Enterolab Result

[gabby]

I got my(malabsorption) quantitative microscopic fecal fat score back: normal is under 300 units, my score was 976.

I make all my own food, and adhere to a strict gluten-free diet, so this can't be caused by gluten ingestion. The literature says this score could also be caused by consuming casein (anti-casein antibody test came out positive.)

I've been avoiding dairy for the last few months religiously....except being the brain surgeon that I am, I have been consuming BUTTER....absolutely forgetting that it too is a dairy product.

Could my butter consumption be causing the malabsorption score? Did anyone else have a high score and also find out they were casein sensitive?

Thanks,

The no-more-butter lady

[Nancym]

If your intestines were badly damaged it might take awhile for them to heal up. I have no idea how long it takes. Also, I wonder if perhaps there might be more things you're sensitive to, eggs, soy, nuts?

[Rachel--24]

I had a high malabsorption score....mine was 912. I was negative for casein. I had also been gluten-free for 4 months before the test. On the results it listed other causes for high malabsorption (besides gluten) ...one of the possiblilities was bacteria overgrowth. I was tested for this and came back with an overgrowth of C. Difficle. I'm thinking it was probably that and candida causing the malabsorption. It definately wasnt gluten or casein.

[Guest Robbin]

My malabsorbtion was 624 after 7 wks gluten-free, and I was found to be anticasein, too. I think it was definitely the casein, since I get the same kind of reactions now when I accidently ingest casein as I do with gluten. It is really the harder of the two to stick to, in my experience. It is found in so many things that I normally eat and it is hard or impossible to replace with a suitable substitute, especially since we are avoiding soy as well.

[CMCM]

My malabsorbtion was 624 after 7 wks gluten-free, and I was found to be anticasein, too. I think it was definitely the casein, since I get the same kind of reactions now when I accidently ingest casein as I do with gluten. It is really the harder of the two to stick to, in my experience. It is found in so many things that I normally eat and it is hard or impossible to replace with a suitable substitute, especially since we are avoiding soy as well.

I get just as sick with eating any casein as I do with gluten, maybe more noticeably so. Like you, I find the casein enormously hard to avoid. I didn't test positive to soy, but I tried some soy milk and it really made me sick so I avoid it too.

[italiana1981]

I had the opposite problem with my enterolab test-I had a malabsorption of 96, which means I do not have it!

However, I tested positive for HLS DQ2&3, gluten sensitivity, &casein sensitivity.

I also have serious hair loss, amehorrea, and daily diarrhea. I am a 24 year old woman.

Has anyone else had hair loss & amenhorrea as symptoms of Celiac?

[stephk]

I had a high malabsorption score....mine was 912. I was negative for casein. I had also been gluten-free for 4 months before the test. On the results it listed other causes for high malabsorption (besides gluten) ...one of the possiblilities was bacteria overgrowth. I was tested for this and came back with an overgrowth of C. Difficle. I'm thinking it was probably that and candida causing the malabsorption. It definately wasnt gluten or casein.

[/quote

Hey Rachel,

just wondering where you got the enterolab test.... I want to get it done, but don't know where or how to do that.

Stephanie

[italiana1981]

stephk-

simple go to enterolab.com to order the test

[Rachel--24]

Yes, its really easy to order the test. They send you the kit and you do it at home and then ship it back to Enterolab. You get the results via email within 2 weeks.

[itskt2u]

I also have serious hair loss, amehorrea, and daily diarrhea. I am a 24 year old woman.

Has anyone else had hair loss & amenhorrea as symptoms of Celiac?

Yes, I had both. I am now 48 years old and have just recently gotten my celiac Dx after decades of illness. When a teenager, I lost a large patch of hair on the back of my head. When in my early 20s I had 2 years without a menstrual period. Drs tested me the second year and said I had zero estrogen and zero progesterone; highly abnormal. I am 5' 5" and at the time weighed only 92 lbs. I was also iron deficient anemic. They put me in the hospital for endocrine tests for several days but they never concluded anything from those; they thought I had an eating disorder. It hurt to eat but nobody ever asked me that!

Now I have a solid diagnosis of panhypopituitarism, and I have to take daily replacement hormones for adrenal, thyroid, ovarian, and growth hormone injections. (Getting panhypopit Dx is as difficult as getting a celiac Dx, apparently). My endocrinologist thinks that in light of the recent celiac Dx, my panhypopit is most likely caused by autoimmune process.

My story is much longer so won't relate the whole thing here. I had classic celiac symptoms, not silent by any stretch, and yet my Dx was missed for so many years. I am unable to work for over 20 years now, and am a single mother of 4 great kids, one who has been sick past 7 years (also celiac, but without formal Dx and that's a story for another thread also). Maybe my history is another post for the doctor vent thread? (Please help me find that doctor vent thread again!).

Mother and one sister tested via Enterolab recently and they are positive for celiac. Sister has 2 copies of the DQ2 so we know that both parents contributed this main celiac gene!

Kate