Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There A Difference Between Intolerance And Celiac


mylady4

Recommended Posts

mylady4 Rookie

I am wondering if one can have gluten intolerance without having celiac disease?

I had a blood test which showed slightly elevated levels of what ever they check for. I then had a biopsy which did not show any damage but my doctor still wanted me to be gluten free (I was already planning on it). I beleive that I did not show any damage because I have been trying to lose weight for the past 3 years and really did not eat that many products that contained gluten and I just started having problems about 1 1/2 years ago when I started to eat gluten again. My stomach feels so much better since I stopped eating gluten and I no longer look like I am 5 months pregnant. I am not nearly as sensitive as many other but I still do try to avoid gluten and really really try hard not to intentionally eat it (which is so hard when my DH makes cookies).

Is any body else just sentitive to wheat and what can I expect for the future?

Nicole


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

from what I've read, I believe that Gluten Intolerance is the same thing as Celiac, the only difference being that Celiac is defined as total villous atrophy, which in my opinion is just waiting for severe damage before declaring that someone is truly sick.

If you are Gluten Intolerant, the treatment is exactly the same as a Celiac dx, a lifelong adherence to a strict gluten free diet. So in my mind this says it's the same thing.

If you are 100% gluten free, any damage that you may have will heal (usually) and your odds of living a healthy life return to that of the rest of the population...

Cookies are one of the easiest things to make gluten-free, and I've found that even my non gluten-free hubby likes my gluten-free cookies!

gointribal Enthusiast

I had pretty much the same question and someone posted this for me, hope it helps a little :)

What is the difference between food allergy and food intolerance?

Many people think the terms food allergy and food intolerance mean the same thing; however, they do not. A food intolerance is an adverse food-induced reaction that does not involve the immune system. Lactose intolerance is one example of a food intolerance. A person with lactose intolerance lacks an enzyme that is needed to digest milk sugar. When the person eats milk products, symptoms such as gas, bloating, and abdominal pain may occur.

A food allergy occurs when the immune system reacts to a certain food. The most common form of an immune system reaction occurs when the body creates immunoglobulin E (IgE) antibodies to the food. When these IgE antibodies react with the food, histamine and other chemicals (called mediators) cause hives, asthma, or other symptoms of an allergic reaction.

Introduction

Foods can cause a number of reactions, not all of which are allergic. Anyone can experience an adverse reaction to a food. The types of adverse reactions are as follows:

Adverse Reactions to Foods

Food Intolerance - where the immune system is not involved in the reaction

* Food poisoning

* Idiosyncratic reactions to food

* Anaphylactoid reactions (they act like anaphylaxis but there is no allergy-IgE antibody involved)

* Pharmacologic reactions

Food Allergy - when the immune system is involved in the reaction

* IgE mediated (classic allergy- tests are available) Non-IgE mediated

* Type III immune response- a serum sickness like reaction

* Type IV immune response- a contact dermatitis type reaction

Food Allergy- Facts and Figures

Food intolerance accounts for 80% of all adverse reactions to food.

Food allergy accounts for 20% of all adverse reactions to food.

Allergic reactions can be itching, swelling, rash, spreading hives, vomiting, diarrhea, breathing difficulties and in the most severe of the allergic disorders, anaphylaxis can lead to collapse and death. By definition, anaphylaxis is an allergic reaction which involves two of the body's systems (eg respiratory and gastrointestinal or skin). Anaphylactic deaths as a result of insect bites or penicillin are usually very quick - within minutes - and due to cardiac arrest, anaphylactic deaths due to food allergies are usually due to suffocation (breathing difficulties).

Food intolerance reactions can be the same as above, as well as:

skin (rashes, swelling)

airways (asthma, stuffy or runny nose, frequent colds and infections)

gastrointestinal tract (irritable bowel symptoms, colic, bloating, diarrhea, vomiting, frequent mouth ulcers, reflux, bedwetting, 'sneaky poos', 'sticky poos')

central nervous system (migraines, headaches, anxiety, depression, lethargy, impairment of memory and concentration, panic attacks, irritability, restlessness, inattention, sleep disturbance, restless legs, moodswings, PMT).

Symptoms of food intolerance can come and go and change throughout life.

mylady4 Rookie

Thanks for the reply. I am going to try the cookies this weekend (1/2 a batch though). I am trying to lose about 25 pounds so cookies are not really in the picture but I would like to try it. I am eating gluten free, the bloated feeling is for the birds and I do not want to do any damage.

Nicole

mommida Enthusiast

When I do any gluten free baking, I double the batch and freeze portion sized containers. I feel that cuts down on overeating/ binging tendencies for dieters.

Laura

2Boys4Me Enthusiast
from what I've read, I believe that Gluten Intolerance is the same thing as Celiac, the only difference being that Celiac is defined as total villous atrophy, which in my opinion is just waiting for severe damage before declaring that someone is truly sick.

Isn't Celiac villous atrophy of any kind, not just total villous atrophy? Ty's biopsy indicated sections with normal villi and others with "severely blunted villi consistent with Celiac Disease", which I took to mean he was diagnosed reasonably quickly. Well, quickly enough that he didn't have total villous atrophy.

Meanwhile, there is a teacher at Ty's school who I haven't talked with too much, but she says she's gluten intolerant, but not Celiac. She doesn't eat gluten at all, and was over the moon when Ty took her some of his gluten-free birthday cake. She gave him a thank you card and a Glutino bar when she returned the container and mentioned how when the staff have sandwiches, cookies and stuff sent in for meetings she never gets to have any. Too bad we're on spring break right now, I'm trying to make a gluten-free Black Forest cake for my husband's birthday today.

Mommida...good call on the freezing in small container. I do that too. 2 muffins per zip bag, and several small 2 muffin bags in a bigger freezer bag. Cookies just go in loose, then he can grab a handful. (Which for him is two cookies.)

Guest nini
Isn't Celiac villous atrophy of any kind, not just total villous atrophy? Ty's biopsy indicated sections with normal villi and others with "severely blunted villi consistent with Celiac Disease", which I took to mean he was diagnosed reasonably quickly. Well, quickly enough that he didn't have total villous atrophy.

yes, that's kind of the point I was trying to make... can't quite make my thoughts clear on here sometimes! A lot of times the damage can be missed in a biopsy if the Dr. doesn't take enough samples or takes the samples from an area that isn't damaged yet... which is why I say that Celiac and Gluten Intolerance are the same thing...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CMCM Rising Star
yes, that's kind of the point I was trying to make... can't quite make my thoughts clear on here sometimes! A lot of times the damage can be missed in a biopsy if the Dr. doesn't take enough samples or takes the samples from an area that isn't damaged yet... which is why I say that Celiac and Gluten Intolerance are the same thing...

I guess the question would be: Does all celiac disease start as gluten intolerance? And what if you don't have the celiac gene but you do have the gluten sensitivity one? And using myself as an example, I have both a celiac gene and a gluten sensitive one....which gene is influencing things, or are they both active? This whole area of understanding is very murky.... :unsure:

gfp Enthusiast

[qfgfg

darlindeb25 Collaborator

Full blown celiacs disease is the worse case scenario--it starts as a gluten insensitivity, then grows to an intolerance and if left untreated, becomes full blown celiacs disease.

True, there is a difference between intolerances and allergies. BUT, they are both an autoimmune reaction, just 2 different types of reactions. A Celiacs autoimmune systems attacks itself because of gluten, where in a person with an allergy, the autoimmune system attacks in a different manner, the immune system reaction occurs when the body creates immunoglobulin E (IgE) antibodies to the food. Both very dangerous, the allergy instantaneously and the intolerance much slower.

Nevertheless, if you are gluten sensitive, then you must become gluten free. It's like bee stings. If you react to a bee sting with nasty swelling, each reaction will get worse over the years until you become allergic to the sting. If you are gluten sensitive, in time you will be intolerant and then you will eventually have total villous atrophy, which is then called celiacs disease. Very fine line--I think any of us that are gluten intolerant are celiacs. Who needs a definition, we just need to all be healthy again. Deb

mylady4 Rookie

Thanks for all of the info. With all of the talk about horrible doctors around I am so glad that I have two good ones. I was shocked when someone said that their doctor told them in was a child's disease. How horrible. I have come to terms with this.

Nicole

Susan123 Rookie
I guess the question would be: Does all celiac disease start as gluten intolerance? And what if you don't have the celiac gene but you do have the gluten sensitivity one? And using myself as an example, I have both a celiac gene and a gluten sensitive one....which gene is influencing things, or are they both active? This whole area of understanding is very murky.... :unsure:

Which gene is the gluten sensitivity one and which one is the celiace one?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.