24 /48 hour fever, vomitting and sweating galore

[trents]

Mathew, I think the cold sweats comes with vomiting caused by anything, not just gluten. I think that is natural.

[Mathew]

13 hours ago, CMCM said:

For much of my life, despite having a mom with very severe celiac disease (she found out what she had when I was 17), I always thought my digestive issues were due to dairy.  I had dairy problems from infancy, and have not really liked to eat much dairy my entire life, I instinctively avoided it.  My mom was violently sick any time she got an accidental exposure, and I remember had horribly sick she had been when I was young, before her diagnosis.  I wasn't like that, so I figured I had escaped the celiac curse and my problem was dairy.  I didn't get diagnosed celiac until 2009 when I was 60, but I also tested (Enterolab) highly sensitive to the dairy protein casein.  I was strictly gluten-free from about 2009 to 2011, and also mostly eliminated dairy as well, and I do best with of course no gluten and also no dairy.  So I stayed "mostly" gluten-free since 2011, but got  lax with eating gluten in about 2019 to 2020, and I got increasingly sicker with odd things I won't go into here, but I got it together again in early 2021 and have been strictly gluten-free for  over 2 years now.  As for dairy, I mostly avoid it but found after a year of no dairy that I could allow back a tiny bit....for me, that's in my daily cappuccino (I have a machine to make my own) in which I steam whip half and half to put in the coffee.  I measured to find out how much is in each daily cup, and it's 2 Tablespoons worth.  I do fine with that although occasionally for no reason it will give me a stomach ache.  If I have more than that, I'll have bloating and sometimes a stomach ache and worse.  I couldn't really tolerate 2 cappuccinos in one day, for example.  Ice cream kills me, also yogurt.   So I guess I'd say I can tolerate very small amounts of dairy but never very much.  Reacting to the casein is different from reacting to the lactose part of milk, apparently, at least for me that's true.

Thank you for this i appreciate it. I love dairy and eat it a lot, always have and never normally any issues but im not ruling it out. I had a brew yest with milk and was fine. Im on day 6 of a bad glutening only just managed to get down some scram eggs and beans. Water staying down tho, dyoraytes to replace salts. I need to get an app witj GI asap.

9 hours ago, trents said:

Mathew, I think the cold sweats comes with vomiting caused by anything, not just gluten. I think that is natural.

Thank you Trent, appreciate the reassurance 🙏 

[Scott Adams]

I also could not tolerate cow's milk when I was diagnosed, but after a couple of years could.

[Mathew]

13 hours ago, SkDubs said:

I get VIOLENT vomiting and diarrhea. The cold sweats are brain-numbing. The nausea is unbearable. Lasts about 20 hours. Checked myself into ER last time it happened and I was in sepsis! It’s happened 6 times in last two years. I am still waiting on final diagnosis but all signs are pointing to celiac currently. It is the worst thing I have ever experienced. I thought I was going to die. 

Have u been tested? Im going straight to e.r next time. This has lasted nearly 5 days

[trents]

3 hours ago, Mathew said:

Have u been tested? Im going straight to e.r next time. This has lasted nearly 5 days

Sepsis? That is the body's extreme response to an infection that has gotten into the blood and gone systemic. What was the source of this infection? I assume it was a GI infection of some kind?

[shadycharacter]

11 hours ago, Mathew said:

Thank you for this i appreciate it. I love dairy and eat it a lot, always have and never normally any issues but im not ruling it out. I had a brew yest with milk and was fine. Im on day 6 of a bad glutening only just managed to get down some scram eggs and beans. Water staying down tho, dyoraytes to replace salts. I need to get an app witj GI asap.

 

When was last time you had your b12 checked? 

Vitamin B12 deficiency is common. It is known to cause a wide spectrum of neurological syndromes, including autonomic dysfunction. Three cases are discussed here in which drenching night sweats were thought to be caused by vitamin B12 deficiency. All three responded dramatically to vitamin B12 therapy.

https://pubmed.ncbi.nlm.nih.gov/25281396/

 

[Mathew]

58 minutes ago, shadycharacter said:

When was last time you had your b12 checked? 

Vitamin B12 deficiency is common. It is known to cause a wide spectrum of neurological syndromes, including autonomic dysfunction. Three cases are discussed here in which drenching night sweats were thought to be caused by vitamin B12 deficiency. All three responded dramatically to vitamin B12 therapy.

https://pubmed.ncbi.nlm.nih.gov/25281396/

 

Wow thank u i have seen this before, im going to get it checked asap. In the meantime im going to get some b12 in my system, sounds likely didn't it pal? I sweat every night whether im sick or not, i put it down to my ssris

[trents]

1 hour ago, Mathew said:

Wow thank u i have seen this before, im going to get it checked asap. In the meantime im going to get some b12 in my system, sounds likely didn't it pal? I sweat every night whether im sick or not, i put it down to my ssris

Do some research on the best formulations of B12, the ones that are assimilated the best. Not all B12 supplements are created equal: https://perniciousanemia.org/b12/forms/

[Mathew]

8 hours ago, trents said:

Do some research on the best formulations of B12, the ones that are assimilated the best. Not all B12 supplements are created equal: https://perniciousanemia.org/b12/forms/

Youre a legend pal x

 

[Mathew]

Cant thank you all enough. Hope someones watching and blesses you all today. B12 organic from My Kind Organics and a trip to doctors monday to get my tests booked. 

[CarouselLady]

I feel for you, as my reaction to even a little cross contamination is an attack that acts like the worst stomach virus ever---sweats, chills, severe vomiting and diarrhea that lasts anywhere from an hour to several hours.  Twice, it was so bad that I almost called 911 due to extreme weakness, but, thankfully, it did stop.  It makes me more nervous about going to places like weddings, dinners out at new restaurants, taking road trips, etc....always concerned that I'll end up trapped in a public restroom having the attack.  Wish medical folks could come up with a miracle cure.

[Mathew]

48 minutes ago, CarouselLady said:

I feel for you, as my reaction to even a little cross contamination is an attack that acts like the worst stomach virus ever---sweats, chills, severe vomiting and diarrhea that lasts anywhere from an hour to several hours.  Twice, it was so bad that I almost called 911 due to extreme weakness, but, thankfully, it did stop.  It makes me more nervous about going to places like weddings, dinners out at new restaurants, taking road trips, etc....always concerned that I'll end up trapped in a public restroom having the attack.  Wish medical folks could come up with a miracle cure.

Aw mate i know its awful. I was just away in the highlands 8 hours from home. Spent the week shivering and throwing up, luckcily there was a log fire and unkin hot baths on hand. Worst week of my life. What do u take if anything when it happens  i have an anti sick tablet and when i can keep it down, some paracetamol. My most recent flare took nearly 5 days to recover. Maybe longer if u include the burning calf pain and numb thighe. Ive had b12 checked should get results next couple days. I wish u good luck mate

[Russ H]

9 minutes ago, Mathew said:

Aw mate i know its awful. I was just away in the highlands 8 hours from home. Spent the week shivering and throwing up, luckcily there was a log fire and unkin hot baths on hand. Worst week of my life. What do u take if anything when it happens  i have an anti sick tablet and when i can keep it down, some paracetamol. My most recent flare took nearly 5 days to recover. Maybe longer if u include the burning calf pain and numb thighe. Ive had b12 checked should get results next couple days. I wish u good luck mate

You didn't eat the haggis did you? The Jocks put anything in that - roadkill, dead climbers, asbestos.

For me, the worst part is the neurological symptoms. When I have been glutened, I get anxiety, confusion and memory problems. It comes on over a day or so and fades over several weeks. I get gastrointestinal symptoms - reflux, burping and fatty stools but no vomiting. I just cannot function. I got badly glutened a couple of times in Sweden, and it has made me very anxious about eating out. The UK is much safer than Scandinavia but still risky. I am planning a summer holiday in Italy, which is supposed to be excellent for people with coeliac disease.

[Mathew]

18 minutes ago, Russ H said:

You didn't eat the haggis did you? The Jocks put anything in that - roadkill, dead climbers, asbestos.

For me, the worst part is the neurological symptoms. When I have been glutened, I get anxiety, confusion and memory problems. It comes on over a day or so and fades over several weeks. I get gastrointestinal symptoms - reflux, burping and fatty stools but no vomiting. I just cannot function. I got badly glutened a couple of times in Sweden, and it has made me very anxious about eating out. The UK is much safer than Scandinavia but still risky. I am planning a summer holiday in Italy, which is supposed to be excellent for people with coeliac disease.

I also hear that mate. I got sick last sunday, not the one just gone. And im still woozy, tired and so angry and everyone around me. I can watch myself be a bastard. But struggle to stop. Not nice

[Scott Adams]

I used to get crazy vertigo sensations, as if I were standing on the edge of a tall building, which triggered panic attacks, and I also ended up in the ER several times before I was finally diagnosed. 

[Russ H]

I thought I was losing my mind. Pretty much back to normal now. Also, I began to get eye wobbles and had mild balance and coordination problems. I am a cyclist - I used to race when I was young. I can still do a track stand but I could feel how my balance was going. Luckily it has come back.

[Mathew]

On 2/28/2023 at 10:47 PM, Russ H said:

I thought I was losing my mind. Pretty much back to normal now. Also, I began to get eye wobbles and had mild balance and coordination problems. I am a cyclist - I used to race when I was young. I can still do a track stand but I could feel how my balance was going. Luckily it has come back.

Aw dude its really scary isnt it. Im getting my B1 tested as ive read u can get similar symptons from low B1 and its actually really serious so id suggest having that chceked. Ill let u know what doc says next week pal. Much love