Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Re: Sore Throat As A First Sign Of Glutening


Tweaton

Recommended Posts

Tweaton Newbie

I wanted to know if gluten could be causing my chronic sore throat, which I have been living with for four or five years now. I Googled it and found this article "Sore Throat As A First Sign Of Glutening". I've always tried to eat healthy and have preferred whole wheat bread, thinking it was healthier than white bread. I've never had any reason to believe that I might have Celiac disease; heck, I never even knew what it was until now! I just thought I might be having a reaction to so much gluten over the last 50 years. I'm planning to go on an elimination diet and you can be sure I'll be looking for a reaction to gluten. The comments that I read described exactly what I have been experiencing. Thank you! Tom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Food for Life



Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.


trents Grand Master
(edited)
26 minutes ago, Tweaton said:

I wanted to know if gluten could be causing my chronic sore throat, which I have been living with for four or five years now. I Googled it and found this article "Sore Throat As A First Sign Of Glutening". I've always tried to eat healthy and have preferred whole wheat bread, thinking it was healthier than white bread. I've never had any reason to believe that I might have Celiac disease; heck, I never even knew what it was until now! I just thought I might be having a reaction to so much gluten over the last 50 years. I'm planning to go on an elimination diet and you can be sure I'll be looking for a reaction to gluten. The comments that I read described exactly what I have been experiencing. Thank you! Tom

Welcome to the forum, Tweaton!

Can you provide a link to that article you referenced please?

My first reaction to the information you provided about your sore throat experience is that it sounds like an allergic reaction, or possibly GERD (Gastro Esophagial Reflux Disease).

 

Edited by trents
Scott Adams Grand Master

It wouldn't be a common symptom, but as @trents mentioned, if your sore throat is caused by GERD then there could be a celiac disease/gluten sensitivity connection, as there is a higher incidence of GERD in those with undiagnosed celiac disease.

You may want to look into getting a blood test for celiac disease:

 

knitty kitty Grand Master

@Tweaton,

You'll want to stay on a gluten containing diet and get testing for antibodies typical of Celiac disease.  

If you eliminate gluten, your body will quit making antibodies and you'll get a false negative.  

If you eliminate gluten now and try to reintroduce it later, you may have more severe reactions to gluten as your body launches a redoubled autoimmune response.  

Get the complete Celiac panel of blood tests now while you've been consistently having gluten in your diet for the past twelve weeks.  

Keep us posted on your journey to diagnosis!

Tweaton Newbie
On 2/8/2023 at 1:02 PM, trents said:

Welcome to the forum, Tweaton!

Can you provide a link to that article you referenced please?

My first reaction to the information you provided about your sore throat experience is that it sounds like an allergic reaction, or possibly GERD (Gastro Esophagial Reflux Disease).

 

Actually it was an earlier post on this forum. I copied the title and used it in my title for this quote. I found it by Googling (gluten sore throat congestion). I'm not sure if those are all the exact search terms but there about 90%. What got my attention were the descriptions in virtually every reply. The post has been closed, but if you can find it scroll through the replies. About a screen so down the list there's one that is identical to my symptoms; right down to the excessive mucus, with or without post nasal drip. I'm already treating for Asthma and allergies and I figure the elimination diet aught to cover Gerd. I won't see the nutritionist for a couple of weeks yet so I am considering asking my PCP about testing. Thank you all for your feedback. The more I have the better I'll be able to make an informed decision. 

Tom

Russ H Community Regular
23 hours ago, Tweaton said:

Actually it was an earlier post on this forum. I copied the title and used it in my title for this quote. I found it by Googling (gluten sore throat congestion). I'm not sure if those are all the exact search terms but there about 90%. What got my attention were the descriptions in virtually every reply. The post has been closed, but if you can find it scroll through the replies. About a screen so down the list there's one that is identical to my symptoms; right down to the excessive mucus, with or without post nasal drip. I'm already treating for Asthma and allergies and I figure the elimination diet aught to cover Gerd. I won't see the nutritionist for a couple of weeks yet so I am considering asking my PCP about testing. Thank you all for your feedback. The more I have the better I'll be able to make an informed decision. 

Tom

I used to suffer from chronic sore throat and post nasal drip. Also bad breath despite scrupulous dental hygiene. Completely went following diagnosis and strict gluten-free diet. I certainly had reflux, bloating and burping. Maybe it was reflux but my gut felt raw from my throat through to the other end. I wonder whether coeliac disease can directly affect the oesophagus.

Tweaton Newbie

Got a notice that Rus H left a reply to my post. Since this is the only reply that I see I'm assuming it's from Rus. Thank you for your comments. The odd thing is, I haven't had any serious pain in my oesophagus for I can't remember how long; it's all in my throat. I do get some serious burning in my butt from time to time. And I get spot pains around my gut that I haven't taken seriously until now. I have an appointment with a Dietician tomorrow and an annual physical next week. I think I'm going to ask if I can get tested for Celiac disease. Then in about I'll start my elimination diet. I'm feeling more confident that I'm on the right track since reading your reply. Thanks again. 

Tom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Food for Life



Celiac.com Sponsor (A8-M):
Little Northern Bakehouse


Russ H Community Regular
4 minutes ago, Tweaton said:

Got a notice that Rus H left a reply to my post. Since this is the only reply that I see I'm assuming it's from Rus. Thank you for your comments. The odd thing is, I haven't had any serious pain in my oesophagus for I can't remember how long; it's all in my throat. I do get some serious burning in my butt from time to time. And I get spot pains around my gut that I haven't taken seriously until now. I have an appointment with a Dietician tomorrow and an annual physical next week. I think I'm going to ask if I can get tested for Celiac disease. Then in about I'll start my elimination diet. I'm feeling more confident that I'm on the right track since reading your reply. Thanks again. 

Tom

It is certainly worth getting tested. In the UK, medical guidance is now moving towards testing patients with various chronic symptoms for coeliac disease. It is a relatively cheap and sensitive blood test.

I used to have a chronic sore throat, in fact my dentist commented that my throat was red during a routine check-up. This was the event that led to my eventual diagnosis.

Interestingly, the original blood test for coeliac disease was for anti-endomysial antibodies (EMA), and this is still used sometimes today. The EMA test used monkey oesophagus as a substrate to test for antibody binding. It is now known that the EMA test detects anti-tTG2 antibodies, as tTG2 is richly expressed in the oesophagus and these are better tested for directly as now happens. The fact that the oesophagus is reacting to anti-tTG2  enough to be used as a test, suggests to me that it is is also being damaged by coeliac disease just as the gut is. So perhaps some of the heartburn and discomfort associated with coeliac disease comes from this rather than reflux (leakage of gastric contents).

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    Holidaily Brewing Co.
    Food for Life




    Celiac.com Sponsors (A17-M):

    Tierra Farm



  • Recent Activity

    1. - Scott Adams replied to Lotte18's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      New painkiller, Journavx

    2. - Scott Adams replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Confused about my results

    3. - Lotte18 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      New painkiller, Journavx

    4. - Lotte18 replied to FayeBr's topic in Coping with Celiac Disease
      4

      Corn reaction and ataxia

    5. - Scott Adams replied to NightRaven92's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      I am wondering if my symptoms are Celiac Disease related..


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      129,630
    • Most Online (within 30 mins)
      7,748

    ZJT
    Newest Member
    ZJT
    Joined

  • Celiac.com Sponsor (A20):
    GliadinX


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Daura Damm



  • Upcoming Events

  • Posts

    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/  When I looked this one up I didn't see any gluten ingredients.
    • Scott Adams
      Your situation is actually more common than many realize, and while confusing, there are logical explanations for your test results. The key points are that your biopsy showing villous blunting and increased lymphocytes does indicate intestinal damage typically seen in celiac disease, despite your negative blood tests. This phenomenon is known as seronegative celiac disease, which affects about 10% of celiac patients. Your partial HLA-DQ2 genetic result doesn't rule out celiac either, as a small percentage of celiac patients don't have the complete genetic markers. The fact that you've responded so dramatically to a gluten-free diet is another strong indicator that this is likely celiac disease rather than NCGS, since NCGS doesn't usually cause intestinal damage. Your doctor might consider ordering additional tests like IgG-based celiac tests (tTG-IgG or DGP-IgG), or repeating the endoscopy after you've been gluten-free for a longer period to check for healing. Many celiac specialists would actually diagnose you with celiac disease based on your biopsy results combined with your positive response to the gluten-free diet, regardless of the blood test results. It may be worth consulting with a gastroenterologist who specializes in celiac disease for further evaluation. Your experience highlights why celiac disease can be so challenging to diagnose and why doctors need to look at the whole clinical picture rather than relying on any single test.
    • Lotte18
      Hi all, I have to have gum surgery tomorrow and was wondering if I should ask for this new drug, Journavx, instead of Vicodin.  I tried looking it up online and got, Not gluten free.  There is no gluten in the ingredients for this drug.  ????  Has anyone else had experience with Journavx?  Advice?   Many thanks, Charlotte
    • Lotte18
      Hi Faye,  Sorry I didn't see your post sooner.  I suffered from ataxia as well.  None of my drs. thought it was dairy.  They were wrong.  Turns out lactose intolerance was the cause.  Pancreas just isn't making the enzymes like it used to.  I now drink lactose free milk for the calcium and eat lactose free yogurt by Green Valley, when I can find it.  My ataxia problems vanished.  Hope this helps.
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...