Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutening symptoms

FayeBr

By FayeBr
in Related Issues & Disorders

 Share

Recommended Posts

FayeBr Apprentice
FayeBr
Posted

Hi. Nearly three weeks ago I was glutened. I haven’t done this in a while now. And the symptoms have been pretty awful as you’re all probably aware of. Migraine, pain in neck and shoulders, flu like symptoms, tinnitus, loss of feeling in legs and hands, fatigue, tummy troubles, rashes, brain fog, muscle twitches and lots more. I was expecting to feel a bit better now but I’m still having symptoms nearly three weeks later. I’m flying out on holiday in 2 days and was hoping to be better for that. I’m just wondering if it is normal to last this long for others, and be this intense? I’ve struggled to work and function. I was diagnosed 3 years ago now and can’t remember being this bad for quite some time. Great joy! 😊

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


FayeBr Apprentice
FayeBr
Posted
  • Author
1 minute ago, FayeBr said:

Hi. Nearly three weeks ago I was glutened. I haven’t done this in a while now. And the symptoms have been pretty awful as you’re all probably aware of. Migraine, pain in neck and shoulders, flu like symptoms, tinnitus, loss of feeling in legs and hands, fatigue, tummy troubles, rashes, brain fog, muscle twitches and lots more. I was expecting to feel a bit better now but I’m still having symptoms nearly three weeks later. I’m flying out on holiday in 2 days and was hoping to be better for that. I’m just wondering if it is normal to last this long for others, and be this intense? I’ve struggled to work and function. I was diagnosed 3 years ago now and can’t remember being this bad for quite some time. Great joy! 😊

Oh and I have MS also and a glutening seems to trigger that too. Numbness in legs. Pins and needles. Struggle to walk etc.Great joy again 😊

Scott Adams Grand Master
Scott Adams
Posted

It's probably too late for this article, but it may be helpful going forward:

   It sounds like you are super sensitive, so recovery could take several weeks. 

dolson Explorer
dolson
Posted

The best airline to fly is United. I told them I was Celiac and they gave me a bar of crispy chocolate with no dairy. The worst airline is Swiss Air. First off I had broken my wrist in two places and they threw me off the airline. I had go back to a doctor in Luzerne, Switzerland, to get a permit to fly. Now of course, the Swiss are known for their chocolate and it's filled with cows' milk. They are the rudest, most dishonest airline ever. I have been to Switzerland twice now and will never return. I am also a Type I Diabetic and that will kill you if you don't count carbohydrates. The best granola is "Purely Elizabeth." There are no oats, which I can't have and will never eat oatmeal. These are tiny bits of nuts, not peanuts because they are a legume and they off my list. I don't drink beer because of the barley  and whey. 

Again, Swiss Air is the worst! I think I lost 20 pounds on that trip along with a broken wrist.

 

Hope this helps. Dorothy

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
    2. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
    3. Wheatwacked
      - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have...
    4. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Thanks for your input.
    5. trents
      - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,068
    • Most Online (within 30 mins)
      7,748
    lgcalvitti
    Newest Member
    lgcalvitti
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Celiac disease symptoms

      By Wheatwacked · Posted

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Thanks for your input. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.