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Does your DH change? How do you cope with DH?

Arietti

By Arietti
in Dermatitis Herpetiformis

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Merry Berry Newbie
Merry Berry
Posted
21 hours ago, Maddie6332 said:

I think scars make our skin beautiful! And it lets people know we aren't going down without a fight! It makes us look touch and strong at the same time. I would recommend staying positive by doing things you love, and focusing on yourself as much as possible! To maintain good mental health, I like to write about my day and explain every single detail, and that really helps me. Just remember, "Self care isn't selfish" and my favorite quote of all that I think everybody should here is "Everything has beauty,but not everyone can see it!"

I hope you have a great day, and I hope this helps! 

Keep shining and being amazing! 💖

Thanks Maddie for the lovely words so positive!! I have a daily journal so will keep using it. I hope you have a great weekend.

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Merry Berry Newbie
Merry Berry
Posted
On 1/11/2023 at 7:18 PM, trents said:

This is true. How confident are you that you have achieved a truly gluten free state? "I have already taken steps to remove gluten" sounds like it is a work in progress.

Yes, it's still early stages. A bit of trial and error but I am going to stop having any processed food and cook from scratch then see what happens. Today hasn't been too bad so onwards and upwards!! 😁 

trents Grand Master
trents
Posted
32 minutes ago, Merry Berry said:

Thanks Maddie for the lovely words so positive!! I have a daily journal so will keep using it. I hope you have a great weekend.

This might be helpful:

 

Maddie6332 Enthusiast
Maddie6332
Posted
58 minutes ago, Merry Berry said:

Thanks Maddie for the lovely words so positive!! I have a daily journal so will keep using it. I hope you have a great weekend.

Thank you so much! You too! 🤗

Maddie6332 Enthusiast
Maddie6332
Posted
56 minutes ago, Merry Berry said:

Yes, it's still early stages. A bit of trial and error but I am going to stop having any processed food and cook from scratch then see what happens. Today hasn't been too bad so onwards and upwards!! 😁 

I think it's really cool (and a GREAT idea) that you are going to stop eating any processed food. I also think that cooking food from scratch is not only 10X better, but it's also triple the fun. One reason is YOU get to make it and you know exactly what you did, two is you get to have bragging rights telling everyone you made something DELICIOUS.🍲😏 You get to say"I made that!"or "Do you like it? Oh you do? Yeah, that's because I MADE IT!!" Lastly, it;s the best experience to make your own food, and then eat it, and think "Wow! I made this..." and you get to savor the flavors. It is WORLDS. BEST. THING.

Enjoy!!

Lori Horwitz Newbie
Lori Horwitz
Posted

I was diagnosed with DH and Celiac by a Dermatologist  just a few months ago (I am in my 60's!). The dermatologist biopsied what felt and looked like a spider bite that hadn't gone away after 8 weeks (on my panty line).  Next came a rash on both elbows. The DH became intensely painful, with burning and itching, as I had to continue consuming gluten until the endoscopy appointment to confirm the Celiac, in order to avoid a false negative.  The rash slowly disappeared after I went gluten free.  An itchy rash just reappeared  this week on one elbow and I have not had any gluten.  This is the first I have heard about iodine, which could be the culprit.  I had fish sauce in a Japanese soup, and after reading this I guess there are more ingredients I need to be cautious about.  Thank you all so much for sharing. I am learning so much from your posts.

barbmoody Newbie
barbmoody
Posted

Make sure when you eat Japanese that there's no soy sauce in the food or any cross contamination caused by shared utensils that have touched soy sauce.  No malt either (malted vinegar).  

Best,

Barb

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trents Grand Master
trents
Posted
1 hour ago, Lori Horwitz said:

I was diagnosed with DH and Celiac by a Dermatologist  just a few months ago (I am in my 60's!). The dermatologist biopsied what felt and looked like a spider bite that hadn't gone away after 8 weeks (on my panty line).  Next came a rash on both elbows. The DH became intensely painful, with burning and itching, as I had to continue consuming gluten until the endoscopy appointment to confirm the Celiac, in order to avoid a false negative.  The rash slowly disappeared after I went gluten free.  An itchy rash just reappeared  this week on one elbow and I have not had any gluten.  This is the first I have heard about iodine, which could be the culprit.  I had fish sauce in a Japanese soup, and after reading this I guess there are more ingredients I need to be cautious about.  Thank you all so much for sharing. I am learning so much from your posts.

There usually is a learning curve in truly attaining a gluten-free lifestyle and it can take a couple of years to get a handle on the many places gluten is found that you would never expect. Perhaps this will help:

 

Lori Horwitz Newbie
Lori Horwitz
Posted
19 hours ago, barbmoody said:

Make sure when you eat Japanese that there's no soy sauce in the food or any cross contamination caused by shared utensils that have touched soy sauce.  No malt either (malted vinegar).  

Best,

Barb

Yes! It was made without soy sauce. I use coconut amino acids and tamarind (sp) now. I carry these non soy sauce items with me if I go out to get sashimi. I guess I have to be concerned with the iodine in the fish? Ugh!

Lori Horwitz Newbie
Lori Horwitz
Posted
50 minutes ago, trents said:

There usually is a learning curve in truly attaining a gluten-free lifestyle and it can take a couple of years to get a handle on the many places gluten is found that you would never expect. Perhaps this will help:

 

Thank you!

Wheatwacked Veteran
Wheatwacked
Posted

Tamari Sauce is soy sauce made without wheat. Funny that wheat is first in the ingrediant list of most soy sauces.

MiriamW Contributor
MiriamW
Posted
On 1/9/2023 at 11:41 PM, Liquid lunch said:

@Ariettiim sure this mixture will help..

1 part neem essential oil

2 parts tea tree essential oil

3 parts olive oil

It’ll get rid of those in no time, make sure the essential oils are not synthetic.

@Liquid lunchthe 2 parts of tea tree essential oil sound very strong to me. So if you have a teaspoon of neem oil would you add 2 teaspoons of tea tree oil? Essential oils like tea tree are normally measured in drops.

Liquid lunch Enthusiast
Liquid lunch
Posted
18 minutes ago, MiriamW said:

@Liquid lunchthe 2 parts of tea tree essential oil sound very strong to me. So if you have a teaspoon of neem oil would you add 2 teaspoons of tea tree oil? Essential oils like tea tree are normally measured in drops.

Thanks for pointing this out Miriam. I’ve just checked and the maximum dilution for tea tree is 15%, I’ve been using 33%!

Neem can be used neat but it smells terrible, I put the extra tea tree in to mask the smell of the neem and haven’t had any issues but I’ll try 15% in the next batch and see if it’s as effective.

I also use neat lavender essential oil on burns which has a 10% maximum dilution rate but works better neat, completely stops any blistering if applied immediately. Probably not a good idea to do this regularly.

 

Liquid lunch Enthusiast
Liquid lunch
Posted

@MiriamW I just found this re. dilution, opinion seems to have shifted since I looked it up, I’ll start diluting the lavender too.

When I trained 10 years ago, I was taught that it was generally accepted to be safe to use lavender and tea tree essential oils undiluted on the skin. A drop applied neat to a specific area such as a spot, cut, burn, insect bite or a graze was considered appropriate as an anti-septic, to ease pain & inflammation and help the area to heal more effectively and efficiently. It’s something that I’ve practised myself and also advised clients to do so, but after investigating essential oil safety more deeply recently, my view on this has now changed.

MiriamW Contributor
MiriamW
Posted

@Liquid lunchyes I personally use a neat drop of lavender oil too when needed but for some people it can be too strong. I just thought that your 'recipe' for healing skin oil sounded excessive - I would say a few drops of essential oil rather than 2 parts.... 

Liquid lunch Enthusiast
Liquid lunch
Posted

@MiriamW you might be right but it is amazingly effective at that concentration. Hopefully it’ll still work at a lower ratio, it makes sense to use the minimum effective dose so I’ll do some experimenting.

MiriamW Contributor
MiriamW
Posted

@Liquid lunchat the end of the day you know the best what feels right for you. I was thinking more of those that haven't tried it yet and thought it might be sensible to start  gently....

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