Seizures

[JacktheDestroyer]

So I've had celiacs disease my whole life and only had a proper diagnosis 4 years ago I had h.p.virus and ulcers and hemorrhoids through my intestines ...through those three years of me trying to get a diagnosis I was having a lot of seizures recently my mom told me I've had seizures since I was little Everytime I got sick, one time a doctor even told her I was just having a tantrum when I had one so she never pushed the issue. Now that I'm almost 30 they've gotten more frequent, how would I go about getting a diagnosis knowing most doctors don't take me serious and second does anyone else struggle with more than one issue having celiacs?  

[trents]

Welcome to the forum, @JacktheDestroyer!

Most of us who struggled with celiac disease for years before finally being diagnosed also developed other medical complications that we struggle with. You are not alone.

Sounds like your many years of undiagnosed celiac disease has resulted in neurological damage in your case. I say that because of the seizures you experience. Neurological damage is common in the celiac population for those who were undiagnosed for many years or for those who ignored the need to eat gluten free.

One thing that is very important for neurological health and recovery is to start taking some high potency vitamin and mineral supplements. B12, B-complex, D3, Magnesium glycinate, and zinc are supplements we commonly recommend on this forum. Make sure all of them are gluten free. A good source for good quality supplements that are reasonably priced is Costco. Check all and and make sure they are gluten free.

Keep looking for a doctor who will take you seriously. Remember, they work for you. Don't let them blow you off. Some will listen. Find one that will.

[Scott Adams]

I agree with @trents, and the most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.

 

 

 

[Wheatwacked]

Thiamine deficiency can cause seizures but since thiamine is rarely tested for the literature says it is not a problem.  Mostly it is left at "we don't know why" as you have already experienced.

Neurological manifestations, diagnosis, and treatment of celiac disease: A comprehensive review