Advice please

[Dawn s D]

I had my bloods back and my ttg iga came back positive 67.7.normal ref range 0-20.i am waiting for endoscopy in Jan.i also had faecal calprotectin level of 775.ref range 0-50.are the test connected in any way?Iam now waiting for bowel biopsy aswel.tested negative for crohns.i also suffer bowel adhesions from previous surgery and had partial obstruction then total obstruction with the part removed with emergency surgery.i am dreading it if I have to go on gluten free diet as already on low residue and low fibre diet.

[trents]

Welcome to the forum, Dawn s D!

There is a higher incidence of Crohns in the celiac population.

It shouldn't be difficult to get adequate fiber in your diet if you need to give up gluten-containing grains. There are lots of fiber products out there like Metamucil and there are still plenty of non-gluten grains, fruit and vegetables that can take up the slack.

[Dawn s D]

The dietician said I can only have tinned pears n peaches.potatoes mashed jackets without skin and only carrots and swede mashed due to adhesions.

[trents]

Carrots are a good source of fiber. And mashed potatoes have some fiber. Ask the dietician about prunes. They are soft and high in fiber.

Edited December 17, 2022 by trents

[Dawn s D]

My test for crohns also come back negative

Isit  normal for my faecal calprotectin to be 775 when tested negative for crohns?

[Dawn s D]

Also prunes aren't low residue

[trents]

Are they planning to do anything surgically about the adhesians? That is a common problem after abdominal surgeries and they don't go away by themselves, do they?

So, with being on a low fiber, low residue diet it would seem your only option would be laxatives that draw water into the colon.

[Dawn s D]

1 minute ago, trents said:

Are they planning to do anything surgically about the adhesians? That is a common problem after abdominal surgeries and they don't go away by themselves, do they?

So, with being on a low fiber, low residue diet it would seem your only option would be laxatives that draw water into the colon.

They won't do anything unless it's an emergency cos they grow back and everytime they operate more adhesions will grow.i take a couple of senna a day.im still having gluten at mo til endoscopy.im hoping the tests are wrong?my diet is already restricted enough

[trents]

If you don't mind my asking, if you don't have Crohns, what was the original surgery for that started these adhesions?

With a tTG-IGA value as high as yours, it is very likely the biopsy will be positive for celiac disease.

[Dawn s D]

Giant mucinus cyctenoma removal so full hysterectomy.i have never been right since then nrly 3 yrs ago.for the last Yr the gp has blamed my symptoms on adhesions.then saw diff gp who did tests.the symptoms are the same.

[Maddie6332]

On 12/17/2022 at 9:10 AM, Dawn s D said:

I had my bloods back and my ttg iga came back positive 67.7.normal ref range 0-20.i am waiting for endoscopy in Jan.i also had faecal calprotectin level of 775.ref range 0-50.are the test connected in any way?Iam now waiting for bowel biopsy aswel.tested negative for crohns.i also suffer bowel adhesions from previous surgery and had partial obstruction then total obstruction with the part removed with emergency surgery.i am dreading it if I have to go on gluten free diet as already on low residue and low fibre diet.

I think if you have to go on a gluten-free diet, you should. Trust me, it helps a lot and it's worth it. Don't worry, you will feel pretty crumby in the beginning, but eventually your stomach and stuff will get used to it and be like "Ok, were getting used to this now." Hope this helped you!

                                                                   - Maddie6332

[knitty kitty]

@Dawn s D 

I agree with @Maddie6332.  I believe you will feel much better once you go gluten free.  I followed the Autoimmune Protocol Diet which has been scientifically shown to help reduce inflammation and promote healing in the gastrointestinal tract.  

This study shows how well the AIP diet works for Celiac, Crohns, and colitis.

Efficacy of the Autoimmune Protocol Diet for Inflammatory Bowel Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5647120/

I have post operation adhesions.  I found that Vitamin C helps...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3963320/

Fecal calprotectin simply reflects inflammation in the Gastrointestinal tract.  Once you eliminate gluten, it should go down.

Like @Maddie6332 says, give your body time to calm down the inflammation and it will say "Ok, were getting used to this now."

Talk to your doctor and nutritionist about supplementing with vitamins and minerals while you are healing.