Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutening symptoms


FayeBr

Recommended Posts

FayeBr Apprentice

Hi. Nearly three weeks ago I was glutened. I haven’t done this in a while now. And the symptoms have been pretty awful as you’re all probably aware of. Migraine, pain in neck and shoulders, flu like symptoms, tinnitus, loss of feeling in legs and hands, fatigue, tummy troubles, rashes, brain fog, muscle twitches and lots more. I was expecting to feel a bit better now but I’m still having symptoms nearly three weeks later. I’m flying out on holiday in 2 days and was hoping to be better for that. I’m just wondering if it is normal to last this long for others, and be this intense? I’ve struggled to work and function. I was diagnosed 3 years ago now and can’t remember being this bad for quite some time. Great joy! 😊


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FayeBr Apprentice
1 minute ago, FayeBr said:

Hi. Nearly three weeks ago I was glutened. I haven’t done this in a while now. And the symptoms have been pretty awful as you’re all probably aware of. Migraine, pain in neck and shoulders, flu like symptoms, tinnitus, loss of feeling in legs and hands, fatigue, tummy troubles, rashes, brain fog, muscle twitches and lots more. I was expecting to feel a bit better now but I’m still having symptoms nearly three weeks later. I’m flying out on holiday in 2 days and was hoping to be better for that. I’m just wondering if it is normal to last this long for others, and be this intense? I’ve struggled to work and function. I was diagnosed 3 years ago now and can’t remember being this bad for quite some time. Great joy! 😊

Oh and I have MS also and a glutening seems to trigger that too. Numbness in legs. Pins and needles. Struggle to walk etc.Great joy again 😊

Scott Adams Grand Master

It's probably too late for this article, but it may be helpful going forward:

   It sounds like you are super sensitive, so recovery could take several weeks. 

dolson Explorer

The best airline to fly is United. I told them I was Celiac and they gave me a bar of crispy chocolate with no dairy. The worst airline is Swiss Air. First off I had broken my wrist in two places and they threw me off the airline. I had go back to a doctor in Luzerne, Switzerland, to get a permit to fly. Now of course, the Swiss are known for their chocolate and it's filled with cows' milk. They are the rudest, most dishonest airline ever. I have been to Switzerland twice now and will never return. I am also a Type I Diabetic and that will kill you if you don't count carbohydrates. The best granola is "Purely Elizabeth." There are no oats, which I can't have and will never eat oatmeal. These are tiny bits of nuts, not peanuts because they are a legume and they off my list. I don't drink beer because of the barley  and whey. 

Again, Swiss Air is the worst! I think I lost 20 pounds on that trip along with a broken wrist.

 

Hope this helps. Dorothy

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac

    2. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    3. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    4. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    5. 0

      Virtual Support Group: Living Gluten Free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,449
    • Most Online (within 30 mins)
      7,748

    ellenkass
    Newest Member
    ellenkass
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
    • Scott Adams
      This is an older article, but still helpful:  
    • cristiana
      It's strange because I'm pretty sure not too long ago I picked up a loaf of bread with B vitamins, but I can't find a single one now.  Probably cutbacks, everyone's trying to save money now!
    • Scott Adams
      Eating grains typically depletes certain B vitamins, so I'm not sure why they decided to fortify with calcium and iron, but hopefully we'll see more B vitamin fortification in gluten-free products going forward.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.