Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Side affects


Jason weidow

Recommended Posts

Jason weidow Newbie

Recently got diagnosed with celiac my symptoms were diarrhea, stomach pain mostly in my liver area, dizziness, inflammation in my face tissue, knotted up tense shoulder, nausea, fatigue ,and  insomnia when it first hit I thought I got the flue …. Is this similar to others in the group? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, Jason!

"diarrhea, stomach pain mostly in my liver area, dizziness . . . nausea and fatigue" are common symptoms with celiac disease but "inflammation in my face tissue, knotted up tense shoulder . . . and  insomnia" are not symptoms that I can remember being reported by other celiacs. About 20% of celiacs have elevated liver enzymes that often normalize after being on a gluten free diet for some months.

Jason weidow Newbie
35 minutes ago, trents said:

Welcome to the forum, Jason!

"diarrhea, stomach pain mostly in my liver area, dizziness . . . nausea and fatigue" are common symptoms with celiac disease but "inflammation in my face tissue, knotted up tense shoulder . . . and  insomnia" are not symptoms that I can remember being reported by other celiacs. About 20% of celiacs have elevated liver enzymes that often normalize after being on a gluten free diet for some months.

Ok my doctor also said I have a milk allergy I never had issues with dairy before but do you think that would cause the other problems ?

trents Grand Master
(edited)

Inflammation of your facial tissue could be caused by an allergic reaction to a milk protein. But it is also possible you have developed lactose intolerance or an intolerance to the protein (casein) in dairy. These are common in the celiac population. Note that an allergy is not the same as intolerance.

The knotted up tense shoulder could be a neurological manifestation of celiac disease but more likely it is an orthopedic issue. May we ask your age?

Edited by trents
Scott Adams Grand Master

For many years before and after my diagnosis I had shoulder knots and serious stiff neck issues. This was an issue for me for at least 10-15 years after my diagnosis, until I started taking supplements for likely vitamin and mineral deficiencies, and switching over to a very firm pillow. For the most part these issues are gone now, but not completely. As @trents mentioned, some of this can be caused by your bed, pillow, ergonomics, posture, etc., and also nutrient deficiencies.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748

    kyle68j
    Newest Member
    kyle68j
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...