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Diagnosed celiac for 1-2 months ago and everything makes me bloated.


MegRCxx

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MegRCxx Newbie

I started eating gluten free about a month before my test results came through and i was starting to feel a little better but still the off flare ups.

I recieved the diagnosis at the beginning of September and they have supplied me with a nutritionist mid october. I am only eating gluten free foods and am so careful but i just seem to still always feel like crap. 
 

i feel fine after breakfast but as soon as ive had lunch i feel crap for the rest of the day. Stomach hurts to apply any pressure, fatigue, mood swings and its getting to me at the moment.

 

i used to be a head pastry chef and thought id always had that to fall back on but the not being able to eat everything i love and worrying about cross contamination has taken a massive toll. There is only so much you can do with coeliac and i just dont know how to feel better. Any advice or suggestions will be greatly appreciated.

 


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Scott Adams Grand Master

When you are first diagnosed it is very normal to feel overwhelmed and depressed about the vast dietary changes that a 100% gluten-free diet entails.

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

There are a couple of things that can help you feel like you have "regained control," and the two that I recommend are learning to read ingredient labels so that you can shop with confidence, and the other is learning to become a good cook (if you aren't already). If you can master these two, then you have regained control of your diet, and can eat safely and recover.

To help this site has extensive recipes and cooking sections:

The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping.

It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.

 

 

 

 

Beverage Proficient

I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home.

What are you eating for breakfast and lunch?

I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand.

A food and symptoms and activities log can be helpful in tracking down issues.

You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines. 

Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues).

The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it.

Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months!

It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.

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    • knitty kitty
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    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
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      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
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