Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help ! My Daughter Is Now Working At Carraba's !

marciab

By marciab
in Coping with Celiac Disease

Recommended Posts

marciab Enthusiast
marciab
Posted

Last Saturday nite, my daughter brought home Bruschetta, Goat cheese and marinara sauce for herself, but I ate it. I didn't have any cramping, so, I thought I had gotten away with it. Sunday nite, she brought me some fresh bread with EVOO and spices. So, like a dummy, I ate that too.

On the bright side, at least now that I have been gluten / etc. free for 6 - 8 months, I can identify when I have been glutened / caseined ? The brain fog, mania, insomnia, constipation, gas, and bloating came back. And I'm back to eating bland foods until this calms down.

I can tell this is NOT going to be easy. I feel like a vulture waiting to pounce when my daughter gets off work and walks in the door with her Carraba's bag.

I just wanted to let you all know that I have a whole new respect for any of you trying to maintain this diet while being tempted by delicious mouth watering foods that you can't eat.

Bless you all ... Sincerely ... Marcia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

my husband starts his new job at a Johnny's pizza tomorrow... I'm dreading it.

Rusla Enthusiast
Rusla
Posted

My mother and I discussed the other night how sensitive I am to small particles of gluten.

It is like being an alcoholic, when an alcoholic or drug addict goes off of the drugs or booze for any length of time. If they use again it effects them harder than before and it becomes more difficult for them to quit because they are addicted. Like things people are allergic to you either crave them or hate them.

We are like gluten addicts some of us will gobble them up if we have not immediate ill effects but if you are like me then, you would never want to touch the stuff. I am so sick on minute amounts if I ate bigger things with gluten, I don't even want to imagine what I would go through.

MallysMama Explorer
MallysMama
Posted
Last Saturday nite, my daughter brought home Bruschetta, Goat cheese and marinara sauce for herself, but I ate it. I didn't have any cramping, so, I thought I had gotten away with it. Sunday nite, she brought me some fresh bread with EVOO and spices. So, like a dummy, I ate that too.

On the bright side, at least now that I have been gluten / etc. free for 6 - 8 months, I can identify when I have been glutened / caseined ? The brain fog, mania, insomnia, constipation, gas, and bloating came back. And I'm back to eating bland foods until this calms down.

I can tell this is NOT going to be easy. I feel like a vulture waiting to pounce when my daughter gets off work and walks in the door with her Carraba's bag.

I just wanted to let you all know that I have a whole new respect for any of you trying to maintain this diet while being tempted by delicious mouth watering foods that you can't eat.

Bless you all ... Sincerely ... Marcia

Does your daughter Know about your Celiac disease??? Why would she even tempt you with all the food? Maybe you could ask her to bring home some of the things you're able to eat - if she brings anything home at all. They have a gluten-free menu there.

It's easier to stay on the diet if you're not tempted by the food in your own home. I can see how you'd be tempted if you Went to Carrabbas to eat....but you shouldn't have to deal with that temptation at home like that. If it gets serious enough - you should ask her to not bring the food home when you're there.

Guhlia Rising Star
Guhlia
Posted

Their chicken bryan is fabulous! So is the Mama whatever chicken soup. Maybe she could bring some of those things home for you instead of bread. They are both gluten free and yummy!

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

They have a gluten-free menu. If you really need to eat her food with her maybe she should bring some those items instead.

marciab Enthusiast
marciab
Posted
  • Author

It was really my fault. I thought I could handle it. I was doing so well. But, what I didn't realize is that it was only becuase I wasn't being tempted by anything REALLY good.

Nini - good luck with your husband's job ... that is going to be hard too.

My computer keeps logging me off, so I may be done for the night.

Thanks for your replies ... marcia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    2. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      Food and environmental allergies involve IgE antibodies. IgE antibodies provoke histamine release from mast cells. Celiac disease is not always visible to the naked eye during endoscopy. Much of the damage is microscopic and patchy or out of reach of the scope. Did they take any biopsies of your small intestine for a pathologist to examine? Were...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting! The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac...
    4. trents
      - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes.
    5. knitty kitty
      - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      6

      Gluten related ??

      @Colleen H, I have had similar reactions and symptoms like yours. I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. Her book, The Paleo Approach, is very helpful in understanding what's going on in the body. Not only do you have antibodies attacking the body...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.