CVS (Cyclic vomiting syndrome)

[Marky0320]

Is CVS a common symptom of Celiac Disease?

[trents]

Welcome to the forum, @Marky0320!

Simple nausea and emesis is common with celiac disease when gluten is ingested but I have not heard of a connection between CVS and celiac disease per se. Are you asking this question as one who has already been officially diagnosed with celiac disease or as someone who is investigating the possibility of having celiac disease?

[Marky0320]

I'm investigating the possibility of having celiac disease. My kid has Coffins Lowery syndrome, a rare form of Austism, and constantly has these CVS episodes. We suspect it could be related to Gluten sensitivity or celiac. We just started the diet last week, and we'll keep an eye on any improvements.

[trents]

Be aware that putting your child on a gluten free diet ahead of an official celiac diagnosis will invalidate any attempt to arrive at an official diagnosis. If at some point in time after commencing a gluten free diet you wish to have your child tested for celiac disease, he/she would need to go back to eating normal amounts of gluten for weeks/months leading up to the testing date. And it is often the case that once gluten has been withdrawn for a significant amount of time, the reactions are much stronger when going back on it.

Edited May 27 by trents

[Scott Adams]

Cyclic Vomiting Syndrome (CVS) is not a common symptom of celiac disease, but there can be occasional overlap—particularly in children. Celiac disease typically presents with symptoms like chronic diarrhea, abdominal pain, fatigue, and nutrient deficiencies, while CVS is marked by repeated, intense vomiting episodes separated by periods of normal health. In rare cases, undiagnosed celiac disease can cause recurrent vomiting that mimics CVS, and symptoms may resolve on a gluten-free diet. Because of this, celiac disease should be ruled out in anyone diagnosed with CVS, especially if there are other gastrointestinal or nutritional concerns. However, vomiting alone is more often related to other conditions such as migraines or autonomic dysfunction.

[knitty kitty]

Cyclic Vomiting Syndrome may be related to Thiamine Vitamin B1  deficiency.    

Hyperemesis is a symptom of thiamine deficiency.  Thiamine deficiency symptoms can wax and wane mysteriously depending on how much thiamine is absorbed from the diet.  A twenty percent increase in dietary thiamine results in an eighty percent increase in brain function and decrease of symptoms.  Eating a diet high in carbohydrates can result in thiamine deficiency.  

Many children on the Autism spectrum benefit from supplementing Thiamine.  See the research done by Dr. Derrick Lonsdale and Dr. Chandler Marrs' at the website hormonesmatter.com, or published on NIH pubmed.

Edited June 6 by knitty kitty
Typo correction

[Marky0320]

Thanks you for this info! I will definitely do more research on it!

[knitty kitty]

https://hormonesmatter.com/autistic-spectrum-disorder-asd-mitochondria-nutrients/

https://hormonesmatter.com/contemplating-cyclic-vomiting-syndrome/#google_vignette

https://hormonesmatter.com/cyclic-vomiting-syndrome-mitochondrial-dysfunction/

Edited June 6 by knitty kitty
Typo correction

[Marky0320]

Thank you! This is very useful info!