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Gastrointestinal Issues - Embarassing

Ginger38
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Ginger38 Rising Star
Ginger38
Posted

I have been really trying to be careful watching my diet since finding out that something I was consuming contained gluten. As far as I know I’m about 3 weeks out from That consumption of gluten. 

My stomach issues had gotten a little better but have come back with a vengeance to the point I have had accidents … so embarrassing 😳 

I read something that said you could kind of watch your bowel habits and bowel colors and those were indicators of gluten consumption / exposure / healing of intestines etc. 

Based on this information, it seems safe to say I’ve either been glutened or I’ve still got lots of inflammation and damage that has not began to heal and my digestive system is just struggling

Any thoughts or advice? Does anyone take Imodium to help and/Or gasEx or other stomach aids? 

 

 

 

 

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Scott Adams Grand Master
Scott Adams
Posted

Since you got pretty bad gluten in your diet for a while, and it's only been 3 weeks, I think it will take more time to heal, unfortunately. You may want to also look at this article, but much of it may not apply to you because you already know the likely cause--inadvertent gluten exposure:

 

Ginger38 Rising Star
Ginger38
Posted
  • Author
3 hours ago, Scott Adams said:

Since you got pretty bad gluten in your diet for a while, and it's only been 3 weeks, I think it will take more time to heal, unfortunately. You may want to also look at this article, but much of it may not apply to you because you already know the likely cause--inadvertent gluten exposure:

 

Yeah, maybe I’ve finally tipped my immune system over for good or severely damaged myself like never before. Unless I’m still getting gluten somehow and don’t realize it. This is the longest I can recall it taking to really see significant improvements. My stomach is just not happy regardless of what I eat. It hasn’t been this unhappy for a while. And the bloating is depressing me ..

i have an appointment next week with a gastroenterologist…if I go ….I just want  to talk to him and see what he has to say. I just not sure about going bc I’m afraid it’s going to confuse me further and throw me off. And if he were to say he doesn’t think it’s celiac I’m truly scared I will self sabotage with a gluten binge🤦🏼‍♀️

Scott Adams Grand Master
Scott Adams
Posted

Let us know how things go. I hope all symptoms will soon improve for you! 

Look into a gluten-free L-Glutamine supplement, as it has been shown to speed up gut healing.

Ginger38 Rising Star
Ginger38
Posted
  • Author
1 minute ago, Scott Adams said:

Let us know how things go. I hope all symptoms will soon improve for you! 

Look into a gluten-free L-Glutamine supplement, as it has been shown to speed up gut healing.

Thanks, will do. To me best case scenario is him saying he supports celiac diagnosis even though I’m not opting for endoscopy. I don’t have high hopes though. Worst case scenario is him refusing to acknowledge any of it without a biopsy or telling me it’s not celiac and eat whatever. 
I’m currently on a trip so I’m scared I’m going to make myself worse with all the eating out no matter how careful I am

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      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
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      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
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      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
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