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When will the Diarrhea stop??


DeeDee95

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DeeDee95 Newbie

Hi y'all.

I became gluten sensitive after my son was born, not Celiac though. Eliminating gluten did the trick at the time, but I could always ingest a little as a treat. A dessert here and there usually. I lived fine being 'almost' gluten free for 16 years.

Then I got Covid and my small intestine went bananas. Everything bothered me it seemed, but I had weeks of feeling fine so I didn't think anything of it. In June, I treated myself to a gluten dessert as I always had and had diarrhea for days with everything accept gluten free bread, bananas, berries, boiled chicken, low fat fish and some cooked vegetables. Dairy, sugar, fat all seem to set it off.

My stool was tested - no parasites, viruses, toxins, nothing. Calprotectin was low, so fine. But Pancreatic Elastase was slightly low at 187. 

My doctor thinks Covid may have prompted the autoimmune disease of Celiac to come out. (Two members of my family had it.) Of course, biopsy is the only thing that will confirm it and I can't get schedule for that for two months. (sigh)

What should I do/eat to make the diarrhea stop?? I've even stopped eating dairy and no change. It's been six weeks and doesn't seem to be letting up.

Thank you all so much for your time!!

Love and healing bellies,

Dee

 


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plumbago Experienced

While you're still symptomatic and hopefully while you're still eating gluten, go ahead and get the complete Celiac (blood test) panel, and then you can think about discontinuing gluten to resolve the diarrhea.

trents Grand Master

Yes, you must be eating normal amounts of gluten (2 slices of wheat bread or the gluten equivalent) daily starting now and continuing up until the day of the blood draw. If discontinuing dairy didn't help, you might as well go back to it. Dairy is a potent source of nutrition.

Have you tried Imodium for the D?

Wheatwacked Veteran

Choline supplements will help your digestion.  It is essential to fat digestion, is absorbed in the small intestine (Celiac Malabsorption Syndrome) Less than 10% of us eat even the minimum daily recommended amount.  Best dietary source is liver, eggs, steak.  Though we do make some indogenously, it is not sufficient.  The RDA can be reached by 3 eggs a day, or 10 cups of cooked brocolli a day.  

1 hour ago, DeeDee95 said:

Dairy, sugar, fat all seem to set it off.

"Steatorrhea occurs when the digestive system is unable to absorb dietary fats. Instead, these fats pass through the intestinal tract with waste products. The stools tend to be oily, large, pale, very foul-smelling, and often float in toilet water... https://badgut.org/information-centre/a-z-digestive-topics/pancreatic-exocrine-insufficiency/"

Choline is a fat emulsifier and reduces the surface tension in fat and bile. Choline is one of the salts you will see in healthy bile which allows the body to breakdown fat into fatty acids for the building of the brain, supplying cell membranes, and dozens of critical processes of the body. It also breaks down the plaquing that you see from toxic buildup in the brain causing amyloid plaque. We are again back to healthy bile as the universal detergent and crucial element for a healthy nervous system. CHOLINE - THE MOST IMPORTANT NUTRIENT OF THE BODY

With the Covid, get your vitamin D plasma tested and raise it.  It may take high dose vitamin D supplement to get your immune system back in control.  Vitamin D is like the internet, it connects to everything.  It took 6 years at 10,000 IU a day to get my plasma up to 80 ng/ml (200 nmol/L) homeostasis level .  It varies with season according to your uv exposure, but a "full tank" is 80 ng/ml.  At 29 ng/ml (72 nmol/L) you are running on fumes. Might not make it home.

"Vitamin D can modulate the innate and adaptive immune responses. Deficiency in vitamin D is associated with increased autoimmunity as well as an increased susceptibility to infection. Vitamin D and the Immune System"

 

  • 2 weeks later...
Taradaktull Newbie
On 7/17/2023 at 3:42 PM, DeeDee95 said:

Hi y'all.

I became gluten sensitive after my son was born, not Celiac though. Eliminating gluten did the trick at the time, but I could always ingest a little as a treat. A dessert here and there usually. I lived fine being 'almost' gluten free for 16 years.

Then I got Covid and my small intestine went bananas. Everything bothered me it seemed, but I had weeks of feeling fine so I didn't think anything of it. In June, I treated myself to a gluten dessert as I always had and had diarrhea for days with everything accept gluten free bread, bananas, berries, boiled chicken, low fat fish and some cooked vegetables. Dairy, sugar, fat all seem to set it off.

My stool was tested - no parasites, viruses, toxins, nothing. Calprotectin was low, so fine. But Pancreatic Elastase was slightly low at 187. 

My doctor thinks Covid may have prompted the autoimmune disease of Celiac to come out. (Two members of my family had it.) Of course, biopsy is the only thing that will confirm it and I can't get schedule for that for two months. (sigh)

What should I do/eat to make the diarrhea stop?? I've even stopped eating dairy and no change. It's been six weeks and doesn't seem to be letting up.

Thank you all so much for your time!!

Love and healing bellies,

Dee

 

Hi! I started having diarrhea 2 months after going gluten free. I eliminated dairy and that helped but didn’t completely solve the problem. It turns out I am now also intolerant of nightshades: tomatoes, peppers, eggplant, potatoes. When I don’t eat either dairy or nightshades, the diarrhea clears up. Keep a food diary and pay attention to the correlation with the digestive issues. Good luck!

knitty kitty Grand Master

@DeeDee95,

How are you doing?

Covid and other illnesses can cause one to use up lots of their vitamin stores to fight the infection.  This means we can become depleted in B vitamins quickly.  Deficiencies in several B vitamins can show up as diarrhea.  B12 Cobalamine, Thiamine B1, and Niacin B3 or Tryptophan.  

Since you've been gluten free for such a long time, have you been supplementing with vitamins and minerals?  Have you tried taking a B Complex supplement to see if symptoms improve?

Hope you're doing better!

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    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
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    • SamAlvi
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