Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Gfdf Probiotics?


terps19

Recommended Posts

terps19 Contributor

I think that the only one I have found is Flora-Q and Florastor (has yeast in it). So I think I am going to give the Flora-Q a try but I also wanted to know if anyone else uses probiotics and if so are they gluten free and dairy free? have they made a difference?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Florastor contains lactose so its not casein free.

terps19 Contributor
Florastor contains lactose so its not casein free.

Interesting about florastor containing lactose... I didnt see that in the ingredients list. Do you kow if Flora-Q is ok?

mookie03 Contributor

I use Jarrodophilus, says on the bottle "contains NO common allergen"- got them at whole foods

www.jarrow.com

jaten Enthusiast

My GI gave me samples of FloraQ. Tummy felt pretty yuck for a few days when I first started. Those symptoms settled completely. I suspect it was the battle of good vs. evil :ph34r:

Lisa Mentor

I still don't understand the Probiotics. Rachel, can you spell it out for me in laymens terms. I think that you have to take Pro to counter the Anti-B, when you need them....other than that I don't know. Should I be taking them now .

Lisa

dlp252 Apprentice
I still don't understand the Probiotics. Rachel, can you spell it out for me in laymens terms. I think that you have to take Pro to counter the Anti-B, when you need them....other than that I don't know. Should I be taking them now .

Lisa

I'm not Rachel, but I'll take a stab at it. Our bodies contain bacteria, both good and bad. They live there in a sort of balance until something upsets that balance. If you take antibiotics, for instance, they kill both the good and bad bacteria, but the bad stuff comes back quicker. Other things can upset the balance as well, so we take a probiotic to help balance out the bad stuff. I try to take them all the time because I have sooooo many things going on, lol.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mookie03 Contributor
I'm not Rachel, but I'll take a stab at it. Our bodies contain bacteria, both good and bad. They live there in a sort of balance until something upsets that balance. If you take antibiotics, for instance, they kill both the good and bad bacteria, but the bad stuff comes back quicker. Other things can upset the balance as well, so we take a probiotic to help balance out the bad stuff. I try to take them all the time because I have sooooo many things going on, lol.

Donna- i have a question about this. This was my understanding about using probiotics as well, but i just started taking them last week after a visit to a nutritionist. All of the sudden the last few days i have had a bit of D, but not like i have been glutened, more like my body is trying to flush something out of it (i.e., no pain, cramps, etc. Just D). Could this be the probiotics at work flushing out the bad bacteria? Or does it not work that way?

dlp252 Apprentice
Donna- i have a question about this. This was my understanding about using probiotics as well, but i just started taking them last week after a visit to a nutritionist. All of the sudden the last few days i have had a bit of D, but not like i have been glutened, more like my body is trying to flush something out of it (i.e., no pain, cramps, etc. Just D). Could this be the probiotics at work flushing out the bad bacteria? Or does it not work that way?

Yes, I think they can actually work that way. I'm not sure it's technically flushing out, but I do think that it can cause D sometimes. They don't affect me that way any more but I do believe in the beginning they did.

penguin Community Regular

The good bacteria (what's in the probiotics) helps you digest foods in your GI tract.

When you have D, the bacteria gets flushed out and your GI tract is "off", you can be grumbly, irregular, etc. Same thing with antibiotics, because those kill all bacteria. That's why you get yeast infections on antibiotics, too. The good bacteria keep the yeast in check, and can't when they're killed off.

mookie03 Contributor
Yes, I think they can actually work that way. I'm not sure it's technically flushing out, but I do think that it can cause D sometimes. They don't affect me that way any more but I do believe in the beginning they did.

Thanks, that is reassuring. the best i can describe is that it feels like "productive D", if you get what i mean. :D it certainly doesnt feeling like a rxn from food. i'm also getting over a sinus infection which could be part of it too... Chelsea- thanks for the info- i used to take acidophilus daily when i was younger b/c i was on antibiotics throughout my childhood. Never realized until recently that i could take it when i wasnt on antibiotics!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.