Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

not sure

Denise3820
 Share

Recommended Posts

Denise3820 Newbie
Denise3820
Posted

Hi Everyone-

I am new to the board and I was just tested for Celiac...my TTAB, Iga was high however the EMA test was negative.  I have an appt with a GI on Monday, hopefully, to schedule a biopsy.  Could I still have Celiac?  My symptoms are abdominal pain, mostly in upper, greasy stools, and I have back tingling. (not sure if that is caused by my high anxiety cause I have no clue what is going on with my body)  I am an emotional wreck right now, I thought I had pancreatic cancer but my ct scan and bloodwork are negative.  I just can't think of anything else and it is driving me to levels of anxiety I have never experienced.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Your symptoms are certainly consistent with untreated celiac disease, but could you give more info about your blood tests? Did you have a tTG test done?

Can you share the exact results, with the reference ranges?

Here is more info on the blood tests:

 

Denise3820 Newbie
Denise3820
Posted
  • Author

I had the tTg-IgA done and my results were 22.2 and anything greater the 15 was considered high.  I am so new to this and I have no clue what to think.  I have gone down the Google rabbit hole (which I don't recommend) for about a month before this test result and have eaten gluten-free since Saturday.  

 

Denise3820 Newbie
Denise3820
Posted
  • Author

Sorry I missed the 22.2 U/mL 

Russ H Community Regular
Russ H
Posted

tTG2-IgA 10x or greater the standard upper limit is pretty sure to be coeliac disease. More moderate levels outside the standard range (as yours is) can be caused by coeliac disease but also other conditions such as Crohn's disease and rheumatoid arthritis. The EMA test is an old test that is relatively insensitive and course in its results due to the way it is conducted. It is now known that EMA just detects tTG2-IgA but is just less sensitive than testing for it directly, which is likely why your result was negative as your level is only just outside the standard range.

trents Grand Master
trents
Posted
(edited)
3 hours ago, Denise3820 said:

Hi Everyone-

I am new to the board and I was just tested for Celiac...my TTAB, Iga was high however the EMA test was negative.  I have an appt with a GI on Monday, hopefully, to schedule a biopsy.  Could I still have Celiac?  My symptoms are abdominal pain, mostly in upper, greasy stools, and I have back tingling. (not sure if that is caused by my high anxiety cause I have no clue what is going on with my body)  I am an emotional wreck right now, I thought I had pancreatic cancer but my ct scan and bloodwork are negative.  I just can't think of anything else and it is driving me to levels of anxiety I have never experienced.  

The EMA test is highly specific for celiac disease but it is an expensive test and is kind of a last resort of many docs. It is normal to not be positive on all celiac blood tests.

Edited by trents
TracySue Newbie
TracySue
Posted

Keep at it. It took the VA 20+ years to finally diagnose me with celiac disease. Don't give up fighting for your symptoms. I had 5 years of scopes, biopsies and negative tests until a positive result.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748
    Wilson1984
    Newest Member
    Wilson1984
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.