Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

not sure


Denise3820

Recommended Posts

Denise3820 Newbie

Hi Everyone-

I am new to the board and I was just tested for Celiac...my TTAB, Iga was high however the EMA test was negative.  I have an appt with a GI on Monday, hopefully, to schedule a biopsy.  Could I still have Celiac?  My symptoms are abdominal pain, mostly in upper, greasy stools, and I have back tingling. (not sure if that is caused by my high anxiety cause I have no clue what is going on with my body)  I am an emotional wreck right now, I thought I had pancreatic cancer but my ct scan and bloodwork are negative.  I just can't think of anything else and it is driving me to levels of anxiety I have never experienced.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

Your symptoms are certainly consistent with untreated celiac disease, but could you give more info about your blood tests? Did you have a tTG test done?

Can you share the exact results, with the reference ranges?

Here is more info on the blood tests:

 

Denise3820 Newbie

I had the tTg-IgA done and my results were 22.2 and anything greater the 15 was considered high.  I am so new to this and I have no clue what to think.  I have gone down the Google rabbit hole (which I don't recommend) for about a month before this test result and have eaten gluten-free since Saturday.  

 

Denise3820 Newbie

Sorry I missed the 22.2 U/mL 

Russ H Community Regular

tTG2-IgA 10x or greater the standard upper limit is pretty sure to be coeliac disease. More moderate levels outside the standard range (as yours is) can be caused by coeliac disease but also other conditions such as Crohn's disease and rheumatoid arthritis. The EMA test is an old test that is relatively insensitive and course in its results due to the way it is conducted. It is now known that EMA just detects tTG2-IgA but is just less sensitive than testing for it directly, which is likely why your result was negative as your level is only just outside the standard range.

trents Grand Master
(edited)
3 hours ago, Denise3820 said:

Hi Everyone-

I am new to the board and I was just tested for Celiac...my TTAB, Iga was high however the EMA test was negative.  I have an appt with a GI on Monday, hopefully, to schedule a biopsy.  Could I still have Celiac?  My symptoms are abdominal pain, mostly in upper, greasy stools, and I have back tingling. (not sure if that is caused by my high anxiety cause I have no clue what is going on with my body)  I am an emotional wreck right now, I thought I had pancreatic cancer but my ct scan and bloodwork are negative.  I just can't think of anything else and it is driving me to levels of anxiety I have never experienced.  

The EMA test is highly specific for celiac disease but it is an expensive test and is kind of a last resort of many docs. It is normal to not be positive on all celiac blood tests.

Edited by trents
TracySue Newbie

Keep at it. It took the VA 20+ years to finally diagnose me with celiac disease. Don't give up fighting for your symptoms. I had 5 years of scopes, biopsies and negative tests until a positive result.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly Diagnosed

    2. - knitty kitty replied to Rebeccaj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      symptoms.

    3. - Rebeccaj replied to Rebeccaj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      symptoms.

    4. - knitty kitty replied to CeliacPI's topic in Related Issues & Disorders
      8

      Lymphocytic Colitis with Celiac

    5. - knitty kitty replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Finding gluten free ingredients


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,508
    • Most Online (within 30 mins)
      7,748

    Bringmesunshine
    Newest Member
    Bringmesunshine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
    • knitty kitty
      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
    • knitty kitty
      Do discuss this recent article with your doctors.  Thiamine Vitamin B 1 is important to intestinal health.  Thiamine deficiency can occur in Celiac Disease due to malabsorption.  Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms.   Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming in macrophages https://pubmed.ncbi.nlm.nih.gov/39890689/#:~:text=Our mechanistic study revealed that,necessary to protect against colitis. "Conclusion and implications: Our study provides evidence linking thiamine deficiency with proinflammatory macrophage activation and colitis aggravation, suggesting that monitoring thiamine status and adjusting thiamine intake is necessary to protect against colitis."
    • knitty kitty
      Do keep in mind that most gluten free flours are not enriched nor fortified with vitamins and minerals like gluten containing flours are required to do.   Consuming a diet high in carbohydrates without sufficient B vitamins to digest and process them into energy can lead to High Calorie Malnutrition and weight gain. Deficiency symptoms of B vitamins resemble gastrointestinal symptoms when after eating gluten.  Gastrointestinal Beriberi is a form of Thiamine deficiency.   Do talk to your doctors about supplementing with essential nutrients while on the gluten free diet, especially if you're consuming processed foods.
×
×
  • Create New...