Constant sweating with celiac disease

[Braver101]

Does anyone else get soaking wet sweats just out of nowhere? I’m not in menopause, there’s nothing wrong with me except celiac disease and my thyroid, and I’m taking my medicine. I am 18 days gluten-free but I cannot stop sweating and it makes me freezing cold and I’m soaking wet and changing my clothes literally as I’m changing my clothes the new clothes are soaking wet and nobody will help me. Please somebody out there help me. 

[trents]

There is such a thing, believe it or not, called gluten withdrawal. Gluten has addictive properties similar to opiates. I know it sounds bizarre but research it. Also, are you compensating for the loss of vitamins and minerals you were getting from the FDA mandated fortified wheat flour products you were formerly consuming?

[Scott Adams]

I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 

[knitty kitty]

Welcome to the forum, @Braver101,

You may need to have your thyroid medication dose adjusted.  Excessive sweating can occur in hyperthyroidism.  

Excessive sweating consumes lots of Thiamine Vitamin B1.  Thiamine turns carbohydrates and fats into energy for the body.  Thiamine depletion can happen quickly, within three days to two weeks.  Celiac Disease can interfere with the absorption of essential vitamins like thiamine and the other B vitamins, so you may already have low vitamin stores.  The Gluten Free diet can be deficient in vitamins like thiamine and the other B vitamins because processed gluten free facsimile foods are not enriched with added vitamins like gluten based foods.  If one eats lots to gluten free processed foods full of fats and carbohydrates, additional Thiamine is needed.  

Dysautonomia, a Thiamine deficiency disorder, can interfere with the part of the brain that controls temperature regulation, resulting in excessive sweating, too.  Dysautonomia can cause the thyroid to swing high or low resulting in a thyroid storm, thyrotoxicosis.

High blood glucose levels can cause excessive sweating, too.  Most diabetics have low Thiamine. 

Your doctor dealing with your thyroid needs to check your thyroid medication dose.  Ask for an Erythrocyte Transketolase test as well.  This tests for Thiamine activity and is a better measure of Thiamine deficiency than blood levels.  You can have a deficiency in B vitamins and still have "normal" blood levels.

Keep us posted on your progress!

References:

An Uncommon Presentation of Hyperthyroidism Can Culminate in Devastating Neurological Consequences: A Case Report

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9509528/

Gluten-free diet intervention reduces thiamine intake in two weeks, increases glycaemic response and decreases body weight in four weeks, with no long term nutritional deficiencies (because they went off the gluten-free diet after four weeks, not Celiacs)

https://pubmed.ncbi.nlm.nih.gov/34583628/

Dysautonomia, A Heuristic Approach to a Revised Model for Etiology of Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2644268/

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

[Braver101]

Thank you all for your support and encouragement. All of the issues you’ve mentioned are being looked into. I had a stroke in 2018 and I believe the sweating may be neurological in nature, because I have numbness and tingling on my right side, and occasionally in my hands and feet. I’m looking for a new neurologist and hopefully they can help me. God bless. 

[Braver101]

I also have hypothyroidism, fibromyalgia, ankylosing spondylitis, OCD, PTSD, and osteoporosis. My thyroid was just checked and my thyroid meds are the correct dosage.

[knitty kitty]

I also have had hypothyroidism, fibromyalgia, OCD, PTSD, and osteoporosis, Wernicke's Encephalopathy, and type two diabetes.  I'm a Microbiologist.  My health has improved by taking high dose Thiamine, and supplementing essential vitamins and minerals.   

Vitamins and minerals are essential for life.  These should come from the food we eat, but celiac disease damages the intestines and we cannot absorb sufficient nutrients from foods when we need them most to heal.  Supplementing with vitamins and minerals boosts your ability to absorb these essential nutrients.

 

STROKE

Prevalence of Low Plasma Vitamin B1 in the Stroke Population Admitted to Acute Inpatient Rehabilitation

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7230706/

Reduced thiamine is a predictor for cognitive impairment of cerebral infarction

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7507112/

 

HYPOTHYROIDISM

Thiamine and Hashimoto's thyroiditis: a report of three cases

https://pubmed.ncbi.nlm.nih.gov/24351023/

Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients

https://pubmed.ncbi.nlm.nih.gov/37278003/

 

FIBROMYALGIA

High-dose thiamine improves the symptoms of fibromyalgia

https://pubmed.ncbi.nlm.nih.gov/23696141/

 

ANKYLOSING SPONDYLITIS

Ankylosing spondylitis disease activity and serum vitamin D levels: A systematic review and meta-analysis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9678609/

Low Vitamin D Levels Predict Mortality in Ankylosing Spondylitis Patients: A Nationwide Population-Based Cohort Study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7285142/

 

OSTEOPOROSIS

Non-coenzyme role of vitamin B1 in RANKL-induced osteoclastogenesis and ovariectomy induced osteoporosis

https://pubmed.ncbi.nlm.nih.gov/32100911/

Nutrient Patterns and Risk of Osteopenia in Postmenopausal Women

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10096860/

 

OCD

Obsessive-Compulsive Symptoms as a Manifestation of Homocystinuria

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8007370/

 

PTSD

Neuroinflammation is a susceptibility factor in developing a PTSD-like phenotype

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10090279/

 

THIAMINE 

Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

 

God bless you, too.  God and @Scott Adams allow me to share this knowledge with you.  I've had to find the answers to why I was so sick because my doctors did not recognize nutritional deficiencies.  

Please discuss supplementation with your Nutritionist and doctors.  Correcting nutritional deficiencies is part of proper follow up care for us.

[brian1]

On 4/4/2024 at 10:27 PM, knitty kitty said:

I also have had hypothyroidism, fibromyalgia, OCD, PTSD, and osteoporosis, Wernicke's Encephalopathy, and type two diabetes.  I'm a Microbiologist.  My health has improved by taking high dose Thiamine, and supplementing essential vitamins and minerals.   

Vitamins and minerals are essential for life.  These should come from the food we eat, but celiac disease damages the intestines and we cannot absorb sufficient nutrients from foods when we need them most to heal.  Supplementing with vitamins and minerals boosts your ability to absorb these essential nutrients.

 

STROKE

Prevalence of Low Plasma Vitamin B1 in the Stroke Population Admitted to Acute Inpatient Rehabilitation

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7230706/

Reduced thiamine is a predictor for cognitive impairment of cerebral infarction

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7507112/

 

HYPOTHYROIDISM

Thiamine and Hashimoto's thyroiditis: a report of three cases

https://pubmed.ncbi.nlm.nih.gov/24351023/

Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients

https://pubmed.ncbi.nlm.nih.gov/37278003/

 

FIBROMYALGIA

High-dose thiamine improves the symptoms of fibromyalgia

https://pubmed.ncbi.nlm.nih.gov/23696141/

 

ANKYLOSING SPONDYLITIS

Ankylosing spondylitis disease activity and serum vitamin D levels: A systematic review and meta-analysis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9678609/

Low Vitamin D Levels Predict Mortality in Ankylosing Spondylitis Patients: A Nationwide Population-Based Cohort Study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7285142/

 

OSTEOPOROSIS

Non-coenzyme role of vitamin B1 in RANKL-induced osteoclastogenesis and ovariectomy induced osteoporosis

https://pubmed.ncbi.nlm.nih.gov/32100911/

Nutrient Patterns and Risk of Osteopenia in Postmenopausal Women

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10096860/

 

OCD

Obsessive-Compulsive Symptoms as a Manifestation of Homocystinuria

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8007370/

 

PTSD

Neuroinflammation is a susceptibility factor in developing a PTSD-like phenotype

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10090279/

 

THIAMINE 

Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

 

God bless you, too.  God and @Scott Adams allow me to share this knowledge with you.  I've had to find the answers to why I was so sick because my doctors did not recognize nutritional deficiencies.  

Please discuss supplementation with your Nutritionist and doctors.  Correcting nutritional deficiencies is part of proper follow up care for us.

I concur with you there I had blood test after blood test they say everything is OK but I don't beleave them there doing just the basic required blood tests I've suffered from ceilics for six months and I don't seem to be getting any better it seemed to collide with my enlarged prostrate when that was discovered a while later certain pain seems to be delayed in my body except for the pain from the prostrate when they change the cathata I don't expect to survey as my confidence and energy levels have dropped to an all time low I sleep a little at night but end staying awake my BP can can go through the roof when asleep even though I'm taking meds it a puzzle it feels like there's no way out 

[knitty kitty]

@brian1, welcome to the forum

Sorry to hear you're not feeling better.  Improving one's vitamin levels are so important.  

I use Thiamine, Pyridoxine B6, and Cobalamine B12 for pain relief in addition to a B Complex supplement.  This combination really works for my pain.  

Keep us posted on your progress!

Here's some articles you might find interesting.

High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3963161/

And...

Effect of Combined Diclofenac and B Vitamins (Thiamine, Pyridoxine, and Cyanocobalamin) for Low Back Pain Management: Systematic Review and Meta-analysis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7139211/