certified gluten free oats and what do you folks eat for breakfast?

[Gina C]

Hello everyone. I am new to the forum but have had Celiac for 7 years now. My problem now is I have been diagnosed with milk protein allergy F PIES. I am also allergic to all nuts.

So my choices for breakfast are really, really narrowed down now! OMG! I have no idea what to eat. I just tried Zego oats and thought they would be okay, but am not so sure. I just read an article that we cannot trust any oats now for purity. So what does everyone eat for breakfast? So many companies as you all know claim gluten free but it is the facilities that are the problem as well. I work every day so don't have time in the morning to prepare breakfast. My go to was yogurt or cottage cheese with fruit. But now I cannot eat that! I am besides myself, and at a loss for ideas. I used to eat gluten-free Harvest oats, but reacted to them a few years ago. I am also going to try a new brand to me called 88 Acres. They have a purity protocol also.

Any thoughts or suggestions are greatly appreciated!

[trents]

Welcome to the forum, Gina C!

First, were you aware that cross contamination of oats with other gluten-containing grains is not the only problem with oats in the celiac community? About 10% of celiacs react to the oat protein, "avenin" as they would gluten. The two are similar enough in structure that some celiacs have immune systems that identify avenin as gluten. So, your issue with oats may not be cross contamination. If that is the case, finding purer oat products with stricter "gluten free" standards won't help.

I have a three day rotation of breakfast hot cereals, one of them being gluten-free oats. The other two days are gluten-free buckwheat and Bob's Red Mill "Mighty Tasty Hot Cereal" which is a mixture of several grains, none of which are oats. All three mornings I add a scoop of gluten-free flax meal which adds nutrients and fiber. In addition to the hot cereal, I have a poached egg and two strips of bacon, a glass of milk with protein powder added. Yes, I am a big breakfast eater!

So, my suggestion for you is to substitute some other oat free grain products for the oatmeal and for protein, cook some eggs and bacon. Soy milk can be substituted for cow's milk and has essentially the same nutritional analysis. You might also add to the soy milk some powdered pea-based protein. It will take longer in the morning to fix all this so it would mean getting up a little earlier to make more time for it.

By the way, it is very common for celiacs to develop intolerance to other non-gluten foods over time. Our immune systems are dysfunctional to begin with.

[Gina C]

Thanks so much Trents for your reply. What gluten free buckwheat brands do you trust? Also I have heard of different things about Bob' Red Mill products, people reacting to them, so I have never tried them. I try to stay away from soy in general. My problem is "made in a facility that also produces nuts, peanuts". So I have to be extra careful with not just the gluten free aspect.

[Gina C]

Also trent,...thanks for the heads up on the avenin. I did not know about that at all! Then no doubt that must the issue as well. Because I just tasted the Zego oats and the muesli only having a 1/4 tsp of each and my tongue is burning and tingling like an allergic reaction. Back to the drawing board! 

I get up at 5 am as it is, and I am out the door at 6am, that is why I was looking for something more portable for breakfast or that I can eat at work. Weekends are different, I can and o make eggs.

[trents]

Personally, I have had no issues with Bob's Red Mill gluten-free products. I have used their Buchwheat groats for a long time but I have also used Anthony's buckwheat groats without issue and Anthony's is more economical because it comes in larger sizes: https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B00QKXVAN2/ref=sr_1_2_pp?crid=2466LMLPDP7O1&keywords=anthony's%2Bbuckwheat%2Bgroats&qid=1691337959&sprefix=Anthony's%2Bbuck%2Caps%2C176&sr=8-2&th=1 Anthony's is not always available, however. My only caution would be with regard to buckwheat products coming from overseas like Ukraine or India where there might be a question mark about their testing standards.

We buy Soy milk in bulk packaging at Costco. It isn't labeled gluten free but neither does it say anything about being made in a facility where "wheat, nuts, etc." are also processed. I haven't had a problem with it. But I must say I would not put myself in the super sensitive category of celiacs so I may be able to get by better than others with a little CC now and then.

Another thing you might look at is aged and fermented dairy products where the protein structure is altered or partially altered by lacto bacillus microbes. People often find they can tolerate aged/fermented dairy products much better than plain milk.

4 minutes ago, Gina C said:

Also trent,...thanks for the heads up on the avenin. I did not know about that at all! Then no doubt that must the issue as well. Because I just tasted the Zego oats and the muesli only having a 1/4 tsp of each and my tongue is burning and tingling like an allergic reaction. Back to the drawing board! 

I get up at 5 am as it is, and I am out the door at 6am, that is why I was looking for something more portable for breakfast or that I can eat at work. Weekends are different, I can and o make eggs.

Cook up some hard boiled eggs ahead of time and take them with you to work.

[trents]

Lactose intolerance can also be an issue with dairy for many celiacs. However, that often improves as they experience healing in their guts.

[Gina C]

Hi Trent thanks for the recommendations about Anthony's. I did see them in my search. So I don't have lactose intolerance, I have a true milk protein allergy. I have been allergy tested for it, so there is no hope in it getting better. It is T cell mediated immune response.

[Gina C]

Also for others following this thread, Bobs' Red Mill is likely gluten free but it also produced in a facility that has other allergens. So tread carefully if you are like me and have multiple food allergies.

[trents]

Gina,

You might just give Bob's Red Mill a call and ask them if the gluten-free products you are interested in are in fact processed in the same facility or on the same equipment as nuts and your other allergen concerns. Might be a good idea to fact check it instead of relying on forum heresay.

[knitty kitty]

@Gina C,

Welcome to the forum!

I had to totally do away with the mindset that breakfast consists of hot cereal, bacon and eggs.  

I react to Casein in dairy, and to buckwheat.  I have sensitivity to eggs sometimes, and cannot eat bacon.  

I've found it helpful to have a small crock pot of stew cooking overnight.  Veggies and meat stew is a great breakfast!  Have lunch or dinner menu selections for breakfast.  As long as it's gluten free, have what you like to eat.

I found the Autoimmune Protocol Diet helpful in the early stages of healing.  It's basically meat and veggies, with some fruit.  No grains, no legumes, no dairy, no nightshades.  These have irritating plant lectins that can cause continuing inflammation in the gastrointestinal tract.  

Hope this helps!

[Gina C]

Th

Quote

Thanks for the welcome Kitty. Yes  have been doing that in a way. Eating a tuna fish sandwich or a piece of leftover chicken breast, tureky sandwich etc. I am a foodie LOL! I truly miss my dairy! Thanks for the suggestions and also for the Autoimmune Protocol Diet. I will look this up. Or is there a specific website for this? My gut is totally healed since I have stopped eating and drinking dairy for 2 months now. No more abdominal pain etc. Every day starts out normal. I have been off gluten for 7 years. I even stopped my probiotics which stated they were free of allergens until I called the company and they stated "oh yes, but our facility has allergens" ! That was never stated on the bottle!

However since Trents mentioned about the avenin in gluten-free oats could be a problem for some folks, I think I am one of them! Ugh! Just another allergy to add to my list! . I am going to have that blood test for oat protein today and see what the result is.

 

[Gina C]

8 hours ago, trents said:

Gina,

You might just give Bob's Red Mill a call and ask them if the gluten-free products you are interested in are in fact processed in the same facility or on the same equipment as nuts and your other allergen concerns. Might be a good idea to fact check it instead of relying on forum heresay.

Thanks Trents, I will. Their package does not mention it.

[knitty kitty]

Here's some information on the AIP diet.  Dr. Sarah Ballantyne is Celiac herself and her book The Paleo Approach helps very much.

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

And...

https://www.thepaleomom.com/start-here/the-autoimmune-protocol/

 

[Gina C]

14 minutes ago, knitty kitty said:

Here's some information on the AIP diet.  Dr. Sarah Ballantyne is Celiac herself and her book The Paleo Approach helps very much.

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

And...

https://www.thepaleomom.com/start-here/the-autoimmune-protocol/

 

Thanks so very much knitty kitty that is very helpful!

[Raquel2021]

On 8/6/2023 at 11:20 AM, Gina C said:

Hello everyone. I am new to the forum but have had Celiac for 7 years now. My problem now is I have been diagnosed with milk protein allergy F PIES. I am also allergic to all nuts.

So my choices for breakfast are really, really narrowed down now! OMG! I have no idea what to eat. I just tried Zego oats and thought they would be okay, but am not so sure. I just read an article that we cannot trust any oats now for purity. So what does everyone eat for breakfast? So many companies as you all know claim gluten free but it is the facilities that are the problem as well. I work every day so don't have time in the morning to prepare breakfast. My go to was yogurt or cottage cheese with fruit. But now I cannot eat that! I am besides myself, and at a loss for ideas. I used to eat gluten-free Harvest oats, but reacted to them a few years ago. I am also going to try a new brand to me called 88 Acres. They have a purity protocol also.

Any thoughts or suggestions are greatly appreciated!

You can try green smoothies.  They are highly nutritious 

[trents]

Gina, you might want to do some research on histamine intolerance/MCAS (Mast Cell Activation Syndrome) as it is very common in the celiac community.

[Jane07]

On 8/6/2023 at 11:20 AM, Gina C said:

Hello everyone. I am new to the forum but have had Celiac for 7 years now. My problem now is I have been diagnosed with milk protein allergy F PIES. I am also allergic to all nuts.

So my choices for breakfast are really, really narrowed down now! OMG! I have no idea what to eat. I just tried Zego oats and thought they would be okay, but am not so sure. I just read an article that we cannot trust any oats now for purity. So what does everyone eat for breakfast? So many companies as you all know claim gluten free but it is the facilities that are the problem as well. I work every day so don't have time in the morning to prepare breakfast. My go to was yogurt or cottage cheese with fruit. But now I cannot eat that! I am besides myself, and at a loss for ideas. I used to eat gluten-free Harvest oats, but reacted to them a few years ago. I am also going to try a new brand to me called 88 Acres. They have a purity protocol also.

Any thoughts or suggestions are greatly appreciated!

hi Gina sorry you heard you have  milk proteinAllergy and nuts that very difficult for me for breakfast I usually have a green smoothie and then my gluten free oatmeal . Really trying to improve my diet just this year I had to go on a gluten free diet it very hard I’m a vegetarian I hope things improves for you. 

[Gina C]

12 hours ago, trents said:

Gina, you might want to do some research on histamine intolerance/MCAS (Mast Cell Activation Syndrome) as it is very common in the celiac community.

Thanks Trents. I have in the past and I keep those foods to a minimum

7 hours ago, Jane07 said:

hi Gina sorry you heard you have  milk proteinAllergy and nuts that very difficult for me for breakfast I usually have a green smoothie and then my gluten free oatmeal . Really trying to improve my diet just this year I had to go on a gluten free diet it very hard I’m a vegetarian I hope things improves for you. 

Thanks Jane. Yes 7 years ago I had to make the switch to gluten-free. I don't even think about it now. But the nuts issue was a hard one, reading every label. The dairy is my biggest challenge really! 

[Beverage]

I totally reacted to Bob's gluten free oats. Then I was eating gluten-free Harvest purity protocol oats for years with no problem, but reacted on most recent purchase. I then found out gluten-free Harvest had been removed from the purity protocol list because independent tests showed some gluten. Check the purity protocol list again and try a different brand. I personally eat eggs almost every morning and purity protocol oats about once a month.