Celiac getting dentures

[Scott Adams]

There is a vitamin D spray:

https://www.amazon.com/Garden-Life-D3-Vitamin-Supplement/dp/B00K5NEPLW/ 

[Wheatwacked]

How much have you been taking? 

I need 10,000 IU a day to maintain 80 ng/ml blood level.  Have been since 2015.  I took until 2018 just to get to 47 ng/ml .  Only a few days after increasing from 8,000 to 10,000 a day  I said this is sunshine in a bottle!  I am on prednisolone 10 mg/day maintenance dose because before starting GFD I had to take 30 or more mg/day for the fibromyagia for two years,  leading to secondary adrenal insufficiency.  The fibromyalgia was the result of gluten because now with vitamins replensished and no gluten I have no pain.

Normal level for a healthy lifeguard in summer is 70 - 90 ng/ml.  That is our body's self regulated level. 80ng/ml = 200 nmol/L. Depends on the lab.

Lupus activity level is also moderated by higher levels of vitamin D.  Because you need to avoid UV-B taking large amounts of vitamin D should have  been part of your Lupus protocol.  Unfortunately the laws passed in the fifties limits vitamin D research to less than or greater than 30 ng/ml, so you rarely see the studies that show what physiological normal level can do.  "Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL;"

I get my 10,000 IU capules from Piping Rock. com.  250 capsules for $15.  Hard to find that high anywhere else.

Quote

Potential benefits of vitamin D for patients with systemic lupus erythematosus   In addition to the potential benefit of vitamin D replacement on SLE activity, patients will also avoid the excess morbidity and mortality associated with long-term deficiency of vitamin D. 

Quote

 

Mayo Clinic Proceedings: Vitamin D Is Not as Toxic as Was Once Thought"

Back in the 1950s there was a manufacturing error in a baby formula that caused an epidemic of infant disease and deaths.  "As a result, legislation was instituted in Great Britain forbidding the fortification of any food or any product with vitamin D. This concern for vitamin D toxicity in children led to most of the world (including countries in Europe, the Middle East, Asia, Africa, and South America) banning vitamin D fortification of milk."

 

 

[Martha Mitchell]

I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!

[captaincrab55]

2 hours ago, Martha Mitchell said:

I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens .

Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom

[Scott Adams]

Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 

[Martha Mitchell]

Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!

[Martha Mitchell]

Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 

[trents]

@Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.

[NanCel]

On 11/21/2023 at 7:38 AM, RPM5 said:

Hey NanCel,

Were you able to find dentures that aren't problematic?

Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.

[Scott Adams]

On 11/1/2025 at 10:31 AM, Martha Mitchell said:

Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!

Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.

[gfmom06]

I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.

[Scott Adams]

This is an older article, but may be helpful.