Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible celiac disease

Aged31
 Share

Recommended Posts

Aged31 Newbie
Aged31
Posted

I’m waiting for a call tomorrow with gp but over the last few weeks I’ve been feeling so rough with really bad tummy pain cramps bloating some weight loss and a lot of yellow diarrhoea is this a sign of celiac disease?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, Aged31!

Those are classic signs of celiac disease but could also be cause by other medical issues. If you GP doesn't come up with the idea on his/her own, make sure you ask to be tested for celiac disease as let me assure you, it is not on the radar of many GPs.

Aged31 Newbie
Aged31
Posted
  • Author
Just now, trents said:

Welcome to the forum, Aged31!

Those are classic signs of celiac disease but could also be cause by other medical issues. If you GP doesn't come up with the idea on his/her own, make sure you ask to be tested for celiac disease as let me assure you, it is not on the radar of many GPs.

Thank you, does my diet need to b different before going for a blood test? Or is it best to stay and carry on eating what I am until I get a blood test?

trents Grand Master
trents
Posted

Definitely continue to eat regular amounts of wheat/gluten foods up to the day of the blood draw. Beginning a gluten-free diet before testing will sabotage the tests. If you are positive for celiac disease from the blood antibody test then the physician may likely refer you to a gastro doc for an endoscopy with biopsy of the small bowel villous lining. Ideally, you should remain on regular amounts of gluten up until that procedure as well but if that is physically impossible because of the distress being caused by gluten and the endoscopy/biopsy can't be scheduled for months, then go on a gluten free diet and resume regular amounts of gluten at least two weeks before the endoscopy. The Mayo Clinic guidelines for the pretest gluten challenge is two slices of wheat bread (or the gluten eqivalent) for 6-8 weeks leading up to the blood antibody testing and for two weeks leading up to the endoscopy/biopsy.

Aged31 Newbie
Aged31
Posted
  • Author
1 hour ago, trents said:

Definitely continue to eat regular amounts of wheat/gluten foods up to the day of the blood draw. Beginning a gluten-free diet before testing will sabotage the tests. If you are positive for celiac disease from the blood antibody test then the physician may likely refer you to a gastro doc for an endoscopy with biopsy of the small bowel villous lining. Ideally, you should remain on regular amounts of gluten up until that procedure as well but if that is physically impossible because of the distress being caused by gluten and the endoscopy/biopsy can't be scheduled for months, then go on a gluten free diet and resume regular amounts of gluten at least two weeks before the endoscopy. The Mayo Clinic guidelines for the pretest gluten challenge is two slices of wheat bread (or the gluten eqivalent) for 6-8 weeks leading up to the blood antibody testing and for two weeks leading up to the endoscopy/biopsy.

Thank you x

Raptorsgal Enthusiast
Raptorsgal
Posted

Aged31 did you have a blood test was your ttg high 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,164
    • Most Online (within 30 mins)
      7,748
    VGL
    Newest Member
    VGL
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...