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Maltodextrine, dextrose and glucose syrup


Tanja81

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Tanja81 Newbie

Good evening,

My son has celiac disease and he is fallowing gluten free diet from 2018. In all this years his blood results always show that he is still getting gluten from somewhere. Last result anti ttg (igA)8,3 and limit here is from 0-7.  Whole family is eating gluten free. 
His doctor is saying that is fine and for some people it takes longer time for the values to drop down. 
Few days ago we saw dietitian and she mentioned that we should try to avoid product with dextrose, maltodextrin and glucose syrup. 
Do you know if this can indeed increase the ttg levels?

also maybe good to mention he doesn’t have any symptoms. Only reason why they did test for celiac is because his iron level was a bit lower. 
thanks a lot


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trents Grand Master

Dextrose, maltodextrin and glucose syrup will not impact ttg-iga levels. Dairy and oats (even gluten-free oats) might as their proteins are very similar to gluten and know cross reactors. Including this also as a primer for spotting unexpected hidden sources of gluten, some of which are outside the category of food.

https://www.celiac.com/celiac-disease/the-gluten-free-diet-101-a-beginners-guide-to-going-gluten-free-r1640/

Tanja81 Newbie

Thank you! We will try to eliminate dairy products. We never tried this..

Scott Adams Grand Master

For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:

 

 

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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