No improvement in symptoms after 2 months gluten-free

[MamaBearLiv]

Hello, first timer here. Apologies in advance for the subject of this post, which is poop. My 2 year old hasn’t been scoped yet but his lab work is indicating likely celiac disease. His most outstanding symptom has been very loose orangey stools. I’ve taken him off gluten for over a couple of months and seen no change at all. He has some thicker and darker poos and then back to orangey mess. His G.I. Isn’t very concerned about the color and suggests I keep up the diet, which of course I will. But my question is does anyone have experience with it taking this long for symptoms to improve? Most things I’ve read online point to improvement in days to a couple of weeks and were well past that so I’m confused. Thank you!

[trents]

Welcome to the forum, @MamaBearLiv!

The first thing I would make you aware of is that taking your son off of gluten before the endsocopy/biopsy (if this is planned) will invalidate the results. He would need to go back on regular amounts of gluten for weeks before the procedure for it to yield valid results.

Second, is your son still consuming dairy, soy or oats (even gluten free oats)? These are common cross reactors for those with celiac disease and can prevent expected improvement when gluten alone is eliminated.

[Scott Adams]

Are you certain that his diet is 100% gluten-free?

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):