Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

not sure


Denise3820

Recommended Posts

Denise3820 Newbie

Hi Everyone-

I am new to the board and I was just tested for Celiac...my TTAB, Iga was high however the EMA test was negative.  I have an appt with a GI on Monday, hopefully, to schedule a biopsy.  Could I still have Celiac?  My symptoms are abdominal pain, mostly in upper, greasy stools, and I have back tingling. (not sure if that is caused by my high anxiety cause I have no clue what is going on with my body)  I am an emotional wreck right now, I thought I had pancreatic cancer but my ct scan and bloodwork are negative.  I just can't think of anything else and it is driving me to levels of anxiety I have never experienced.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Your symptoms are certainly consistent with untreated celiac disease, but could you give more info about your blood tests? Did you have a tTG test done?

Can you share the exact results, with the reference ranges?

Here is more info on the blood tests:

 

Denise3820 Newbie

I had the tTg-IgA done and my results were 22.2 and anything greater the 15 was considered high.  I am so new to this and I have no clue what to think.  I have gone down the Google rabbit hole (which I don't recommend) for about a month before this test result and have eaten gluten-free since Saturday.  

 

Denise3820 Newbie

Sorry I missed the 22.2 U/mL 

Russ H Community Regular

tTG2-IgA 10x or greater the standard upper limit is pretty sure to be coeliac disease. More moderate levels outside the standard range (as yours is) can be caused by coeliac disease but also other conditions such as Crohn's disease and rheumatoid arthritis. The EMA test is an old test that is relatively insensitive and course in its results due to the way it is conducted. It is now known that EMA just detects tTG2-IgA but is just less sensitive than testing for it directly, which is likely why your result was negative as your level is only just outside the standard range.

trents Grand Master
(edited)
3 hours ago, Denise3820 said:

Hi Everyone-

I am new to the board and I was just tested for Celiac...my TTAB, Iga was high however the EMA test was negative.  I have an appt with a GI on Monday, hopefully, to schedule a biopsy.  Could I still have Celiac?  My symptoms are abdominal pain, mostly in upper, greasy stools, and I have back tingling. (not sure if that is caused by my high anxiety cause I have no clue what is going on with my body)  I am an emotional wreck right now, I thought I had pancreatic cancer but my ct scan and bloodwork are negative.  I just can't think of anything else and it is driving me to levels of anxiety I have never experienced.  

The EMA test is highly specific for celiac disease but it is an expensive test and is kind of a last resort of many docs. It is normal to not be positive on all celiac blood tests.

Edited by trents
TracySue Newbie

Keep at it. It took the VA 20+ years to finally diagnose me with celiac disease. Don't give up fighting for your symptoms. I had 5 years of scopes, biopsies and negative tests until a positive result.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,494
    • Most Online (within 30 mins)
      7,748

    Liz1023
    Newest Member
    Liz1023
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like their most recent clinical trial just finished up on 5-22-2025.
    • Fabrizio
      Dear Scott,  please check the link https://clinicaltrials.gov/study/NCT05574010?intr=KAN-101&rank=1 What do you think about it?
    • Scott Adams
      KAN‑101 is still very much in development and being actively studied. It has not been dropped—rather, it is advancing through Phases 1 and 2, moving toward what could become the first disease‑modifying treatment for celiac disease. https://anokion.com/press_releases/anokion-announces-positive-symptom-data-from-its-phase-2-trial-evaluating-kan-101-for-the-treatment-of-celiac-disease/ 
    • knitty kitty
      Thiamine interacts with all the other B vitamins.  Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of.  The body can control which vitamins to absorb or not.  You're absorbing more and it's being transported through the blood.   It's common to have both a Thiamine and a Pyridoxine deficiency.  Keep taking the B Complex. This is why it's best to stop taking supplements for six to eight weeks before testing vitamin levels.  
    • badastronaut
      Yes I took a supplement that had B6 in it, low dosage though. I've stopped taking that. B1 doesn't affect other B vitamin levels? 
×
×
  • Create New...