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DH and covid


CeCe22

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CeCe22 Explorer

I developed Covid over a week ago. Since that time my rash has completely disappeared. I wish it would not come back!  😃


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Hopeful1950 Explorer

Did they give you anything for the Covid that might be working on the DH? 

  • 2 weeks later...
Scott Adams Grand Master

This is interesting and just goes to show you that viral infections can have many different side effects in different individuals. Some here have posted that they believe that a vaccine or infection may have triggered their celiac disease, and there is research that has linked the onset of celiac disease with certain infections, but not many have posted the relief of DH symptoms due to covid, so this is interesting!

CeCe22 Explorer

Unfortunately it came back after 10 days. It sure was a nice relief!!!  I have had two other times in February 2022 and May 2022 that I was sick with bronchial infection and the rash cleared up during that time. However, both of those time the dr had given me a shot and predisone. With COVID they just told me to use Robitussin and Tylenol. 

Scott Adams Grand Master

Is there any chance you're still getting trace amounts of gluten in your diet...perhaps if you eat outside your home?

CeCe22 Explorer

We have been eating at home. Very seldom do we eat out and then I am very careful. However when I broke out again we had been eating at home for weeks and I was eating same thing I ate while I was clear? V. 

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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