Uncertain diagnosis

[Rebeccaj]

So I have been diagnosed four years ago with celiac disease but I had endoscopy four years later and had fexofenadine also before skin test come back negative . Also negative for inflammation and celiac in stomach but I was on gluten free diet only so now I am having gluten for 6 weeks for this endoscopy but only feeling bloated stuffy and just headache but then someday nothing I'm confused  can it disappear or be 6 false positive on the blood test ?? As now in pickle as government has started paying me has this happened to anyone else.i have wait 6 weeks find out . Like symptoms have been there and just the inflammation and symptoms was there but nothing ATM  only panic attack but delayed not instantly.

 

 

[Scott Adams]

So you are on a gluten challenge to be re-tested for celiac disease, and this is because you tested negative before? Since you have such bad symptoms may I ask why the official diagnosis is so important?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.

 

You can still have celiac disease with negative blood test results, although it's not very common: 

Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/ 

Seronegative Celiac Disease - A Challenging Case:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/ 

Enteropathies with villous atrophy but negative coeliac serology in adults: current issues:
https://pubmed.ncbi.nlm.nih.gov/34764141/