disease. You may need to get appropriately assertive with your doctors. Our experience here on this forum is that the medical community is generally out of touch with gluten-related disorders and that we need to take doctors by the hand and help them get on board with ordering the right tests.

Referring to the link I offered in my earlier post, I would suggest you go to your doctor and request the following tests:

1. Total serum IGA

2. tTG-IGA

3. Deamidated gliadin peptide (DGP IgA and IgG)

The fun part and i kinda find  it impolite from my part to tell the doctor what to do just as you said “Take them by the hand “ hahahaha  , but I literally know what you mean , the test you mentioned above are you to be consuming Gluten , and should you fast for them ? 

[Wheatwacked]

2 hours ago, Dy89 said:

first of all im an Hypocondriac

"a person who is abnormally anxious about their health."

I think almost everyone of us either has been told that flat out or slowly began to believe it over the years.

Try to get your vitamin D blood level tested and homocysteine along with the tests @trentssuggested. High homocysteine is a indicator of inflammation. My son has celiac Disease and is a full time ocean guard in Florida, plenty of sun but last August his vitamin D level was below 29 ng/ml. I take 250 mcg (10,000 IU) of vitamin D for years now. My blood test is 80 ng/ml. (Range is >30 and < 100.)

Vitamin D and the Immune System "There is increasing epidemiologic evidence linking vitamin D deficiency and autoimmune diseases including multiple sclerosis (MS), rheumatoid arthritis (RA), diabetes mellitus (DM), inflammatory bowel disease and systemic lupus erythematosus (SLE)"

Are Vitamin Supplements Effective In Celiac Disease Patients?  Coeliac disease is a typical example of a malabsorption syndrome conferring increased risk for various deficiency states... Hyperhomocysteinemia is significantly more frequent in patients with newly diagnosed coeliac disease than healthy controls." Low B vitamins, choline or folate 

 

[trents]

1 hour ago, Dy89 said:

The fun part and i kinda find  it impolite from my part to tell the doctor what to do just as you said “Take them by the hand “ hahahaha  , but I literally know what you mean , the test you mentioned above are you to be consuming Gluten , and should you fast for them ? 

The Mayo Clinic guidelines for the pretest gluten challenge is:

1. Celiac serum antibody testing: daily consumption of an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks leading up to the test 

2. Endoscopy with biopsy testing: same amount as in 1. but necessary for only two weeks leading up to the test

By all means, do not cut back or cut out gluten before all testing is complete or you will invalidate the tests and have to do it all over again. If you cut back on gluten, inflammation begins to subside, healing starts to take place and antibodies decline.

Of course it feels "impolite" to be assertive with the doctor. But the doctor isn't the King. They should be your servant, open to whatever is best for your health. And there is a right way and a wrong way to do everything. Think about what you will say and how your will say it before hand so as to be as "polite" as possible but resolved with regard to what you want done. Maybe print something informative out and take it with you. Your health is at stake here and that is more important than avoiding ruffling your doctor's feathers.

Edited June 21, 2022 by trents