Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross-reactivity?

slpinsd

Recommended Posts

Judyin Philly Enthusiast
Judyin Philly
Posted

BERNESES--thanks i took your advice...i planted the pansies and the computer was down today sooooo

man, i needed a break from this forum...i'm just so bewildered..some of the above ideas 're; our own' tests of casin vs lacatose..sounds sensible...

Still dealing with up coming Easter and all the 'pain' that it's bringing with now not having either parent in my life now.

Just very down right now and the only 'joy' I'm finding is in my garden and 'getting away from' all the theories...Need to give my brain a rest. I appreciate all you support and will ck in no and then, but if i don't post it's not because i don't appreciate all you input and ideas.

just want to get through Easter. Miss my son too.

poop.. :lol: at least that's going well..so count my blessings. I just put that word in was remembering how it was the focal pt of some many of my posts... :blink:

Will plant more pansies tomorrow ,,,even if it's in the rain that they are predicting.

judy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 82
  • Created
  • Last Reply
Guest BERNESES
Guest BERNESES
Posted
The doctor from the clinic is stumped as to why I havent gotten better. He ordered a heavy metal test since my symptoms started after dental work 3 years back.

rachel- This is weird, but my husband's boss's wife was telling me that her best friend had really similar symptoms to me and NO ONE could figure out what was wrong with her. eventually, everyone was convinced it was all in her head. Finally, one of her doctors figured out that her dental fillings had been poisoning her. I think she had to have the fillings removed and go through several detoxes but she's doing great now. How weird would it be if that was what it was? I just thought I'd let you know because it immediately came to mind when I saw your post. Are your fillings metal?

Rachel--24 Collaborator
Rachel--24
Posted

Berneses,

I had my fillings removed 2 years ago cuz I freaked out about mercury when i started researching my symptoms and read about it. It didnt change anything for me so will have to wait and see what the test results say.

Guest BERNESES
Guest BERNESES
Posted
Berneses,

I had my fillings removed 2 years ago cuz I freaked out about mercury when i started researching my symptoms and read about it. It didnt change anything for me so will have to wait and see what the test results say.

That was smart!!! Maybe you still have to detox though. I hope they find out for you. this has been going on way too long and you deserve to feel better. :(

Rachel--24 Collaborator
Rachel--24
Posted
That was smart!!! Maybe you still have to detox though. I hope they find out for you. this has been going on way too long and you deserve to feel better. :(

I know. One of these days I'm gonna have it all figured out and I'm gonna shock the hell out of everyone by posting that I'm all better!! :D

Guest BERNESES
Guest BERNESES
Posted
I know. One of these days I'm gonna have it all figured out and I'm gonna shock the hell out of everyone by posting that I'm all better!! :D

And you KNOW we're all hoping for that day to come soon! :) jeepers- you've certainly done your time. hang in there- I know you're strong but this would wear down the best!

Guest mvaught
Guest mvaught
Posted

good luck rachel! everyone is rooting for you...you totally deserve to feel better.

-michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest BERNESES
Guest BERNESES
Posted
Still dealing with up coming Easter and all the 'pain' that it's bringing with now not having either parent in my life now. Just very down right now and the only 'joy' I'm finding is in my garden and 'getting away from' all the theories...just want to get through Easter. Miss my son too.

judy

I know...missing my mom terribly right now. Easter was always special because of her. Can't imagine if my dad was gone too. hang in there, plant those pansies and we'll "reconvene" after the holiday.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    3. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    5. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748
    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.