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Dp0155

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Dp0155 Rookie

Hi guys I posted first on hear way back in 2020. Back then I experienced some classic symptoms weight loss, bloating etc ……. I was referred for blood test which indicated I could have had coeliac disease. 
 

I was told I would be referred for biopsy I continued to eat gluten but suddenly my symptoms cleared up and my biopsy was seen as no longer needed. I continued to eat gluten for 4 years with no issues at all. 
 

just for some context I am a keen athlete and have ran numerous road races , triathlons , HYROX competitions and usually placed well in all of these. Alongside this my job is very physical and I train 6 days a week. 
 

I recently undertook a routine blood test and was found to have low hameoglobin , low ferritin and low folate. Vitamin B12 was in the standard range. Clinically speaking i have iron deficiency anemia. I literally have no symptoms and am the fittest and strongest I have felt for years. I have been given iron tablets and folic acid. I have decided to cease eating gluten now. It doesn’t really affect me as I didn’t really eat that much of it before anyway. I am just wondering if the iron deficiency anemia could be caused by anything else. 
 

like I said literally no symptoms what so ever very very strange. 


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Scott Adams Grand Master

Many celiacs do not have noticeable symptoms, and discover that they have it when they have anemia or other vitamin deficiency. If you were referred for an endoscopy for celiac disease, does that mean that you had a positive blood test for it? Normally a blood test would be given before a follow up biopsy is done.

The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

 

 

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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